{"id":2278,"date":"2020-06-24T07:09:12","date_gmt":"2020-06-24T07:09:12","guid":{"rendered":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2020\/06\/24\/spiderabel-correra-un-maraton-en-solitario-por-la-investigacion-de-la-ataxia-telangiectasia-2\/"},"modified":"2026-03-02T12:01:40","modified_gmt":"2026-03-02T12:01:40","slug":"spiderabel-correra-un-maraton-en-solitario-por-la-investigacion-de-la-ataxia-telangiectasia-2","status":"publish","type":"post","link":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2020\/06\/24\/spiderabel-correra-un-maraton-en-solitario-por-la-investigacion-de-la-ataxia-telangiectasia-2\/","title":{"rendered":"SpiderAbel correr\u00e1 un marat\u00f3n en solitario por la investigaci\u00f3n de la ataxia telangiectasia"},"content":{"rendered":"<p><img fetchpriority=\"high\" decoding=\"async\" class=\" size-full wp-image-2248\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/06\/Cartel_maraton_SpiderAbel_para_Aefat_B.jpg\" alt=\"Cartel maraton SpiderAbel para Aefat B\" width=\"9000\" height=\"9000\" \/><\/p>\n<p>El gran maratoniano <strong>SpiderAbel<\/strong> (Abel Fern\u00e1ndez Mendivil), con <strong>m\u00e1s de 70 maratones<\/strong> a sus espaldas disfrazado de Spiderman, correr\u00e1 esta vez en solitario para recaudar fondos por la investigaci\u00f3n de la ataxia telangiectasia, una enfermedad rara y neurodegenerativa que a\u00fan no tiene cura ni tratamiento, y que afecta a dos chicos en Euskadi y a unos 30 en Espa\u00f1a. Este especial <strong>Marat\u00f3n Solidario de Ayala\/Aiarako Maratoi Solidarioa<\/strong> se celebrar\u00e1 el <strong>domingo 5 de julio<\/strong>, con un trayecto de 42 km que recorrer\u00e1 distintas localidades alavesas, con salida y meta en Amurrio, localidad de SpiderAbel.<\/p>\n<p>Este gran corredor popular, solidario con muchas causas, se ha volcado en esta ocasi\u00f3n con <a href=\"https:\/\/www.aefat.es\/\">Aefat<\/a>, la asociaci\u00f3n que agrupa a las familias con ni\u00f1os y j\u00f3venes con ataxia telangiectasia en el Estado. Tal como ha explicado <strong>Patxi Vill\u00e9n, presidente de Aefat<\/strong>, \u201ccontact\u00f3 con nosotros a trav\u00e9s de una red social hace unos a\u00f1os, para colaborar corriendo con nuestro Equipo Zurich Aefat en los maratones, empujando las sillas de nuestros afectados. Y ha acabado siendo como de la familia, implicado con nosotros al m\u00e1ximo dentro y fuera de las carreras. Es una gran persona\u201d. <span style=\"color: #999999;\"><em>(<a href=\"https:\/\/www.youtube.com\/watch?v=w31biwSQ27M\"><strong>V\u00eddeo<\/strong> <\/a>con im\u00e1genes de SpiderAbel en maratones con Aefat)<\/em><\/span><\/p>\n<p>La pandemia provocada por el Covid19 ha causado tambi\u00e9n efectos secundarios que apenas se perciben. <strong>Maratones y eventos solidarios cancelados<\/strong> <strong>o pospuestos<\/strong> <strong>que ponen en peligro la recaudaci\u00f3n de fondos para la investigaci\u00f3n<\/strong> de enfermedades raras como esta, adem\u00e1s de su efecto en la calidad de vida de los afectados, ya que son grupo de riesgo. Esta enfermedad, degenerativa a nivel f\u00edsico, provoca que los ni\u00f1os tengan que usar silla de ruedas hacia los nueve a\u00f1os y que necesiten cada vez m\u00e1s ayuda para sus actividades b\u00e1sicas. La inmunodeficiencia y su propensi\u00f3n a complicaciones respiratorias dificultan tambi\u00e9n su d\u00eda a d\u00eda, pero, como destaca Vill\u00e9n \u201cse mantienen intactas sus ganas de vivir, de viajar, de tener amigos, de ser felices&#8230;\u201d.<\/p>\n<p>Para ayudar a seguir buscando una cura SpiderAbel ha organizado, junto con su <strong><a href=\"http:\/\/oinkariak.blogspot.com\/\">Club de Atletismo Oinkariak<\/a><\/strong> de Amurrio, este<strong> reto especial de correr un marat\u00f3n en solitario por la zona de Ayala. <\/strong>El recorrido pasar\u00e1 por Murga, Luiaondo, Arespalditza, Zuaza, Menagarai, Kexana e Izoria, con salida y meta en Amurrio. El <strong>reto <\/strong>se podr\u00e1 <strong>seguir en directo por las redes sociales de Aefat<\/strong> y los que quieran apoyar al corredor y su causa podr\u00e1n donar directamente a trav\u00e9s del Facebook e Instagram de la asociaci\u00f3n, o a trav\u00e9s de la cuenta <strong>ES85 3035 0228 9622 8009 9996. <\/strong><\/p>\n<p><span style=\"color: #ff00ff;\"><strong>DORSAL VIRTUAL SOLIDARIO<\/strong><\/span><\/p>\n<p>Si quieres colaborar con SpiderAbel y Aefat, y mostrarlo en tus redes sociales para ayudarnos a dar difusi\u00f3n a la enfermedad, y ayudar a que otros colaboren, puedes hacerlo tambi\u00e9n con el dorsal solidario. \u00bfC\u00f3mo?<\/p>\n<ul>\n<li>Dona 5 \u20ac (o lo que t\u00fa quieras) a trav\u00e9s del bot\u00f3n de DONAR de la cuenta de AEFAT en <a href=\"https:\/\/www.facebook.com\/AEFAT.es\">Facebook <\/a>o&nbsp; HACER DONACI\u00d3N de <a href=\"https:\/\/www.instagram.com\/aefat_at\">Instagram<\/a> de Aefat (en el perfil o en los stickers de las stories para promocionar m\u00e1s donaciones).&nbsp;Te env\u00edan un email como justificante de tu donaci\u00f3n.<\/li>\n<li>Imprime el dorsal virtual solidario (aqu\u00ed abajo) y escribe tu nombre<\/li>\n<li>Si quieres correr POR TU CUENTA, por tu zona, el 5 de julio o durante los d\u00edas anteriores, ponte tu dorsal solidario y hazte una foto (si no vas a correr pero quieres donar, tambi\u00e9n te puedes hacer la foto y as\u00ed animas a otros)<\/li>\n<li>S\u00fabela a redes sociales etiquetando a Aefat con el hashtag #CorreFrenaLaAT. \u00a1\u00a1Gracias!!<\/li>\n<\/ul>\n<p>&nbsp;<img decoding=\"async\" class=\" size-full wp-image-2259\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/06\/DORSAL_maraton_SpiderAbel_para_Aefat_5.jpg\" alt=\"DORSAL maraton SpiderAbel para Aefat 5\" width=\"8910\" height=\"6300\" srcset=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/06\/DORSAL_maraton_SpiderAbel_para_Aefat_5.jpg 8910w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/06\/DORSAL_maraton_SpiderAbel_para_Aefat_5-300x212.jpg 300w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/06\/DORSAL_maraton_SpiderAbel_para_Aefat_5-1024x724.jpg 1024w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/06\/DORSAL_maraton_SpiderAbel_para_Aefat_5-768x543.jpg 768w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/06\/DORSAL_maraton_SpiderAbel_para_Aefat_5-18x12.jpg 18w\" sizes=\"(max-width: 8910px) 100vw, 8910px\" \/><\/p>\n<p><strong>Este reto<\/strong><strong> solidario <\/strong>cuenta tambi\u00e9n con la colaboraci\u00f3n del <strong>Ayuntamiento de Amurrio<\/strong> y su servicio de <strong>Protecci\u00f3n Civil<\/strong> (con la ayuda de sus compa\u00f1eros de Alonsotegi), el <strong>Ayuntamiento de Ayala<\/strong> y la empresa <strong><a href=\"https:\/\/izalde.es\/\">Izalde Audiovisuales<\/a><\/strong>, que se encargar\u00e1 de retransmitir el evento en directo a trav\u00e9s de las cuentas de Facebook y de Instagram de Aefat. Los padres de los dos chicos afectados en \u00c1lava tambi\u00e9n colaborar\u00e1n, en nombre de las familias afectadas. <strong>Patxi Vill\u00e9n<\/strong>, presidente de Aefat y padre de Jon, estar\u00e1 en una mesa informativa en Amurrio. Y <strong>Kepa Vallejo<\/strong>, padre de Hodei, acompa\u00f1ar\u00e1 al corredor en bici como apoyo durante el recorrido.<\/p>\n<p><strong>Aefat est\u00e1 financiando un proyecto de investigaci\u00f3n<\/strong> en la&nbsp;<a href=\"https:\/\/www.cun.es\/actualidad\/noticias\/clinica-universidad-navarra-inicia-proyecto-investigacion-tratamiento-ataxia-telangiectasia\">Cl\u00ednica Universidad de Navarra<\/a>, que podr\u00eda dar con una terapia para los afectados. Aefat ha tenido que aplazar su participaci\u00f3n en las cuatro maratones con el&nbsp;<a href=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/?p=2041\"><strong>Equipo Zurich Aefat<\/strong><\/a>&nbsp;(Barcelona pospuesta, pendientes Donostia\/San Sebasti\u00e1n y M\u00e1laga este a\u00f1o), la&nbsp;<strong><a href=\"https:\/\/www.facebook.com\/carreraAefat\">Carrera Aefat M\u00e1laga<\/a><\/strong>&nbsp;de septiembre cancelada y a\u00fan est\u00e1 pendiente de decidir el&nbsp;<a href=\"http:\/\/aitzinafolk.org\/\"><strong>Festival Solidario Aitzina Folk<\/strong><\/a>&nbsp;que se celebra en noviembre y diciembre en Vitoria-Gasteiz. Adem\u00e1s, tambi\u00e9n se han cancelado otros eventos como fiestas de final de curso, bodas o eventos deportivos y culturales que iban a realizar una donaci\u00f3n a la asociaci\u00f3n.<\/p>\n<p><span style=\"color: #ff00ff;\"><strong>CONCURSOS EN REDES SOCIALES<\/strong><\/span><\/p>\n<p>Tambi\u00e9n se han organizado&nbsp;<strong>dos concursos<\/strong>&nbsp;para animar la participaci\u00f3n del p\u00fablico desde sus casas y en la zona: se premiar\u00e1 con premios especiales y un lote de productos la&nbsp;<strong>mejor foto de SpiderAbel<\/strong>&nbsp;durante su recorrido de este d\u00eda, y el que m\u00e1s se acerque al&nbsp;<strong>tiempo que tardar\u00e1 el corredor<\/strong>&nbsp;en recorrer los 42 km tambi\u00e9n se llevar\u00e1 un premio especial. La informaci\u00f3n completa se publicar\u00e1 en dos de las redes sociales de Aefat (<a href=\"https:\/\/www.facebook.com\/AEFAT.es\">Facebook <\/a>e <a href=\"https:\/\/www.instagram.com\/aefat_at\">Instagram<\/a>).<\/p>\n<p><img decoding=\"async\" class=\" size-full wp-image-2273\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/06\/Equipo_Zurich_Aefat_en_Maraton_Malaga_19_-_Foto_Xavier_dArquer_6.jpg\" alt=\"Equipo Zurich Aefat en Maraton Malaga 19 Foto Xavier dArquer 6\" width=\"1280\" height=\"853\" srcset=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/06\/Equipo_Zurich_Aefat_en_Maraton_Malaga_19_-_Foto_Xavier_dArquer_6.jpg 1280w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/06\/Equipo_Zurich_Aefat_en_Maraton_Malaga_19_-_Foto_Xavier_dArquer_6-300x200.jpg 300w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/06\/Equipo_Zurich_Aefat_en_Maraton_Malaga_19_-_Foto_Xavier_dArquer_6-1024x682.jpg 1024w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/06\/Equipo_Zurich_Aefat_en_Maraton_Malaga_19_-_Foto_Xavier_dArquer_6-768x512.jpg 768w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/06\/Equipo_Zurich_Aefat_en_Maraton_Malaga_19_-_Foto_Xavier_dArquer_6-18x12.jpg 18w\" sizes=\"(max-width: 1280px) 100vw, 1280px\" \/><\/p>\n<h6 style=\"text-align: center;\">SpiderAbel con el Equipo Zurich Aefat en la \u00faltima Zurich Marat\u00f3n M\u00e1laga (diciembre 2019)<\/h6>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p><img fetchpriority=\"high\" decoding=\"async\" class=\" size-full wp-image-2248\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/06\/Cartel_maraton_SpiderAbel_para_Aefat_B.jpg\" alt=\"Cartel maraton SpiderAbel para Aefat B\" width=\"9000\" height=\"9000\" \/><\/p>\n<p>El gran maratoniano <strong>SpiderAbel<\/strong> (Abel Fern\u00e1ndez Mendivil), con <strong>m\u00e1s de 70 maratones<\/strong> a sus espaldas disfrazado de Spiderman, correr\u00e1 esta vez en solitario para recaudar fondos por la investigaci\u00f3n de la ataxia telangiectasia, una enfermedad rara y neurodegenerativa que a\u00fan no tiene cura ni tratamiento, y que afecta a dos chicos en Euskadi y a unos 30 en Espa\u00f1a. Este especial <strong>Marat\u00f3n Solidario de Ayala\/Aiarako Maratoi Solidarioa<\/strong> se celebrar\u00e1 el <strong>domingo 5 de julio<\/strong>, con un trayecto de 42 km que recorrer\u00e1 distintas localidades alavesas, con salida y meta en Amurrio, localidad de SpiderAbel.<\/p>\n","protected":false},"author":1,"featured_media":2248,"comment_status":"closed","ping_status":"open","sticky":true,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[807],"tags":[],"class_list":["post-2278","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-deporte-solidario"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>SpiderAbel correr\u00e1 un marat\u00f3n en solitario por la investigaci\u00f3n de la ataxia telangiectasia - Aefat<\/title>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"SpiderAbel correr\u00e1 un marat\u00f3n en solitario por la investigaci\u00f3n de la ataxia telangiectasia - Aefat\" \/>\n<meta property=\"og:description\" content=\"El gran maratoniano SpiderAbel (Abel Fern\u00e1ndez Mendivil), con m\u00e1s de 70 maratones a sus espaldas disfrazado de Spiderman, correr\u00e1 esta vez en solitario para recaudar fondos por la investigaci\u00f3n de la ataxia telangiectasia, una enfermedad rara y neurodegenerativa que a\u00fan no tiene cura ni tratamiento, y que afecta a dos chicos en Euskadi y a unos 30 en Espa\u00f1a. Este especial Marat\u00f3n Solidario de Ayala\/Aiarako Maratoi Solidarioa se celebrar\u00e1 el domingo 5 de julio, con un trayecto de 42 km que recorrer\u00e1 distintas localidades alavesas, con salida y meta en Amurrio, localidad de SpiderAbel.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2020\/06\/24\/spiderabel-correra-un-maraton-en-solitario-por-la-investigacion-de-la-ataxia-telangiectasia-2\/\" \/>\n<meta property=\"og:site_name\" content=\"Aefat\" \/>\n<meta property=\"article:published_time\" content=\"2020-06-24T07:09:12+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2026-03-02T12:01:40+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/06\/Cartel_maraton_SpiderAbel_para_Aefat_B.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"9000\" \/>\n\t<meta property=\"og:image:height\" content=\"9000\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"admin\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Escrito por\" \/>\n\t<meta name=\"twitter:data1\" content=\"admin\" \/>\n\t<meta name=\"twitter:label2\" content=\"Tiempo de lectura\" \/>\n\t<meta name=\"twitter:data2\" content=\"5 minutos\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2020\/06\/24\/spiderabel-correra-un-maraton-en-solitario-por-la-investigacion-de-la-ataxia-telangiectasia-2\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2020\/06\/24\/spiderabel-correra-un-maraton-en-solitario-por-la-investigacion-de-la-ataxia-telangiectasia-2\/\"},\"author\":{\"name\":\"admin\",\"@id\":\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/#\/schema\/person\/d75277649f873b670821832f92709a5f\"},\"headline\":\"SpiderAbel correr\u00e1 un marat\u00f3n en solitario por la investigaci\u00f3n de la ataxia telangiectasia\",\"datePublished\":\"2020-06-24T07:09:12+00:00\",\"dateModified\":\"2026-03-02T12:01:40+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2020\/06\/24\/spiderabel-correra-un-maraton-en-solitario-por-la-investigacion-de-la-ataxia-telangiectasia-2\/\"},\"wordCount\":974,\"publisher\":{\"@id\":\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/#organization\"},\"image\":{\"@id\":\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2020\/06\/24\/spiderabel-correra-un-maraton-en-solitario-por-la-investigacion-de-la-ataxia-telangiectasia-2\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/06\/Cartel_maraton_SpiderAbel_para_Aefat_B.jpg\",\"articleSection\":[\"Deporte solidario\"],\"inLanguage\":\"es\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2020\/06\/24\/spiderabel-correra-un-maraton-en-solitario-por-la-investigacion-de-la-ataxia-telangiectasia-2\/\",\"url\":\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2020\/06\/24\/spiderabel-correra-un-maraton-en-solitario-por-la-investigacion-de-la-ataxia-telangiectasia-2\/\",\"name\":\"SpiderAbel correr\u00e1 un marat\u00f3n en solitario por la investigaci\u00f3n de la ataxia telangiectasia - 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