{"id":4782,"date":"2025-11-20T10:22:56","date_gmt":"2025-11-20T10:22:56","guid":{"rendered":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/?page_id=4782"},"modified":"2026-03-27T11:55:02","modified_gmt":"2026-03-27T11:55:02","slug":"guias-y-protocolos","status":"publish","type":"page","link":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/guias-y-protocolos\/","title":{"rendered":"GU\u00cdAS Y PROTOCOLOS"},"content":{"rendered":"\t\t
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ATAXIA TELANGIECTASIA<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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GU\u00cdAS Y PROTOCOLOS<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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Gu\u00eda de atenci\u00f3n al paciente en espa\u00f1ol<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Dirigida principalmente a m\u00e9dicos, pero tambi\u00e9n \u00fatil para familias y cuidadores. Elaborada por Aefat, con la colaboraci\u00f3n de m\u00e1s de cincuenta especialistas de los principales centros m\u00e9dicos en Espa\u00f1a, y basada en las gu\u00edas ya existentes en otros idiomas.\u00a0<\/span><\/p>

Contiene los principales datos sobre la enfermedad y recomendaciones, el diagn\u00f3stico y la atenci\u00f3n m\u00e9dica a los pacientes.<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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Gu\u00edas internacionales<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tVER GU\u00cdAS<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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Recursos para el d\u00eda a d\u00eda<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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\n\t\t\t\t\t\tRecursos educativos\n\t\t\t\t\t<\/p>\n\t\t\t\t\n\t\t\t<\/div>\n\t\t\t\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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\n\t\t\t\t\t\tRecursos de nutrici\u00f3n\n\t\t\t\t\t<\/p>\n\t\t\t\t\n\t\t\t<\/div>\n\t\t\t\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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\n\t\t\t\t\t\tRecursos Becas y ayudas a las familias\t\t\t\t\t<\/p>\n\t\t\t\t\n\t\t\t<\/div>\n\t\t\t\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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\n\t\t\t\t\t\tApoyo psicol\u00f3gico\t\t\t\t\t<\/p>\n\t\t\t\t\n\t\t\t<\/div>\n\t\t\t\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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\n\t\t\t\t\t\tRecursos de fisioterapia\t\t\t\t\t<\/p>\n\t\t\t\t\n\t\t\t<\/div>\n\t\t\t\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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Protocolos m\u00e9dicos en Espa\u00f1a<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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En la actualidad, en Espa\u00f1a, solamente dos centros hospitalarios cuentan con un Protocolo espec\u00edfico para la atenci\u00f3n a pacientes con ataxia telangiectasia.\u00a0<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\n\t\t\t\t

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Hospital Universitario Vall D'Hebron<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Barcelona\n<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\u00a0Protocolo p\u00fablico, paciente pedi\u00e1trico<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/a>\n\t\t

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Hospital Sant Joan de D\u00e9u\n<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Barcelona\n<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Protocolo interno, paciente pedi\u00e1trico<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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INFO <\/div><\/span>\n\t\t\t\t\t\t\t\n\t\t\t<\/path><\/svg><\/span>\n\t\t\t<\/path><\/svg><\/span>\n\t\t<\/span>\n\n\t\t\t\t\t\t<\/summary>\n\t\t\t\t
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Referencia:<\/b> \u00abAbordaje neumol\u00f3gico en pacientes afectados de Ataxia-Telangiectasia<\/span>\u201d C\u00f3digo: A-PNE-PC-0004-01\u00a0<\/p>

\u00c1mbito: <\/b>Consultas Externas\u00a0<\/p>

Autores: <\/b>Isabel Gasc\u00f3n Casaredi, Maria Cols Roig<\/p>

Fecha aprobaci\u00f3n:<\/b> Agosto de 2021\u00a0\u00a0<\/p>

Comisi\u00f3n de Farmacia: <\/b>14 de febrero de 2022<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/details>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

ATAXIA TELANGIECTASIA GU\u00cdAS Y PROTOCOLOS Gu\u00eda de atenci\u00f3n al paciente en espa\u00f1ol Dirigida principalmente a m\u00e9dicos, pero tambi\u00e9n \u00fatil para familias y cuidadores. Elaborada por Aefat, con la colaboraci\u00f3n de m\u00e1s de cincuenta especialistas de los principales centros m\u00e9dicos en Espa\u00f1a, y basada en las gu\u00edas ya existentes en otros idiomas.\u00a0 Contiene los principales datos […]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"elementor_header_footer","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-4782","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"\nGU\u00cdAS Y PROTOCOLOS - Aefat<\/title>\n<meta name=\"description\" content=\"En la actualidad, en Espa\u00f1a, solamente dos centros hospitalarios cuentan con un Protocolo espec\u00edfico para la atenci\u00f3n a pacientes con ataxia telangiectasia.\" \/>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"GU\u00cdAS Y PROTOCOLOS - 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