{"id":1975,"date":"2015-05-08T10:15:29","date_gmt":"2015-05-08T10:15:29","guid":{"rendered":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2015\/05\/08\/ii-encuentro-aefat-26-30-de-abril-en-el-creer-de-burgos\/"},"modified":"2026-03-02T12:03:09","modified_gmt":"2026-03-02T12:03:09","slug":"ii-encuentro-aefat-26-30-de-abril-en-el-creer-de-burgos","status":"publish","type":"post","link":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2015\/05\/08\/ii-encuentro-aefat-26-30-de-abril-en-el-creer-de-burgos\/","title":{"rendered":"II Encuentro AEFAT 26-30 de Abril en el CREER de Burgos"},"content":{"rendered":"<p><img decoding=\"async\" src=\"http:\/\/www.aefat.es\/images\/creer.jpg\" alt=\"CREER\" style=\"display: block; margin-left: auto; margin-right: auto; margin-top: 5px;\" \/><\/p>\n<p>La \u00faltima semana de abril se celebrar\u00e1 el 2\u00ba encuentro de&nbsp; <strong><span style=\"color: #ff00ff;\">AEFAT<\/span><\/strong>&nbsp;(Asociaci\u00f3n Espa\u00f1ola Familia Ataxia Telangiectasia), concretamente entre el 26 de abril y el 1 de mayo. Las jornadas se celebrar\u00e1n en el <strong><a href=\"index.php?option=com_weblinks&amp;view=weblink&amp;id=188;centro-de-referencia-estatal-de-atencion-a-personas-con-enfermedades-raras-y-sus-familias-de-burgos&amp;catid=27;instituciones&amp;Itemid=101&amp;task=weblink.go\" target=\"_blank\" rel=\"noopener noreferrer\">Centro de Referencia Estatal de Enfermedades Raras de Burgos<\/a><\/strong>, dependiente del Imserso.<\/p>\n<p>El encuentro se dividir\u00e1 en dos partes. Por un lado, del 26 al 29 de abril nos reuniremos familias de todo el estado; Valencia, Murcia, Alicante, Pontevedra, Tarrasa y Vitoria para que los ni\u00f1os afectados y sus hermanos puedan trabajar con fisioterapeutas, m\u00e9dicos rehabilitadores y logopedas del <strong><a href=\"index.php?option=com_weblinks&amp;view=weblink&amp;id=188;centro-de-referencia-estatal-de-atencion-a-personas-con-enfermedades-raras-y-sus-familias-de-burgos&amp;catid=27;instituciones&amp;Itemid=101&amp;task=weblink.go\" target=\"_blank\" rel=\"noopener noreferrer\">CREER<\/a><\/strong> de un manera l\u00fadica, mientras los padres dedicamos unas d\u00edas para intercambiar experiencias, aprender pautas de fisioterapia y conocer los \u00faltimos avances en adaptaciones inform\u00e1ticas, del hogar etc.<\/p>\n<p>Ya para finalizar los d\u00edas 29 y 30 se unir\u00e1n al encuentro m\u00e9dicos y cient\u00edficos para exponer y analizar cuales son los \u00faltimos avances tanto en investigaci\u00f3n como en tratamientos. A partir de este encuentro esperamos que surja un grupo de trabajo en el que se vayan analizando cuales son las necesidades mas prioritarias en el campo de la medicina (protocolos de actuaci\u00f3n, guias m\u00e9dicas) y la investigaci\u00f3n respecto a la AT.<\/p>\n<p>Desde <strong><a href=\"index.php?option=com_weblinks&amp;view=weblink&amp;id=38;aitzina-folk&amp;catid=24;aitzina&amp;Itemid=101&amp;task=weblink.go\" target=\"_blank\" rel=\"noopener noreferrer\">Aitzina<\/a><\/strong> ya estamos aportando nuestro granito de arena a este proyecto mediante la campa\u00f1a de recogida solidaria de tapones de pl\u00e1stico.<\/p>\n<p>Pod\u00e9is darle un vistazo al programa del encuentro pinchando aqui: <strong><a href=\"http:\/\/www.aefat.es\/docs\/Programa_CREER%20_AEFAT_2011.pdf\" target=\"_blank\" rel=\"noopener noreferrer\">Programa II encuentro AEFAT<\/a><\/strong><\/p>\n","protected":false},"excerpt":{"rendered":"<p>La \u00faltima semana de abril se celebrar\u00e1 el 2\u00ba encuentro de&nbsp; AEFAT&nbsp;(Asociaci\u00f3n Espa\u00f1ola Familia Ataxia Telangiectasia), concretamente entre el 26 de abril y el 1 de mayo. Las jornadas se celebrar\u00e1n en el Centro de Referencia Estatal de Enfermedades Raras de Burgos, dependiente del Imserso. El encuentro se dividir\u00e1 en dos partes. Por un lado, [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[814],"tags":[150,107,170,99],"class_list":["post-1975","post","type-post","status-publish","format-standard","hentry","category-premios-y-reconocimientos","tag-burgos","tag-creer","tag-encuentro-aefat","tag-india"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>II Encuentro AEFAT 26-30 de Abril en el CREER de Burgos - Aefat<\/title>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"II Encuentro AEFAT 26-30 de Abril en el CREER de Burgos - Aefat\" \/>\n<meta property=\"og:description\" content=\"La \u00faltima semana de abril se celebrar\u00e1 el 2\u00ba encuentro de&nbsp; AEFAT&nbsp;(Asociaci\u00f3n Espa\u00f1ola Familia Ataxia Telangiectasia), concretamente entre el 26 de abril y el 1 de mayo. Las jornadas se celebrar\u00e1n en el Centro de Referencia Estatal de Enfermedades Raras de Burgos, dependiente del Imserso. El encuentro se dividir\u00e1 en dos partes. Por un lado, [&hellip;]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2015\/05\/08\/ii-encuentro-aefat-26-30-de-abril-en-el-creer-de-burgos\/\" \/>\n<meta property=\"og:site_name\" content=\"Aefat\" \/>\n<meta property=\"article:published_time\" content=\"2015-05-08T10:15:29+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2026-03-02T12:03:09+00:00\" \/>\n<meta property=\"og:image\" content=\"http:\/\/www.aefat.es\/images\/creer.jpg\" \/>\n<meta name=\"author\" content=\"admin\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Escrito por\" \/>\n\t<meta name=\"twitter:data1\" content=\"admin\" \/>\n\t<meta name=\"twitter:label2\" content=\"Tiempo de lectura\" \/>\n\t<meta name=\"twitter:data2\" content=\"1 minuto\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2015\/05\/08\/ii-encuentro-aefat-26-30-de-abril-en-el-creer-de-burgos\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2015\/05\/08\/ii-encuentro-aefat-26-30-de-abril-en-el-creer-de-burgos\/\"},\"author\":{\"name\":\"admin\",\"@id\":\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/#\/schema\/person\/d75277649f873b670821832f92709a5f\"},\"headline\":\"II Encuentro AEFAT 26-30 de Abril en el CREER de Burgos\",\"datePublished\":\"2015-05-08T10:15:29+00:00\",\"dateModified\":\"2026-03-02T12:03:09+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2015\/05\/08\/ii-encuentro-aefat-26-30-de-abril-en-el-creer-de-burgos\/\"},\"wordCount\":255,\"publisher\":{\"@id\":\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/#organization\"},\"image\":{\"@id\":\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2015\/05\/08\/ii-encuentro-aefat-26-30-de-abril-en-el-creer-de-burgos\/#primaryimage\"},\"thumbnailUrl\":\"http:\/\/www.aefat.es\/images\/creer.jpg\",\"keywords\":[\"Burgos\",\"CREER\",\"Encuentro AEFAT\",\"India\"],\"articleSection\":[\"Premios y reconocimientos\"],\"inLanguage\":\"es\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2015\/05\/08\/ii-encuentro-aefat-26-30-de-abril-en-el-creer-de-burgos\/\",\"url\":\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2015\/05\/08\/ii-encuentro-aefat-26-30-de-abril-en-el-creer-de-burgos\/\",\"name\":\"II Encuentro AEFAT 26-30 de Abril en el CREER de Burgos - 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