{"id":2295,"date":"2020-08-31T10:50:27","date_gmt":"2020-08-31T10:50:27","guid":{"rendered":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2020\/08\/31\/vuelta-a-euskadi-en-bicicleta\/"},"modified":"2026-03-02T12:01:40","modified_gmt":"2026-03-02T12:01:40","slug":"vuelta-a-euskadi-en-bicicleta","status":"publish","type":"post","link":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2020\/08\/31\/vuelta-a-euskadi-en-bicicleta\/","title":{"rendered":"Vuelta a Euskadi en bicicleta en 20 horas por la investigaci\u00f3n de la ataxia telangiectasia"},"content":{"rendered":"

\"CartelI\u00f1aki Llano, ciclista aficionado de Amurrio (\u00c1lava), dar\u00e1 la vuelta a Euskadi pedaleando este s\u00e1bado 5 de septiembre<\/strong>, recorriendo 480 km<\/strong> seguidos con m\u00e1s de 10.000 m de desnivel en menos de 24 horas<\/strong>. Un duro reto que se plante\u00f3 hace poco m\u00e1s de un mes para ayudar a la investigaci\u00f3n de la ataxia telangiectasia, una enfermedad rara y neurodegenerativa que cuenta con dos chicos afectados en \u00c1lava, y unos 30 en todo el Estado. El ciclista solidario, que es pariente de uno de los ni\u00f1os afectados, lleva ya m\u00e1s de 1.600 euros recaudados<\/strong>, vendiendo kil\u00f3metros a 5 euros, a trav\u00e9s del reto publicado<\/a> en la plataforma Migranodearena: https:\/\/www.migranodearena.org\/reto\/vuelta-a-euskadi-en-bicicleta<\/a><\/p>\n

Su propia historia de superaci\u00f3n personal<\/strong> le llev\u00f3 a plantearse el reto. \u201cEn los \u00faltimos a\u00f1os he vivido una crisis personal en la que he adelgazado m\u00e1s de 57 kg. La bicicleta me ayud\u00f3 a salir de ese bache y a estar feliz de nuevo. Desde enero llevo m\u00e1s de 14.000 km acumulados, entreno casi todos los d\u00edas y he llegado a hacer el Everesting Challenge (acumular, en una sola sesi\u00f3n de bicicleta, el desnivel positivo del monte Everest: 8.848 metros). Fue el pasado mes de julio en La Barrerilla\u201d.<\/p>\n

Gracias a este tipo de iniciativas solidarias particulares, Aefat, la asociaci\u00f3n que agrupa a las familias afectadas en Espa\u00f1a, sigue financiando un proyecto de investigaci\u00f3n en la Cl\u00ednica Universidad de Navarra<\/strong> que podr\u00eda dar con un tratamiento para esta enfermedad sin cura. Ante la pandemia y la cancelaci\u00f3n de eventos solidarios, la asociaci\u00f3n ha visto reducidas sus posibilidades de recaudaci\u00f3n. La ataxia telangiectasia causa una grave discapacidad progresiva, inmunodeficiencia y m\u00e1s probabilidad de sufrir tumores.<\/p>\n

\"Inaki<\/p>\n

Como explica I\u00f1aki, \u201csiempre me ha gustado ayudar, y m\u00e1s a la gente que tengo cerca. Tengo un amigo y pariente con un hijo peque\u00f1o que diagnosticaron hace unos meses con ataxia telangiectasia. Te puede tocar a ti, me podr\u00eda haber tocado a m\u00ed. Pedalear esos 480 km seguidos ser\u00e1 duro, pero m\u00e1s dif\u00edcil es la vida de estos chicos y sus familias\u201d.<\/p>\n

Adem\u00e1s, I\u00f1aki Llano ha conseguido varios maillots de ciclistas conocidos y clubes de la zona que se sortear\u00e1n entre los donantes<\/strong> que participen a trav\u00e9s de las cuentas de Instagram<\/a> y Facebook<\/a> de Aefat esta semana. Tambi\u00e9n varias empresas de la zona como el aserradero de maderas Etorki, Cuadrabus y Elkarlan Asesores<\/strong> han realizado donaciones para colaborar con el reto solidario. El ciclista contar\u00e1 con coche de apoyo y de voluntarios colaboradores<\/strong> en su recorrido, que pasar\u00e1 por las tres capitales vascas, y tambi\u00e9n se unir\u00e1n en alg\u00fan tramo los padres de los dos menores afectados con ataxia telangiectasia en Euskadi.<\/p>\n

ACTUALIZACI\u00d3N 5 DE SEPTIEMBRE 2020 : \u00a1RETO SUPERADO!<\/span><\/strong><\/p>\n

I\u00f1aki Llano super\u00f3 su reto y adem\u00e1s recaud\u00f3 m\u00e1s de 3.200 euros para la investigaci\u00f3n de la ataxia telangiectasia.<\/p>\n

\u00a1Muchas gracias, I\u00f1aki y todos los que hab\u00e9is colaborado en este reto! Con vosotros, estamos m\u00e1s cerca de una cura.<\/p>\n

\"I\u00f1aki<\/p>\n

 <\/p>\n

 <\/p>\n

 <\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

\"CartelI\u00f1aki Llano, ciclista aficionado de Amurrio (\u00c1lava), dar\u00e1 la vuelta a Euskadi pedaleando este s\u00e1bado 5 de septiembre<\/strong>, recorriendo 480 km<\/strong> seguidos con m\u00e1s de 10.000 m de desnivel en menos de 24 horas<\/strong>. Un duro reto que se plante\u00f3 hace poco m\u00e1s de un mes para ayudar a la investigaci\u00f3n de la ataxia telangiectasia, una enfermedad rara y neurodegenerativa que cuenta con dos chicos afectados en \u00c1lava, y unos 30 en todo el Estado. El ciclista solidario, que es pariente de uno de los ni\u00f1os afectados, lleva ya m\u00e1s de 1.600 euros recaudados<\/strong>, vendiendo kil\u00f3metros a 5 euros, a trav\u00e9s del reto publicado<\/a> en la plataforma Migranodearena: https:\/\/www.migranodearena.org\/reto\/vuelta-a-euskadi-en-bicicleta<\/a><\/p>\n","protected":false},"author":1,"featured_media":2292,"comment_status":"closed","ping_status":"open","sticky":true,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[811],"tags":[368,193,194,369,307,366,181,137,74,109,367],"class_list":["post-2295","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-investigacion","tag-bicicleta","tag-carrera-solidaria-de-malaga","tag-ceip-los-morales","tag-ciclismo","tag-deporte-solidario","tag-inaki-llano","tag-jorge","tag-la-opinion-de-malaga","tag-puerto-de-la-torre","tag-salva-reina","tag-vuelta-a-euskadi"],"acf":[],"yoast_head":"\nVuelta a Euskadi en bicicleta en 20 horas por la investigaci\u00f3n de la ataxia telangiectasia - Aefat<\/title>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Vuelta a Euskadi en bicicleta en 20 horas por la investigaci\u00f3n de la ataxia telangiectasia - Aefat\" \/>\n<meta property=\"og:description\" content=\"I\u00f1aki Llano, ciclista aficionado de Amurrio (\u00c1lava), dar\u00e1 la vuelta a Euskadi pedaleando este s\u00e1bado 5 de septiembre, recorriendo 480 km seguidos con m\u00e1s de 10.000 m de desnivel en menos de 24 horas. 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