{"id":2180,"date":"2019-05-14T16:37:23","date_gmt":"2019-05-14T16:37:23","guid":{"rendered":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2019\/05\/14\/corredores-maraton-vitoria-ataxia-telangiectasia\/"},"modified":"2026-03-02T12:02:01","modified_gmt":"2026-03-02T12:02:01","slug":"corredores-maraton-vitoria-ataxia-telangiectasia","status":"publish","type":"post","link":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2019\/05\/14\/corredores-maraton-vitoria-ataxia-telangiectasia\/","title":{"rendered":"25 corredores solidarios \u201cempujaron\u201d en la marat\u00f3n de Vitoria-Gasteiz para hacer visible la ataxia telangiectasia"},"content":{"rendered":"

\"Aefat\u00a1Completada nuestra marat\u00f3n n\u00famero 13 dando visibilidad a la ataxia telangiectasia!<\/strong><\/p>\n

Los 25 corredores solidarios que participaron este domingo en la Marat\u00f3n Fiz de Vitoria-Gasteiz empujaron las sillas de seis ni\u00f1os y j\u00f3venes con esta enfermedad rara y neurodegenerativa que normalmente obliga a usar silla de ruedas a partir de los 9-10 a\u00f1os.<\/p>\n

Y \u201cempujaron\u201d en los dos sentidos, tal como explicaba Patxi Vill\u00e9n, presidente de Aefat, la asociaci\u00f3n que une a unas 30 familias afectadas en Espa\u00f1a y que organiza este tipo de actividades para motivar a los afectados, dar visibilidad a la enfermedad y recaudar fondos para la investigaci\u00f3n. \u201cLos corredores han empujado las sillas de nuestros hijos pero tambi\u00e9n con su labor dan un buen empuj\u00f3n a que la enfermedad se conozca y sea m\u00e1s f\u00e1cil de diagnosticar, y a colaborar en fomentar eventos deportivos inclusivos que favorezcan la aceptaci\u00f3n de gente con discapacidad como nuestros chicos\u201d.<\/p>\n

Su hijo, el vitoriano Jon, de 16 a\u00f1os, uno de los afectados por ataxia telangiectasia en el Pa\u00eds Vasco, quiso repetir la experiencia del a\u00f1o pasado en la marat\u00f3n de su ciudad. \u201cMe he perdido otras dos maratones por estar en el hospital y quer\u00eda que mis compa\u00f1eros de asociaci\u00f3n vinieran a Vitoria-Gasteiz a vivir esta\u201d, se\u00f1alaba. Participaron con \u00e9l los mellizos Adri\u00e1n y B\u00e1rbara (Burgos, 13 a\u00f1os), \u00c1lex (Valencia, 15 a\u00f1os), Javi (Murcia, 23 a\u00f1os), y Lola (10 a\u00f1os, Barcelona)<\/strong>.<\/p>\n

\u201cMe encanta participar porque me siento libre, siento el viento en la cara\u201d, explicaba Lola. \u201cEs muy emocionante\u201d, contaba Javi. \u201cLos corredores son muy divertidos\u201d, destacaban los mellizos Adri\u00e1n y B\u00e1rbara. \u201cMe lo paso en grande\u201d, comentaba \u00c1lex. Todos disfrutaron de 42 km y 5 horas de risas, bromas, m\u00fasica, \u00e1nimos de otros corredores y del p\u00fablico\u2026 y de la comida posterior con las familias.<\/p>\n

Los 25 corredores solidarios<\/strong>, algunos nuevos y otros fieles al equipo desde hace dos a\u00f1os, proceden de distintas localidades del Pa\u00eds Vasco, La Rioja, Huesca, M\u00e1laga, Barcelona\u2026 Entre los corredores que empujaron las sillas tambi\u00e9n estaba Alfonso, el abuelo de Lola. Todos lucieron el lema #CorreFrenalaAT, con la imagen de Aefat, este a\u00f1o en camisetas blancas.<\/p>\n

Aefat<\/a><\/strong>, la asociaci\u00f3n que agrupa a los afectados en el estado espa\u00f1ol y que tiene sede en Vitoria-Gasteiz, fomenta la participaci\u00f3n de los ni\u00f1os y j\u00f3venes afectados en distintas maratones para favorecer acciones de deporte inclusivo que generen ejemplo de superaci\u00f3n y lucha para ellos, y para recaudar fondos para el proyecto de investigaci\u00f3n que Aefat est\u00e1 financiando en la Cl\u00ednica Universidad de Navarra<\/a><\/strong>.<\/p>\n

Patxi Vill\u00e9n<\/strong>, presidente de Aefat, padre de Jon y responsable tambi\u00e9n del festival solidario Aitzina Folk que se celebra desde hace seis a\u00f1os en la capital alavesa, ha querido agradecer \u201cla colaboraci\u00f3n de todos los que hacen que nuestros hijos sean un poco m\u00e1s felices, como los corredores solidarios, grandes personas que se unen al equipo a veces sin conocernos de nada, que entrenan y sufren, no para hacer una marca sino para colaborar con una causa\u201d. Tambi\u00e9n ha agradecido \u201cel apoyo de colaboradores como el hotel NH Canciller Ayala Vitoria<\/strong>, en el alojamiento solidario de las familias de los afectados, y MRW<\/strong>, en el env\u00edo de las sillas especiales\u201d.<\/p>\n

———————————————<\/p>\n

Nuestro especial agradecimiento:<\/strong><\/p>\n

– A nuestros ni\u00f1os y j\u00f3venes por su entusiasmo, ganas de luchar y ansias de superaci\u00f3n: Lola, Adri\u00e1n, B\u00e1rbara, \u00c1lex, Jon y Javi.<\/p>\n

– A las familias de Aefat.<\/p>\n

– A nuestros grandes corredores: Chema, Ustaritz, Jos\u00e9, Ricardo, Gotzon, Xabi A., Yeray, Xabi O., Patxi, Goyo, Mikel, Kepa, Jon, Sergio, Javi, Eduardo, Jon, Santy, Valent\u00edn, Carmen, David, Alfonso, Rafa, Rafael M., Jhon, Angie y SpiderAbel.<\/p>\n

– A todos los que nos apoyan y han hecho posible esta experiencia.<\/p>\n

 <\/p>\n

\"Aefat<\/p>\n

\"Aefat<\/p>\n

\"Aefat<\/p>\n

\"Aefat<\/p>\n","protected":false},"excerpt":{"rendered":"

\"Aefat\u00a1Completada nuestra marat\u00f3n n\u00famero 13 dando visibilidad a la ataxia telangiectasia!<\/strong><\/p>\n

Los 25 corredores solidarios que participaron este domingo en la Marat\u00f3n Fiz de Vitoria-Gasteiz empujaron las sillas de seis ni\u00f1os y j\u00f3venes con esta enfermedad rara y neurodegenerativa que normalmente obliga a usar silla de ruedas a partir de los 9-10 a\u00f1os.<\/p>\n","protected":false},"author":1,"featured_media":2175,"comment_status":"closed","ping_status":"open","sticky":true,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[807],"tags":[278,181,137,71,64,126],"class_list":["post-2180","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-deporte-solidario","tag-ataxia-telangientasia","tag-jorge","tag-la-opinion-de-malaga","tag-malaga","tag-maraton","tag-tapones-solidarios"],"acf":[],"yoast_head":"\n25 corredores solidarios \u201cempujaron\u201d en la marat\u00f3n de Vitoria-Gasteiz para hacer visible la ataxia telangiectasia - Aefat<\/title>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"25 corredores solidarios \u201cempujaron\u201d en la marat\u00f3n de Vitoria-Gasteiz para hacer visible la ataxia telangiectasia - Aefat\" \/>\n<meta property=\"og:description\" content=\"\u00a1Completada nuestra marat\u00f3n n\u00famero 13 dando visibilidad a la ataxia telangiectasia! 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