{"id":2283,"date":"2020-07-09T12:04:12","date_gmt":"2020-07-09T12:04:12","guid":{"rendered":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2020\/07\/09\/spiderabel-cumplio-su-maraton-en-solitario-por-la-ataxia-telangiectasia-2\/"},"modified":"2026-03-02T12:01:40","modified_gmt":"2026-03-02T12:01:40","slug":"spiderabel-cumplio-su-maraton-en-solitario-por-la-ataxia-telangiectasia-2","status":"publish","type":"post","link":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2020\/07\/09\/spiderabel-cumplio-su-maraton-en-solitario-por-la-ataxia-telangiectasia-2\/","title":{"rendered":"SpiderAbel cumpli\u00f3 su marat\u00f3n en solitario por la ataxia telangiectasia"},"content":{"rendered":"

\"Maraton<\/p>\n

A pesar del calor y los 500 m de desnivel del recorrido, el gran maratoniano alav\u00e9s SpiderAbel<\/strong> (Abel Fern\u00e1ndez Mendivil), consigui\u00f3 el 5 de julio completar su reto del Marat\u00f3n Solidario de Ayala\/Aiarako Maratoi Solidarioa<\/strong>. M\u00e1s de 42 km en solitario para recaudar fondos por la investigaci\u00f3n de la ataxia telangiectasia, una enfermedad rara y neurodegenerativa que a\u00fan no tiene cura ni tratamiento, y que afecta a dos chicos en Euskadi y a unos 30 en Espa\u00f1a.<\/p>\n

Con casi 80 maratones en su trayectoria<\/strong>, en los \u00faltimos a\u00f1os disfrazado de Spiderman, m\u00e1scara incluida, este corredor solidario fue animado a su paso por las localidades del Valle de Ayala que atraves\u00f3 en su recorrido, con salida y meta en Amurrio, su pueblo. Tambi\u00e9n le animaron dos de los j\u00f3venes afectados, Jon, de Vitoria-Gasteiz y \u00c1lex, de Oliva (Valencia), que acudieron para agradecerle, en nombre de todas las familias, su esfuerzo.<\/p>\n

SpiderAbel, gran corredor popular solidario con muchas causas, se ha volcado en esta ocasi\u00f3n con Aefat<\/a>,<\/strong> la asociaci\u00f3n que agrupa a las familias con ni\u00f1os y j\u00f3venes con ataxia telangiectasia en Espa\u00f1a, y con la que colabora desde hace a\u00f1os tanto empujando las sillas de los chicos en las maratones con el Equipo Zurich Aefat, como vendiendo productos solidarios o con otras actividades. <\/strong>La asociaci\u00f3n<\/strong> est\u00e1 financiando un proyecto de investigaci\u00f3n<\/strong> en la Cl\u00ednica Universidad de Navarra<\/a> que podr\u00eda dar con una terapia para los afectados.<\/p>\n

Tal como explica el corredor, \u201cante la cancelaci\u00f3n de eventos solidarios por el covid19, asociaciones como Aefat se encuentran con dificultades para financiar sus proyectos de investigaci\u00f3n. Por eso, si surgen m\u00e1s retos como este, podemos echar una mano. La gente puede seguir donando a trav\u00e9s de Facebook o Instagram o directamente a trav\u00e9s de la cuenta ES85 3035 0228 9622 8009 9996. Est\u00e1 toda la informaci\u00f3n en www.aefat.es<\/strong><\/a><\/strong>\u201d.<\/strong><\/p>\n

Para ayudar a seguir buscando una cura, SpiderAbel organiz\u00f3 este reto junto con su Club de Atletismo Oinkariak<\/a><\/strong> de Amurrio. <\/strong>El recorrido se pudo seguir en directo por las redes sociales de Aefat gracias a la colaboraci\u00f3n de la empresa Izalde Audiovisuales<\/a><\/strong>. Tambi\u00e9n contaron<\/strong> con la colaboraci\u00f3n del Ayuntamiento de Amurrio<\/strong> y su servicio de Protecci\u00f3n Civil<\/strong> (con la ayuda de sus compa\u00f1eros de Alonsotegi), el Ayuntamiento de Ayala<\/strong>.<\/p>\n

\"Maraton<\/p>\n

\"Maraton<\/p>\n

\"Maraton<\/p>\n

\"Maraton<\/p>\n","protected":false},"excerpt":{"rendered":"

\"Maraton<\/p>\n

A pesar del calor y los 500 m de desnivel del recorrido, el gran maratoniano alav\u00e9s SpiderAbel<\/strong> (Abel Fern\u00e1ndez Mendivil), consigui\u00f3 el 5 de julio completar su reto del Marat\u00f3n Solidario de Ayala\/Aiarako Maratoi Solidarioa<\/strong>. M\u00e1s de 42 km en solitario para recaudar fondos por la investigaci\u00f3n de la ataxia telangiectasia, una enfermedad rara y neurodegenerativa que a\u00fan no tiene cura ni tratamiento, y que afecta a dos chicos en Euskadi y a unos 30 en Espa\u00f1a.<\/p>\n","protected":false},"author":1,"featured_media":2275,"comment_status":"closed","ping_status":"open","sticky":true,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[807],"tags":[],"class_list":["post-2283","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-deporte-solidario"],"acf":[],"yoast_head":"\nSpiderAbel cumpli\u00f3 su marat\u00f3n en solitario por la ataxia telangiectasia - Aefat<\/title>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"SpiderAbel cumpli\u00f3 su marat\u00f3n en solitario por la ataxia telangiectasia - Aefat\" \/>\n<meta property=\"og:description\" content=\"A pesar del calor y los 500 m de desnivel del recorrido, el gran maratoniano alav\u00e9s SpiderAbel (Abel Fern\u00e1ndez Mendivil), consigui\u00f3 el 5 de julio completar su reto del Marat\u00f3n Solidario de Ayala\/Aiarako Maratoi Solidarioa. 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