{"id":2315,"date":"2020-10-02T14:02:56","date_gmt":"2020-10-02T14:02:56","guid":{"rendered":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2020\/10\/02\/la-carrera-solidaria-de-malaga-cambia-los-7-km-por-el-reto-7xaefat\/"},"modified":"2026-03-02T12:01:40","modified_gmt":"2026-03-02T12:01:40","slug":"la-carrera-solidaria-de-malaga-cambia-los-7-km-por-el-reto-7xaefat","status":"publish","type":"post","link":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2020\/10\/02\/la-carrera-solidaria-de-malaga-cambia-los-7-km-por-el-reto-7xaefat\/","title":{"rendered":"La carrera solidaria de M\u00e1laga cambia los 7 km por el reto #7xAefat"},"content":{"rendered":"

\"Cartel<\/p>\n

La sexta edici\u00f3n de la Carrera Aefat M\u00e1laga<\/strong>, a beneficio de la ataxia telangiectasia, tendr\u00eda que haberse celebrado el pasado 27 de septiembre en Puerto de la Torre (M\u00e1laga)<\/strong>. Sus organizadores, ante la pandemia de la Covid-19, decidieron cancelarla y pensar en un formato alternativo<\/strong>, para no perder su finalidad ben\u00e9fica.<\/p>\n

As\u00ed, el evento se convierte este a\u00f1o en un reto solidario<\/strong> que se podr\u00e1 realizar hasta el 18 de octubre<\/strong>, abierto a todas las edades<\/strong>, tal como era esta carrera participativa, que reun\u00eda a casi mil personas en Puerto de la Torre (M\u00e1laga). All\u00ed reside Jorge, un joven de 16 a\u00f1os con ataxia telangiectasia<\/strong>, una enfermedad rara y neurodegenerativa, que causa una discapacidad progresiva y que afecta a unos 30 ni\u00f1os y j\u00f3venes en Espa\u00f1a.<\/p>\n

Los organizadores <\/strong>de la carrera solidaria (la familia de Jorge, su antiguo colegio el CEIP Los Morales y Aefat<\/a>, la asociaci\u00f3n que agrupa a todas las familias afectadas en Espa\u00f1a), han decidido sustituir esos 7 km de recorrido de a\u00f1os anteriores por el reto #7xAefat<\/strong>. <\/strong>Como explica Isabel Olea,<\/strong> madre de Jorge y vicepresidente de Aefat, \u201cse trata de hacer 7 cosas o acciones por Aefat, ya que este a\u00f1o no podemos reunirnos para hacer juntos la carrera y despu\u00e9s pasar una jornada de convivencia, con animaci\u00f3n, como hac\u00edamos otros a\u00f1os. Pero al menos este formato nos facilita que gente de cualquier lugar pueda participar en el reto\u201d.<\/p>\n

Para ello, los organizadores animan a gente de todas las edades a inscribirse ya a este evento solidario en dorsalchip.es<\/a> <\/strong>(donaci\u00f3n 5 euros), sacar el dorsal, realizar un reto #7xAefat y publicar una foto o v\u00eddeo en sus redes sociales hasta el domingo 18 de octubre, para mostrar su apoyo a la investigaci\u00f3n de la ataxia telangiectasia. Tambi\u00e9n pueden nominar o etiquetar a m\u00e1s personas para continuar con el reto.<\/p>\n

Como detalla Isabel Olea, \u201clos inscritos pueden hacer lo que quieran<\/strong>, desde cocinar 7 tortitas o pintar 7 corazones hasta hacer 7 flexiones o 7 km corriendo o patinando. Cualquier cosa relacionada con el n\u00famero 7<\/strong>. Pero lo principal es que participen y que est\u00e9 abierto a toda la familia, como hac\u00edamos antes\u201d.<\/p>\n

Aunque sea una \u201cedici\u00f3n especial\u201d, esta VI Carrera Aefat M\u00e1laga est\u00e1 de nuevo apadrinada por el gran actor malague\u00f1o Salva Reina<\/strong>, que apoya este evento desde hace varios a\u00f1os e incluso ha participado corriendo en la prueba solidaria. El dinero se destinar\u00e1 \u00edntegramente, como cada edici\u00f3n, al proyecto de investigaci\u00f3n<\/strong> que Aefat<\/a>, la asociaci\u00f3n que agrupa a las familias afectadas por ataxia telangiectasia en Espa\u00f1a, con siete afectados en Andaluc\u00eda, est\u00e1 financiando en la Cl\u00ednica Universidad de Navarra<\/a>,<\/strong> que alcanza un importe total de 150.000 euros.<\/p>\n

Del antiguo colegio de Jorge, el <\/strong>CEIP Los Morales<\/strong> de Puerto de la Torre (M\u00e1laga), surgi\u00f3 esta iniciativa hace ya seis a\u00f1os, y se ha convertido en un \u00e9xito de participaci\u00f3n cada a\u00f1o gracias a la colaboraci\u00f3n de la familia de Jorge, amigos, voluntarios, colaboradores y patrocinadores, y el apoyo incondicional del \u00c1rea de Deporte del Ayuntamiento de M\u00e1laga y la Junta Municipal del Distrito 10 de Puerto de la Torre.<\/p>\n

Adem\u00e1s, entre los inscritos a la carrera se sortear\u00e1n varios premios <\/strong>de empresas colaboradoras: una cesi\u00f3n de un Mercedes de Caetano Benet durante un fin de semana, un vale de de 150 \u20ac de Segurim\u00f3vil de la empresa Protector, una gargantilla de Joyer\u00eda Eliseo\u2019s, un vale para una excursi\u00f3n de Viajes Marimartur, y una cesta de productos naturales de Los Jarales, entre otros.<\/p>\n

Aefat<\/strong> es una asociaci\u00f3n sin \u00e1nimo de lucro creada en 2009 y declarada de utilidad p\u00fablica desde 2014, que est\u00e1 formada por familiares y personas relacionadas con enfermos de ataxia telangiectasia de diferentes puntos de Espa\u00f1a. Tambi\u00e9n mantiene contacto cercano con las familias de afectados en Iberoam\u00e9rica, y se relaciona con asociaciones similares europeas y americanas. Aefat pertenece a FEDER (Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras) y FEDAES (Federaci\u00f3n de Ataxias de Espa\u00f1a).<\/p>\n

La ataxia telangiectasia <\/strong>(AT o A-T) es uno de los 300 tipos de ataxia que existen. Se manifiesta habitualmente antes de los dos a\u00f1os de edad. Afecta a las funciones de diferentes \u00f3rganos y provoca incapacidad de coordinar movimientos, p\u00e9rdida progresiva de movilidad (hacia los 9 a\u00f1os se necesita silla de ruedas), dificultad en el habla, estancamiento en el crecimiento, inmunodeficiencia, envejecimiento prematuro, dificultades para comer, problemas en la piel y en la visi\u00f3n, neumon\u00edas y otras complicaciones. Los pacientes son m\u00e1s proclives a los tumores malignos. Los enfermos son plenamente conscientes de su enfermedad, ya que no afecta a sus facultades mentales, pero la AT les impide realizar de forma independiente las actividades b\u00e1sicas de la vida diaria como vestirse, realizar su higiene personal, alimentarse, etc. Aun as\u00ed, no hay que olvidar que tienen capacidad para pensar, sentir, amar y, por supuesto, para ser felices.<\/p>\n

CARTEL DE LA CARRERA AEFAT M\u00c1LAGA 2020 REALIZADO POR NUESTRO DISE\u00d1ADOR SOLIDARIO CONSTANTINO NAVARRO<\/strong><\/span><\/p>\n

ACTUALIZACI\u00d3N 21 OCTUBRE 2020: SORTEO DE REGALOS<\/strong><\/span><\/p>\n

\n
\u00a1El sorteo de los 10 regalos! <\/span> Ya tenemos los ganadores. Enhorabuena a todos y gracias por apoyar la investigaci\u00f3n de la ataxia telangiectasia: <\/span><\/div>\n<\/div>\n
\n
<\/span><\/div>\n<\/div>\n
\n
– Entrada para espect\u00e1culo en <\/span>La Cochera Cabaret<\/span><\/span><\/span>>> DORSAL 5: FRANCISCO PAREJA<\/span><\/div>\n<\/div>\n
\n
– Cesta de productos naturales de <\/span>MIEL De Los Jarales<\/span><\/span><\/span> >>DORSAL 28: WENCESLAO ALONSO<\/span><\/div>\n<\/div>\n
\n
– Cesi\u00f3n de un Mercedes de <\/span>Caetano Benet<\/span><\/span><\/span> durante un fin de semana >> DORSAL 34: SYLVIA NAVARRO<\/span><\/div>\n<\/div>\n
\n
– Vale de de 150 \u20ac de <\/span>Segurimovil<\/span><\/span><\/span> de la empresa Protector >> DORSAL 46: IRENE M\u00aa PARRADO<\/span><\/div>\n<\/div>\n
\n
– Entrada para espect\u00e1culo en La Cochera Cabaret>>DORSAL 70: ANDREA S\u00c1NCHEZ<\/span><\/div>\n<\/div>\n
\n
– Entrada para espect\u00e1culo en La Cochera Cabaret >>DORSAL 134: CARLOS BUSH<\/span><\/div>\n<\/div>\n
\n
– Bono para una excursi\u00f3n de <\/span>Viajes Marimartur<\/span><\/span><\/span> >>DORSAL 136: JOS\u00c9 G\u00c1LVEZ<\/span><\/div>\n<\/div>\n
\n
– Bono para una excursi\u00f3n de Viajes Marimartu >>DORSAL 237: RUB\u00c9N CARRIQUE<\/span><\/div>\n<\/div>\n
\n
– Bono para una excursi\u00f3n de Viajes Marimartu >> DORSAL 251: CANDELA FERN\u00c1NDEZ<\/span><\/div>\n<\/div>\n
\n
– Gargantilla de <\/span>Joyer\u00eda Eliseo’s<\/span><\/span><\/span> >> DORSAL 269: TANIA L\u00d3PEZ<\/span><\/div>\n<\/div>\n
\n
<\/span><\/div>\n<\/div>\n
\n
Los ganadores recibir\u00e9is un email para quedar para recoger el regalo.<\/span><\/div>\n<\/div>\n
\n
<\/span><\/div>\n<\/div>\n
\n
\n
\n
GRACIAS MIL a los colaboradores, a todos los que hab\u00e9is participado, os hab\u00e9is inscrito, hab\u00e9is hecho el reto #7<\/span>xAefat<\/span><\/span><\/span> y nos hab\u00e9is apoyado en esta edici\u00f3n tan diferente de la carrera. \u00a1\u00a1Tambi\u00e9n a nuestro padrino <\/span>Salva Reina<\/span><\/span><\/span>!!<\/span><\/div>\n

Im\u00e1genes de la Carrera Aefat M\u00e1laga de 2019:<\/strong><\/p>\n<\/div>\n<\/div>\n<\/div>\n

\"Jorge<\/p>\n

\"inicio<\/p>\n

\"con<\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

\"Cartel<\/p>\n

La sexta edici\u00f3n de la Carrera Aefat M\u00e1laga<\/strong>, a beneficio de la ataxia telangiectasia, tendr\u00eda que haberse celebrado el pasado 27 de septiembre en Puerto de la Torre (M\u00e1laga)<\/strong>. Sus organizadores, ante la pandemia de la Covid-19, decidieron cancelarla y pensar en un formato alternativo<\/strong>, para no perder su finalidad ben\u00e9fica.<\/p>\n","protected":false},"author":1,"featured_media":2311,"comment_status":"closed","ping_status":"open","sticky":true,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[807],"tags":[60,384,193,181,71,74,109],"class_list":["post-2315","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-deporte-solidario","tag-aefat","tag-carrera","tag-carrera-solidaria-de-malaga","tag-jorge","tag-malaga","tag-puerto-de-la-torre","tag-salva-reina"],"acf":[],"yoast_head":"\nLa carrera solidaria de M\u00e1laga cambia los 7 km por el reto #7xAefat - Aefat<\/title>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"La carrera solidaria de M\u00e1laga cambia los 7 km por el reto #7xAefat - Aefat\" \/>\n<meta property=\"og:description\" content=\"La sexta edici\u00f3n de la Carrera Aefat M\u00e1laga, a beneficio de la ataxia telangiectasia, tendr\u00eda que haberse celebrado el pasado 27 de septiembre en Puerto de la Torre (M\u00e1laga). 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