{"id":2026,"date":"2016-04-26T18:48:51","date_gmt":"2016-04-26T18:48:51","guid":{"rendered":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2016\/04\/26\/carrera-solidaria-en-apoyo-a-los-enfermos-de-ataxia-telangiectasia-el-5-de-junio\/"},"modified":"2026-03-02T12:02:50","modified_gmt":"2026-03-02T12:02:50","slug":"carrera-solidaria-en-apoyo-a-los-enfermos-de-ataxia-telangiectasia-el-5-de-junio","status":"publish","type":"post","link":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2016\/04\/26\/carrera-solidaria-en-apoyo-a-los-enfermos-de-ataxia-telangiectasia-el-5-de-junio\/","title":{"rendered":"Carrera solidaria en apoyo a los enfermos de ataxia-telangiectasia el 5 de junio"},"content":{"rendered":"<p><strong>Organizada por la asociaci&oacute;n de familiares de los enfermos, pretende recaudar fondos y divulgar la enfermedad<\/strong><\/p>\n<p>La Opini&oacute;n 26.04.2016<\/p>\n<p>La Aefat (Asociaci&oacute;n Espa&ntilde;ola Familia Ataxia-Telangiectasia), con la colaboraci&oacute;n del distrito Puerto de la Torre, organiza la segunda carrera solidaria Tus pasos mueven el mundo, con el objetivo de recaudar fondos para continuar con la investigaci&oacute;n de esta enfermedad, a la vez que dar visibilidad a la misma y concienciar a la sociedad sobre la existencia de esta enfermedad, su problem&aacute;tica y su carencia de soluciones a d&iacute;a de hoy.<\/p>\n<p>La carrera, que fue presentada ayer, se celebrar&aacute; el pr&oacute;ximo 5 de junio, en ella podr&aacute;n participar hasta 1.500 corredores, a partir de 3 a&ntilde;os. Habr&aacute; dos recorridos, uno corto (1,5 km.) para inscritos hasta los 9 a&ntilde;os de edad, familias acompa&ntilde;antes, y otro largo (5,5 km.) para mayores de 9 a&ntilde;os.<\/p>\n<p>Una vez finalizada la carrera, en la caseta municipal del distrito se va a celebrar entre todos los participantes un sorteo mediante los n&uacute;meros del dorsal, de los regalos que hayan podido conseguir de todas aquellas personas y comercios que donen para ese fin.<\/p>\n<p>Posteriormente, se ofrecer&aacute;n una espetada de sardinas y una paella solidaria, elaboradas por Paelleros sin Fronteras, as&iacute; como servicio de barra, animaci&oacute;n infantil y para adultos, m&uacute;sica, panda de verdiales?<\/p>\n<p>La ataxia-telangiectasia (AT) es una enfermedad rara, de origen gen&eacute;tico, neurodegenerativa y altamente incapacitante. Solamente hay localizados entre 30 y 35 casos en toda Espa&ntilde;a.<\/p>\n<p><a href=\"http:\/\/www.laopiniondemalaga.es\/malaga\/2016\/04\/26\/carrera-solidaria-apoyo-enfermos-ataxia\/845153.html\">http:\/\/www.laopiniondemalaga.es\/malaga\/2016\/04\/26\/carrera-solidaria-apoyo-enfermos-ataxia\/845153.html<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Organizada por la asociaci&oacute;n de familiares de los enfermos, pretende recaudar fondos y divulgar la enfermedad La Opini&oacute;n 26.04.2016 La Aefat (Asociaci&oacute;n Espa&ntilde;ola Familia Ataxia-Telangiectasia), con la colaboraci&oacute;n del distrito Puerto de la Torre, organiza la segunda carrera solidaria Tus pasos mueven el mundo, con el objetivo de recaudar fondos para continuar con la investigaci&oacute;n [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[807],"tags":[60,58,145,72,71,146],"class_list":["post-2026","post","type-post","status-publish","format-standard","hentry","category-deporte-solidario","tag-aefat","tag-cadiz","tag-cadiz-directo","tag-carrera-solidaria","tag-malaga","tag-media-marathon-bahia-de-cadiz"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.2 - 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