{"id":2340,"date":"2020-11-09T13:01:31","date_gmt":"2020-11-09T13:01:31","guid":{"rendered":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2020\/11\/09\/aefat-causa-del-mes-migranodearena\/"},"modified":"2026-03-02T12:01:29","modified_gmt":"2026-03-02T12:01:29","slug":"aefat-causa-del-mes-migranodearena","status":"publish","type":"post","link":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2020\/11\/09\/aefat-causa-del-mes-migranodearena\/","title":{"rendered":"Aefat, elegida \u00abcausa del mes\u00bb en Migranodearena.org"},"content":{"rendered":"<p style=\"text-align: justify;\"><img decoding=\"async\" class=\" alignleft size-full wp-image-2336\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/11\/Aefat_causa_del_mes_septiembre_2020_migranodearena.jpg\" alt=\"Aefat causa del mes septiembre 2020 migranodearena\" width=\"158\" height=\"175\" style=\"margin: 10px; float: left;\" srcset=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/11\/Aefat_causa_del_mes_septiembre_2020_migranodearena.jpg 1120w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/11\/Aefat_causa_del_mes_septiembre_2020_migranodearena-271x300.jpg 271w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/11\/Aefat_causa_del_mes_septiembre_2020_migranodearena-925x1024.jpg 925w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/11\/Aefat_causa_del_mes_septiembre_2020_migranodearena-768x850.jpg 768w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/11\/Aefat_causa_del_mes_septiembre_2020_migranodearena-11x12.jpg 11w\" sizes=\"(max-width: 158px) 100vw, 158px\" \/>Cuando empez\u00f3 la pandemia y vimos que muchos de nuestros eventos solidarios se cancelaban o aplazaban, y con ellos las posibilidades de recaudaci\u00f3n para nuestro proyecto de investigaci\u00f3n de la ataxia telangiectasia, vimos un poco \u00abla luz\u00bb gracias a iniciativas solidarias individuales en distintos puntos de Espa\u00f1a. Personas, a veces sin relaci\u00f3n directa con Aefat, que se lanzaron a realizar retos solidarios por nosotros por vinculaci\u00f3n con otros deportistas o con alguna de nuestras familias. Y gracias a esos deportistas solidarios, y a las numerosas donaciones que se realizaron gracias a esos retos en <a href=\"https:\/\/www.migranodearena.org\/causa-del-mes\"><strong>migranodearena.org<\/strong><\/a>, conseguimos ser la \u00ab<strong>causa del mes<\/strong>\u00bb en esta plataforma de recaudaudaci\u00f3n de fondos en septiembre.<\/p>\n<p style=\"text-align: justify;\"><span style=\"color: #000000;\">\u201cLa causa del mes\u201d&nbsp;es aquella que ha conseguido movilizar a m\u00e1s donantes en los retos abiertos a su favor en&nbsp;migranodearena.org&nbsp;durante el mes en curso.<\/span><\/p>\n<p style=\"text-align: justify;\"><strong><span style=\"color: #ff00ff;\">\u00a1As\u00ed que muchas gracias a todos por apoyarnos, hacernos sentir que no estamos solos y que nuestra causa importa aunque seamos pocos!<\/span><\/strong><\/p>\n<p style=\"text-align: justify;\">Os contamos c\u00f3mo empez\u00f3 todo&#8230;<\/p>\n<p style=\"text-align: justify;\"><strong>&#8211; 5 DE JULIO:<\/strong>&nbsp;<strong>SpiderAbel <\/strong>es&nbsp;nuestro s\u00faper corredor de maratones solidario, que lleva ya a\u00f1os con nosotros, no solamente empujando las sillas de nuestros chicos y chicas con el Equipo Zurich Aefat, sino tambi\u00e9n implic\u00e1ndose con nosotros en <a href=\"https:\/\/www.youtube.com\/watch?v=w31biwSQ27M&amp;t=11s\">muchas otras actividades<\/a> y teniendo iniciativas como los <a href=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2019\/07\/01\/calcetines-solidarios-san-fermin-a-beneficio-ataxia-telangiectasia\/\">calcetines solidarios<\/a>. Abel ide\u00f3 un marat\u00f3n individual, el <a href=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2020\/07\/09\/spiderabel-cumplio-su-maraton-en-solitario-por-la-ataxia-telangiectasia\/\">Marat\u00f3n Solidario de Ayala\/Aiarako Maratoi Solidarioa<\/a> en \u00c1lava. Corri\u00f3 42 km en solitario, consigui\u00f3 la implicaci\u00f3n de numerosos establecimientos de la zona y la retransmisi\u00f3n de evento en directo por Facebook e Instagram. Nuestros chicos y chicas le animaron con este emotivo&nbsp;<strong><a href=\"https:\/\/www.youtube.com\/watch?v=9RcjPfvTc6M&amp;t=4s\">v\u00eddeo<\/a><\/strong>.<\/p>\n<p style=\"text-align: justify;\">Su reto sali\u00f3 publicado en medios como <a href=\"https:\/\/www.efe.com\/efe\/espana\/practicodeporte\/spiderabel-correra-un-maraton-solidario-por-la-ataxia-telangiectasia\/50000944-4279820\">Efe Noticias<\/a>, <a href=\"https:\/\/www.deia.eus\/bizkaia\/laudio-nerbioi\/2020\/06\/28\/spiderabel-corre-42-kilometros-solitario\/1048399.html\">Deia<\/a>, <a href=\"https:\/\/www.elcorreo.com\/alava\/araba\/investigacion-enfermedades-raras-20200627094903-nt.html?ref=https:%2F%2Fwww.google.com%2F\">El Correo<\/a>, <a href=\"https:\/\/www.noticiasdealava.eus\/deportes\/2020\/07\/08\/spiderabel-completa-maraton-ataxia-telangiectasia\/1037399.html\">Noticias de \u00c1lava<\/a>, <a href=\"https:\/\/running.es\/spiderabel-correra-por-la-investigacion-de-la-ataxia-telangiectasia\/\">Running <\/a>&#8230;<\/p>\n<p style=\"text-align: justify;\"><img fetchpriority=\"high\" decoding=\"async\" class=\" size-full wp-image-2275\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/07\/Maraton_de_Ayala_-_SpiderAbel_para_Aefat_1.JPG\" alt=\"Marat\u00f3n de Ayala SpiderAbel para Aefat 1\" width=\"1728\" height=\"1152\" srcset=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/07\/Maraton_de_Ayala_-_SpiderAbel_para_Aefat_1.JPG 1728w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/07\/Maraton_de_Ayala_-_SpiderAbel_para_Aefat_1-300x200.jpg 300w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/07\/Maraton_de_Ayala_-_SpiderAbel_para_Aefat_1-1024x683.jpg 1024w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/07\/Maraton_de_Ayala_-_SpiderAbel_para_Aefat_1-768x512.jpg 768w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/07\/Maraton_de_Ayala_-_SpiderAbel_para_Aefat_1-1536x1024.jpg 1536w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/07\/Maraton_de_Ayala_-_SpiderAbel_para_Aefat_1-18x12.jpg 18w\" sizes=\"(max-width: 1728px) 100vw, 1728px\" \/><\/p>\n<p style=\"text-align: justify;\">&#8211; <strong>1-8 DE AGOSTO<\/strong>: La ultra trailera <strong>Jennifer Lewinski L\u00f3pez<\/strong>, nacida en B\u00e9lgica y residente en M\u00e1laga, realiz\u00f3 su <a href=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2020\/07\/09\/8-cimas-8-dias-malaga-ataxia-telangiectasia\/\">primer reto solidario<\/a>&nbsp;con nosotros, subiendo las ocho cimas m\u00e1s altas de M\u00e1laga en ocho d\u00edas seguidos. El reto \u00ab<strong>M\u00e1laga con desnivel<\/strong>\u00bb fue un gran esfuerzo de m\u00e1s de&nbsp;116 km&nbsp;con&nbsp;m\u00e1s de 10.400 m de desnivel&nbsp;acumulado en total. Nos conoc\u00eda porque particip\u00f3 como corredora solidaria con nuestro Equipo Zurich Aefat en la Zurich Marat\u00f3n de M\u00e1laga. Dedicamos la recaudaci\u00f3n que consigui\u00f3 Jennifer a nuestro proyecto educativo para dotar de material inform\u00e1tico a los afectados con ataxia telangiectasia que necesitaban ratones o teclados adaptados para continuar con su educaci\u00f3n en casa ante la pandemia.<\/p>\n<p>La historia de Jennifer sali\u00f3 publicada en medios como <a href=\"https:\/\/www.efe.com\/efe\/espana\/practicodeporte\/ocho-cimas-en-dias-de-jennifer-lewinski-contra-la-ataxia-telangiectasia\/50000944-4295503\">EFE<\/a>, <a href=\"https:\/\/www.trailrun.es\/cultura-trail\/ocho-cimas-en-ocho-dias-por-ataxia-telangiectasia_184025_102.html\">Trail run<\/a>, <a href=\"https:\/\/www.laopiniondemalaga.es\/malaga\/2020\/07\/10\/ocho-cimas-ocho-dias-reto\/1177556.html\">La opini\u00f3n de M\u00e1laga<\/a>, <a href=\"https:\/\/www.lavanguardia.com\/deportes\/20200810\/482760602763\/sube-ocho-cimas-de-malaga-en-ocho-dias-para-luchar-contra-la-ataxia.html\">La Vanguardia<\/a>, <a href=\"https:\/\/www.runnersworld.com\/es\/noticias-running\/a33292392\/reto-solidario-trail-runner-jennifer-lewinski\/\">Runnersworld<\/a>&#8230;<\/p>\n<p><img decoding=\"async\" class=\" size-full wp-image-2290\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/08\/Reto_8_cimas_Aefat_Jennifer_Malaga_3.JPG\" alt=\"Reto 8 cimas Aefat Jennifer M\u00e1laga 3\" width=\"960\" height=\"720\" srcset=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/08\/Reto_8_cimas_Aefat_Jennifer_Malaga_3.JPG 960w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/08\/Reto_8_cimas_Aefat_Jennifer_Malaga_3-300x225.jpg 300w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/08\/Reto_8_cimas_Aefat_Jennifer_Malaga_3-768x576.jpg 768w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/08\/Reto_8_cimas_Aefat_Jennifer_Malaga_3-16x12.jpg 16w\" sizes=\"(max-width: 960px) 100vw, 960px\" \/><\/p>\n<p style=\"text-align: justify;\"><strong>&#8211; 5 DE SEPTIEMBRE:<\/strong>&nbsp;<strong>I\u00f1aki Llano<\/strong>, ciclista aficionado de Amurrio (\u00c1lava), di\u00f3 la <strong><a href=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2020\/08\/31\/vuelta-a-euskadi-en-bicicleta\/\">vuelta a Euskadi<\/a><\/strong> pedaleando, recorriendo&nbsp;480 km&nbsp;seguidos con m\u00e1s de 10.000 m de desnivel en&nbsp;menos de 24 horas. Un duro reto que se plante\u00f3 para ayudar a la investigaci\u00f3n de la ataxia telangiectasia, en esta ocasi\u00f3n por ser pariente de uno de los ni\u00f1os afectados, y tras su&nbsp;propia&nbsp;historia de superaci\u00f3n personal.&nbsp;I\u00f1aki Llano consigui\u00f3 adem\u00e1s varios&nbsp;maillots de ciclistas conocidos y clubes de la zona para sortear entre los donantes&nbsp;que participaran y recaud\u00f3 m\u00e1s de 3.200 euros para la investigaci\u00f3n de la ataxia telangiectasia.<\/p>\n<p>I\u00f1aki y su reto aparecieron publicados en medios como <a href=\"https:\/\/www.elcorreo.com\/deportes\/ciclismo\/ciclista-aficionado-recorrera-20200831153337-nt.html\">El Correo<\/a>, <a href=\"https:\/\/www.deia.eus\/bizkaia\/laudio-nerbioi\/2020\/08\/07\/reto-personal-solidaridad\/1056997.html\">Deia<\/a>, <a href=\"https:\/\/www.noticiasdealava.eus\/araba\/2020\/08\/31\/ciclista-aficionado-recorrera-euskadi\/1046903.html\">Noticias de \u00c1lava<\/a>, <a href=\"https:\/\/tribunalibre.info\/tag\/inaki-llano-dara-la-vuelta-a-euskadi-en-bicicleta-en-20-horas-por-la-investigacion-de-la-ataxia-telangiectasia\/\">Tribuna Libre<\/a>&#8230;<\/p>\n<p style=\"text-align: justify;\"><img loading=\"lazy\" decoding=\"async\" class=\" size-full wp-image-2337\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/11\/Inaki_Llano_Vuelta_a_Euskadi_Aefat_5_sept_2020_3.JPG\" alt=\"I\u00f1aki Llano Vuelta a Euskadi Aefat 5 sept 2020 3\" width=\"1024\" height=\"576\" srcset=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/11\/Inaki_Llano_Vuelta_a_Euskadi_Aefat_5_sept_2020_3.JPG 1024w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/11\/Inaki_Llano_Vuelta_a_Euskadi_Aefat_5_sept_2020_3-300x169.jpg 300w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/11\/Inaki_Llano_Vuelta_a_Euskadi_Aefat_5_sept_2020_3-768x432.jpg 768w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/11\/Inaki_Llano_Vuelta_a_Euskadi_Aefat_5_sept_2020_3-18x10.jpg 18w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><\/p>\n<p style=\"text-align: justify;\"><strong>&#8211; 19 DE SEPTIEMBRE<\/strong>:&nbsp;<strong>V\u00edctor Telletxea,&nbsp;<\/strong>ciclista aficionado de&nbsp;Sopuerta&nbsp;(Bizkaia), consigui\u00f3 su reto Everesting despu\u00e9s de&nbsp;19 horas pedaleando haciendo 41 subidas al Puerto de Bezi. En total, 312 km, 8.859 m de desnivel y m\u00e1s de 6.000 euros recaudados.&nbsp;V\u00edctor tiene vinculaci\u00f3n con un padre de nuestra asociaci\u00f3n cuyo hijo peque\u00f1o fue diagnosticado hace pocos meses con esta enfermedad rara y neurodegenerativa que causa una severa discapacidad progresiva.&nbsp;<em>Bitt\u00edn<\/em>, como le conocen en la zona, comenz\u00f3 el reto a las 4 de la ma\u00f1ana. Pod\u00e9is leer la <a href=\"https:\/\/www.migranodearena.org\/blog\/el-gran-reto-es-superarse-uno-mismo-cada-dia-para-ser-mejor-persona\">entrevista <\/a>que le hicieron en el blog de Migranodearena con motivo del \u00e9xito de su reto.<\/p>\n<p style=\"text-align: justify;\">Su haza\u00f1a lleg\u00f3 a la EITB (televisi\u00f3n vasca), que le entrevist\u00f3 el mismo d\u00eda, y a numerosos medios de comunicaci\u00f3n como <a href=\"https:\/\/www.europapress.es\/euskadi\/noticia-victor-telletxea-subira-40-veces-puerto-bezi-sabado-investigacion-ataxia-telangiectasia-20200916184845.html\">Europa Press<\/a>, <a href=\"https:\/\/www.naiz.eus\/es\/actualidad\/noticia\/20200916\/ictor-telletxea-subira-40-veces-el-puerto-de-bezi-por-la-investigacion-de-la-ataxia-telangiectasia\">Naiz<\/a>, <a href=\"https:\/\/www.carreraspopulares.com\/noticia\/el-ciclista-victor-telletxea-subira-40-veces-el-puerto-de-bezi-por-la-ataxia-telangiectasia\">Carreras populares<\/a>, <a href=\"https:\/\/www.deia.eus\/bizkaia\/ezkerraldea-enkarterri\/2020\/09\/24\/everest-bezi-buena-causa\/1066757.html\">Deia<\/a>, <a href=\"https:\/\/www.20minutos.es\/noticia\/4383109\/0\/victor-telletxea-subira-40-veces-el-puerto-de-bezi-este-sabado-por-la-investigacion-de-la-ataxia-telangiectasia\/\">20 minutos<\/a>&#8230;<\/p>\n<p style=\"text-align: justify;\"><img loading=\"lazy\" decoding=\"async\" class=\" size-full wp-image-2296\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/09\/Reto_Everesting_19_sept_Aefat_3.JPG\" alt=\"Reto Everesting 19 sept Aefat 3\" width=\"1600\" height=\"1241\" srcset=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/09\/Reto_Everesting_19_sept_Aefat_3.JPG 1600w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/09\/Reto_Everesting_19_sept_Aefat_3-300x233.jpg 300w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/09\/Reto_Everesting_19_sept_Aefat_3-1024x794.jpg 1024w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/09\/Reto_Everesting_19_sept_Aefat_3-768x596.jpg 768w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/09\/Reto_Everesting_19_sept_Aefat_3-1536x1191.jpg 1536w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/09\/Reto_Everesting_19_sept_Aefat_3-15x12.jpg 15w\" sizes=\"(max-width: 1600px) 100vw, 1600px\" \/><\/p>\n<p style=\"text-align: justify;\"><strong>&#8211; 19 DE SEPTIEMBRE:<\/strong> Reto del recorrido del <strong><a href=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2020\/09\/24\/reto-titan-sierra-de-cadiz-por-aefat\/\">Triatl\u00f3n Tit\u00e1n Sierra de C\u00e1diz<\/a><\/strong>. Un grupo de nuestros corredores solidarios gaditanos, liderado por&nbsp;Manuel \u00c1ngel Cervi\u00f1o, colabora con Aefat desde 2017 y en concreto con Germ\u00e1n, uno de nuestros ni\u00f1os de la provincia. \u00abSolemos acompa\u00f1ar a Germ\u00e1n en maratones, carreras, salidas y hasta a tomar unas tapas. Empujamos su silla especial cuando participa en las competiciones, nos re\u00edmos con \u00e9l, cantamos, gritamos, disfrutamos de su compa\u00f1\u00eda, la de su familia\u2026 Tambi\u00e9n con sus compa\u00f1eros cuando vamos con el Equipo Zurich Aefat. Ya participamos con Germ\u00e1n en el Triatl\u00f3n Tit\u00e1n Sierra de C\u00e1diz en 2017 y fue una gran experiencia\u201d. El equipo complet\u00f3 la ruta de nataci\u00f3n, carrera y bicicleta.<\/p>\n<p style=\"text-align: justify;\">El reto de Manuel \u00c1ngel Cervi\u00f1o, Rosendo Rodr\u00edguez, Rub\u00e9n Rodr\u00edguez, Luisa Marcos, Evaristo Garc\u00eda, Francisco Rivero y Jos\u00e9 Mar\u00eda Liboreiro, t\u00edo de Germ\u00e1n, apareci\u00f3 en medios como <a href=\"https:\/\/www.efe.com\/efe\/espana\/practicodeporte\/el-reto-titan-sierra-de-cadiz-que-lucha-contra-la-ataxia-telangiectasia\/50000944-4350989\">EFE Noticias<\/a>.<br \/><img loading=\"lazy\" decoding=\"async\" class=\" size-full wp-image-2338\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/11\/reto_Titan_Cadiz_para_Aefat_nadadores.jpg\" alt=\"reto Tit\u00e1n C\u00e1diz para Aefat nadadores\" width=\"2048\" height=\"1536\" srcset=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/11\/reto_Titan_Cadiz_para_Aefat_nadadores.jpg 2048w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/11\/reto_Titan_Cadiz_para_Aefat_nadadores-300x225.jpg 300w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/11\/reto_Titan_Cadiz_para_Aefat_nadadores-1024x768.jpg 1024w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/11\/reto_Titan_Cadiz_para_Aefat_nadadores-768x576.jpg 768w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/11\/reto_Titan_Cadiz_para_Aefat_nadadores-1536x1152.jpg 1536w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/11\/reto_Titan_Cadiz_para_Aefat_nadadores-16x12.jpg 16w\" sizes=\"(max-width: 2048px) 100vw, 2048px\" \/><\/p>\n<p style=\"text-align: justify;\"><strong>&#8211; 9-12 DE OCTUBRE:<\/strong> <a href=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2020\/09\/30\/camino-santiago-tandem-por-aefat\/\">Camino de Santiago en t\u00e1ndem <\/a>por Aefat. Tres grandes ciclistas vascos que recorrieron en cuatro d\u00edas los 661 km que separan&nbsp;Puentelarr\u00e1 (\u00c1lava)&nbsp;de&nbsp;Finisterre (A Coru\u00f1a). Javi Irabien&nbsp;(67 a\u00f1os),&nbsp;su hijo&nbsp;Xabier Irabien&nbsp;(40) y&nbsp;Be\u00f1at Mart\u00edn&nbsp;(30), inspirados por SpiderAbel, se plantearon y lograron este gran reto, a pesar de la lluvia y el mal tiempo. Recaudaron m\u00e1s de 2.000 euros y adem\u00e1s, quedaron con nuestras dos familias gallegas, con nuestras chicas Sonia y Patri, para conocerse en Santiago. Resumimos su aventura solidaria en este <strong><a href=\"https:\/\/www.youtube.com\/watch?v=sXy13phd_WY\">v\u00eddeo<\/a><\/strong>.&nbsp;<\/p>\n<p>Su recorrido lleg\u00f3 a las p\u00e1ginas de medios como <a href=\"https:\/\/www.lavanguardia.com\/deportes\/20200930\/483766181494\/camino-de-santiago-en-tandem-para-recaudar-fondos-para-la-ataxia.html\">La Vanguardia<\/a>, <a href=\"http:\/\/www.biciciclismo.com\/es\/el-camino-de-santiago-en-tandem-por-la-investigacion-de-la-ataxia-telangiectasia-30-09-2020\">Biciciclismo<\/a>, <a href=\"https:\/\/www.cope.es\/actualidad\/sociedad\/noticias\/camino-santiago-tandem-para-recaudar-fondos-para-ataxia-20200930_919680\">Cadena Cope<\/a>, <a href=\"https:\/\/www.elcorreogallego.es\/santiago\/camino-de-santiago-en-tandem-desde-alava-para-recaudar-fondos-destinados-a-investigar-la-ataxia-DG4796511\">El correo gallego<\/a>, <a href=\"https:\/\/triatlonland.com\/reto-solidario-recorrer-en-cuatro-dias-661-km-camino-de-santiago-en-tandem-ciclista\">Triatlonland<\/a>, <a href=\"https:\/\/www.deia.eus\/bizkaia\/laudio-nerbioi\/2020\/09\/21\/orduna-finisterre-tandem-ayudar-aefat\/1066024.html\">Deia<\/a>, <a href=\"https:\/\/www.sports-addict.net\/es\/article\/ciclismo\/el-camino-de-santiago-en-tandem-por-la-investigacion-de-la-ataxia-telangiectasia\/5f744df849ece70008f5a663\">Sports Addict<\/a>&#8230;<\/p>\n<p style=\"text-align: justify;\"><img loading=\"lazy\" decoding=\"async\" class=\" size-full wp-image-2339\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/11\/Reto_Camino_de_Santiago_en_Tandem_-_grupo.JPG\" alt=\"Reto Camino de Santiago en T\u00e1ndem grupo\" width=\"1600\" height=\"1200\" srcset=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/11\/Reto_Camino_de_Santiago_en_Tandem_-_grupo.JPG 1600w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/11\/Reto_Camino_de_Santiago_en_Tandem_-_grupo-300x225.jpg 300w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/11\/Reto_Camino_de_Santiago_en_Tandem_-_grupo-1024x768.jpg 1024w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/11\/Reto_Camino_de_Santiago_en_Tandem_-_grupo-768x576.jpg 768w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/11\/Reto_Camino_de_Santiago_en_Tandem_-_grupo-1536x1152.jpg 1536w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/11\/Reto_Camino_de_Santiago_en_Tandem_-_grupo-16x12.jpg 16w\" sizes=\"(max-width: 1600px) 100vw, 1600px\" \/><\/p>\n<p><strong>&#8211; NOVIEMBRE:<\/strong> Y a\u00fan tenemos pendiente el reto de Gonzalo P\u00e9rez, el corredor de ultras alav\u00e9s que quiere hacer el Reto \u00abIntegral de la llanada alavesa\u00bb, tres ultras en tres d\u00edas, un total de 211 km, pero est\u00e1 pendiente de que la normativa se lo permita. Est\u00e1 recaudando fondos en este <strong><a href=\"https:\/\/www.migranodearena.org\/reto\/integral-de-la-llanada-alavesa-a-beneficio-de-aefat\">enlace<\/a><\/strong>.&nbsp;<\/p>\n<p>Ante las circunstancias que vivimos, deseamos que aparezcan en nuestro camino m\u00e1s grandes deportistas solidarios como vosotros, de gran coraz\u00f3n. <strong><span style=\"color: #ff00ff;\">\u00a1\u00a1MUCHAS GRACIAS A TODOS POR VUESTRO ESFUERZO, EMPAT\u00cdA Y ENTUSIASMO!!<\/span><\/strong><\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p style=\"text-align: justify;\"><img decoding=\"async\" class=\" alignleft size-full wp-image-2336\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/11\/Aefat_causa_del_mes_septiembre_2020_migranodearena.jpg\" alt=\"Aefat causa del mes septiembre 2020 migranodearena\" width=\"158\" height=\"175\" style=\"margin: 10px; float: left;\" srcset=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/11\/Aefat_causa_del_mes_septiembre_2020_migranodearena.jpg 1120w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/11\/Aefat_causa_del_mes_septiembre_2020_migranodearena-271x300.jpg 271w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/11\/Aefat_causa_del_mes_septiembre_2020_migranodearena-925x1024.jpg 925w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/11\/Aefat_causa_del_mes_septiembre_2020_migranodearena-768x850.jpg 768w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/11\/Aefat_causa_del_mes_septiembre_2020_migranodearena-11x12.jpg 11w\" sizes=\"(max-width: 158px) 100vw, 158px\" \/>Cuando empez\u00f3 la pandemia y vimos que muchos de nuestros eventos solidarios se cancelaban o aplazaban, y con ellos las posibilidades de recaudaci\u00f3n para nuestro proyecto de investigaci\u00f3n de la ataxia telangiectasia, vimos un poco \u00abla luz\u00bb gracias a iniciativas solidarias individuales en distintos puntos de Espa\u00f1a. Personas, a veces sin relaci\u00f3n directa con Aefat, que se lanzaron a realizar retos solidarios por nosotros por vinculaci\u00f3n con otros deportistas o con alguna de nuestras familias. Y gracias a esos deportistas solidarios, y a las numerosas donaciones que se realizaron gracias a esos retos en <a href=\"https:\/\/www.migranodearena.org\/causa-del-mes\"><strong>migranodearena.org<\/strong><\/a>, conseguimos ser la \u00ab<strong>causa del mes<\/strong>\u00bb en esta plataforma de recaudaudaci\u00f3n de fondos en septiembre.<\/p>\n","protected":false},"author":1,"featured_media":2336,"comment_status":"closed","ping_status":"open","sticky":true,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[808],"tags":[60,111,55,391,369,62,335,198,347,25,69,348],"class_list":["post-2340","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-divulgacion-y-medios","tag-aefat","tag-aitzina","tag-ataxia-telangiectasia","tag-causa-del-mes","tag-ciclismo","tag-enfermedades-raras","tag-migranodearena","tag-parradust","tag-recaudacion-de-fondos","tag-reto-solidario","tag-running","tag-solidaridad"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Aefat, elegida &quot;causa del mes&quot; en Migranodearena.org - Aefat<\/title>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Aefat, elegida &quot;causa del mes&quot; en Migranodearena.org - Aefat\" \/>\n<meta property=\"og:description\" content=\"Cuando empez\u00f3 la pandemia y vimos que muchos de nuestros eventos solidarios se cancelaban o aplazaban, y con ellos las posibilidades de recaudaci\u00f3n para nuestro proyecto de investigaci\u00f3n de la ataxia telangiectasia, vimos un poco &quot;la luz&quot; gracias a iniciativas solidarias individuales en distintos puntos de Espa\u00f1a. Personas, a veces sin relaci\u00f3n directa con Aefat, que se lanzaron a realizar retos solidarios por nosotros por vinculaci\u00f3n con otros deportistas o con alguna de nuestras familias. Y gracias a esos deportistas solidarios, y a las numerosas donaciones que se realizaron gracias a esos retos en migranodearena.org, conseguimos ser la &quot;causa del mes&quot; en esta plataforma de recaudaudaci\u00f3n de fondos en septiembre.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2020\/11\/09\/aefat-causa-del-mes-migranodearena\/\" \/>\n<meta property=\"og:site_name\" content=\"Aefat\" \/>\n<meta property=\"article:published_time\" content=\"2020-11-09T13:01:31+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2026-03-02T12:01:29+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/11\/Aefat_causa_del_mes_septiembre_2020_migranodearena.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1120\" \/>\n\t<meta property=\"og:image:height\" content=\"1240\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"admin\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Escrito por\" \/>\n\t<meta name=\"twitter:data1\" content=\"admin\" \/>\n\t<meta name=\"twitter:label2\" content=\"Tiempo de lectura\" \/>\n\t<meta name=\"twitter:data2\" content=\"6 minutos\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2020\/11\/09\/aefat-causa-del-mes-migranodearena\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2020\/11\/09\/aefat-causa-del-mes-migranodearena\/\"},\"author\":{\"name\":\"admin\",\"@id\":\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/#\/schema\/person\/d75277649f873b670821832f92709a5f\"},\"headline\":\"Aefat, elegida \u00abcausa del mes\u00bb en Migranodearena.org\",\"datePublished\":\"2020-11-09T13:01:31+00:00\",\"dateModified\":\"2026-03-02T12:01:29+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2020\/11\/09\/aefat-causa-del-mes-migranodearena\/\"},\"wordCount\":1134,\"publisher\":{\"@id\":\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/#organization\"},\"image\":{\"@id\":\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2020\/11\/09\/aefat-causa-del-mes-migranodearena\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2020\/11\/Aefat_causa_del_mes_septiembre_2020_migranodearena.jpg\",\"keywords\":[\"aefat\",\"Aitzina\",\"ataxia telangiectasia\",\"causa del mes\",\"ciclismo\",\"enfermedades raras\",\"migranodearena\",\"Parradust\",\"recaudaci\u00f3n de fondos\",\"RETO SOLIDARIO\",\"running\",\"solidaridad\"],\"articleSection\":[\"Divulgaci\u00f3n y medios\"],\"inLanguage\":\"es\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2020\/11\/09\/aefat-causa-del-mes-migranodearena\/\",\"url\":\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2020\/11\/09\/aefat-causa-del-mes-migranodearena\/\",\"name\":\"Aefat, elegida \\\"causa del mes\\\" en Migranodearena.org - 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