{"id":2357,"date":"2021-02-23T10:29:47","date_gmt":"2021-02-23T10:29:47","guid":{"rendered":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2021\/02\/23\/guapos-por-dentro-y-por-fuera-campana-ataxia-telangiectasia\/"},"modified":"2026-03-03T11:33:48","modified_gmt":"2026-03-03T11:33:48","slug":"guapos-por-dentro-y-por-fuera-campana-ataxia-telangiectasia","status":"publish","type":"post","link":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2021\/02\/23\/guapos-por-dentro-y-por-fuera-campana-ataxia-telangiectasia\/","title":{"rendered":"\u201cGuapos por dentro y por fuera\u201d, la campa\u00f1a para recaudar fondos para investigar la ataxia telangiectasia"},"content":{"rendered":"<p><img fetchpriority=\"high\" decoding=\"async\" class=\" alignleft size-full wp-image-2353\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/02\/Campana_Aefat_guapos_por_dentro_y_por_fuera_ataxia_telangiectasia.jpg\" alt=\"Campa\u00f1a Aefat guapos por dentro y por fuera ataxia telangiectasia\" width=\"487\" height=\"487\" style=\"margin: 10px; border: 1px solid #f359b4; float: left;\" srcset=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/02\/Campana_Aefat_guapos_por_dentro_y_por_fuera_ataxia_telangiectasia.jpg 1080w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/02\/Campana_Aefat_guapos_por_dentro_y_por_fuera_ataxia_telangiectasia-300x300.jpg 300w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/02\/Campana_Aefat_guapos_por_dentro_y_por_fuera_ataxia_telangiectasia-1024x1024.jpg 1024w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/02\/Campana_Aefat_guapos_por_dentro_y_por_fuera_ataxia_telangiectasia-150x150.jpg 150w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/02\/Campana_Aefat_guapos_por_dentro_y_por_fuera_ataxia_telangiectasia-768x768.jpg 768w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/02\/Campana_Aefat_guapos_por_dentro_y_por_fuera_ataxia_telangiectasia-12x12.jpg 12w\" sizes=\"(max-width: 487px) 100vw, 487px\" \/>Cuidarse por fuera, pero tambi\u00e9n ser \u201cguapos\u201d por dentro, siendo solidarios. Es el objetivo de la campa\u00f1a que lanzamos desde&nbsp;<strong><a href=\"https:\/\/www.aefat.es\/\">Aefat<\/a><\/strong>, la asociaci\u00f3n que agrupa a las familias con ni\u00f1os y j\u00f3venes afectados por ataxia telangiectasia, con motivo de la celebraci\u00f3n del <strong>D\u00eda Mundial de las Enfermedades Raras<\/strong>, el pr\u00f3ximo 28 de febrero.<\/p>\n<p>Aefat apela a la solidaridad de la sociedad con&nbsp;<strong>donaciones de <span style=\"background-color: #ffffff; color: #ff00ff;\">5 euros<\/span><\/strong>, con las que los participantes entrar\u00e1n en los sorteos. Como inicio de la campa\u00f1a, Aefat sortear\u00e1&nbsp;<strong>36 lotes muy completos de<\/strong>&nbsp;<strong>productos&nbsp;<a href=\"https:\/\/www.nivea.es\/\">Nivea<\/a><\/strong>&nbsp;(para hombre, mujer, o mixtos, con 10 productos cada uno como m\u00ednimo) que ha donado la empresa&nbsp;<strong><a href=\"https:\/\/www.beiersdorf.es\/\">Beiersdorf<\/a><\/strong>&nbsp;para colaborar con la causa de Aefat (ver abajo bases del sorteo y ganadores).<\/p>\n<p>Este primer sorteo se realizar\u00e1 el 5 de marzo entre todos los que hayan realizado&nbsp;<strong>una donaci\u00f3n entre el 23 de febrero y el 2 de marzo&nbsp;<\/strong>a trav\u00e9s de las redes sociales de Aefat (<a href=\"https:\/\/www.facebook.com\/AEFAT.es\">Facebook<\/a>,&nbsp;<a href=\"https:\/\/www.instagram.com\/aefat_at\/\">Instagram<\/a>) o a trav\u00e9s del Bizum 01274. Los ganadores recibir\u00e1n su lote gracias a la colaboraci\u00f3n solidaria de la empresa&nbsp;<strong><a href=\"https:\/\/www.mrw.es\/\">MRW<\/a><\/strong>, que ya apoya a Aefat desde hace varios a\u00f1os en sus env\u00edos.<\/p>\n<p><img decoding=\"async\" class=\" alignleft size-full wp-image-2354\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/02\/Pack_Mixto_Nivea_para_Sorteo_Aefat_Dia_Mundial_EERR.jpg\" alt=\"Pack Mixto Nivea para Sorteo Aefat D\u00eda Mundial EERR\" width=\"273\" height=\"217\" style=\"margin: 5px; float: left;\" srcset=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/02\/Pack_Mixto_Nivea_para_Sorteo_Aefat_Dia_Mundial_EERR.jpg 982w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/02\/Pack_Mixto_Nivea_para_Sorteo_Aefat_Dia_Mundial_EERR-300x238.jpg 300w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/02\/Pack_Mixto_Nivea_para_Sorteo_Aefat_Dia_Mundial_EERR-768x610.jpg 768w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/02\/Pack_Mixto_Nivea_para_Sorteo_Aefat_Dia_Mundial_EERR-15x12.jpg 15w\" sizes=\"(max-width: 273px) 100vw, 273px\" \/>Ante la situaci\u00f3n provocada por la pandemia, Aefat ha visto <strong>cancelados sus eventos solidarios<\/strong> y tambi\u00e9n frenadas las posibilidades de recaudaci\u00f3n para la investigaci\u00f3n de la ataxia telangiectasia, una enfermedad rara, gen\u00e9tica y neurodegenerativa que provoca una discapacidad progresiva, problemas respiratorios y c\u00e1ncer, entre otras complicaciones. La mayor\u00eda de los afectados son menores de 20 a\u00f1os.<\/p>\n<p>\u201cEs necesario recordar que <strong>adem\u00e1s del Covid, existen otras dolencias<\/strong> _se\u00f1ala <strong>Patxi Vill\u00e9n<\/strong>, presidente de la asociaci\u00f3n_ y que los afectados con enfermedades raras seguimos teniendo dificultades para que se investiguen nuestras enfermedades, y estamos en manos de las donaciones de particulares y empresas. Y las enfermedades como la ataxia telangiectasia, que son degenerativas, siguen siendo una cuenta atr\u00e1s\u201d.<\/p>\n<p><img decoding=\"async\" class=\" alignright size-full wp-image-2355\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/02\/Pack_Hombre_Nivea_para_Sorteo_Aefat_Dia_Mundial_EERR.jpg\" alt=\"Pack Hombre Nivea para Sorteo Aefat D\u00eda Mundial EERR\" width=\"241\" height=\"206\" style=\"margin: 5px; float: right;\" srcset=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/02\/Pack_Hombre_Nivea_para_Sorteo_Aefat_Dia_Mundial_EERR.jpg 893w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/02\/Pack_Hombre_Nivea_para_Sorteo_Aefat_Dia_Mundial_EERR-300x257.jpg 300w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/02\/Pack_Hombre_Nivea_para_Sorteo_Aefat_Dia_Mundial_EERR-768x659.jpg 768w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/02\/Pack_Hombre_Nivea_para_Sorteo_Aefat_Dia_Mundial_EERR-14x12.jpg 14w\" sizes=\"(max-width: 241px) 100vw, 241px\" \/>Por eso, Aefat lanza su campa\u00f1a <span style=\"color: #ff00ff;\"><strong>#GuaposPorDentroYPorFuera<\/strong><\/span>, con la que pretende sortear lotes de productos de belleza y cosm\u00e9tica de distintas marcas colaboradoras, coincidiendo con el<strong> d\u00eda 28 de cada mes<\/strong>, a partir de este mes de febrero que se conmemora el <strong>D\u00eda Mundial de las Enfermedades Raras<\/strong>.<\/p>\n<p>El dinero recaudado se destinar\u00e1 al <strong>proyecto de investigaci\u00f3n<\/strong> que <a href=\"https:\/\/www.aefat.es\/\">Aefat<\/a> est\u00e1 financiando en la <strong><a href=\"https:\/\/www.cun.es\/actualidad\/noticias\/clinica-universidad-navarra-inicia-proyecto-investigacion-tratamiento-ataxia-telangiectasia\">Cl\u00ednica Universidad de Navarra<\/a><\/strong><strong>, <\/strong>que alcanza un importe de 50.000 euros anuales. Adem\u00e1s, este a\u00f1o la<strong> campa\u00f1a nacional lanzada por <a href=\"https:\/\/enfermedades-raras.org\/index.php\/slider-home\/14856-la-doble-vulnerabilidad-de-las-personas-con-enfermedades-raras-pone-en-riesgo-al-colectivo-en-plena-crisis-sanitaria-2\">FEDER&nbsp;<\/a><\/strong>(Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras) con motivo del D\u00eda Mundial, tiene como protagonista de su cartel a <strong>Sara<\/strong>, joven de 14 a\u00f1os de Madrid afectada con la enfermedad. Sara comparte cartel con el escritor y presentador <strong>Christian G\u00e1lvez<\/strong>, con la actriz <strong>Adriana Ugarte<\/strong> y con un representante de otra asociaci\u00f3n.<\/p>\n<p><strong><img loading=\"lazy\" decoding=\"async\" class=\" alignleft size-full wp-image-2350\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/02\/cartel_Feder_Aefat_Sara_ataxia_telangiectasia.jpg\" alt=\"cartel Feder Aefat Sara ataxia telangiectasia\" width=\"347\" height=\"407\" style=\"margin: 5px; float: left;\" srcset=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/02\/cartel_Feder_Aefat_Sara_ataxia_telangiectasia.jpg 1936w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/02\/cartel_Feder_Aefat_Sara_ataxia_telangiectasia-255x300.jpg 255w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/02\/cartel_Feder_Aefat_Sara_ataxia_telangiectasia-870x1024.jpg 870w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/02\/cartel_Feder_Aefat_Sara_ataxia_telangiectasia-768x904.jpg 768w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/02\/cartel_Feder_Aefat_Sara_ataxia_telangiectasia-1305x1536.jpg 1305w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/02\/cartel_Feder_Aefat_Sara_ataxia_telangiectasia-1741x2048.jpg 1741w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/02\/cartel_Feder_Aefat_Sara_ataxia_telangiectasia-10x12.jpg 10w\" sizes=\"(max-width: 347px) 100vw, 347px\" \/><\/strong><\/p>\n<p><strong>SOBRE AEFAT<\/strong><\/p>\n<p><strong>Aefat<\/strong> es una asociaci\u00f3n sin \u00e1nimo de lucro creada en 2009 y declarada de utilidad p\u00fablica desde 2014, que est\u00e1 formada por familiares de afectados con ataxia telangiectasia de diferentes puntos de Espa\u00f1a.&nbsp;Aefat pertenece a FEDER (Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras) y<a href=\"https:\/\/fedaes.org\/quienes-somos\/\" target=\"_blank\" rel=\"noopener noreferrer\">&nbsp;FEDAES (Federa<\/a>ci\u00f3n de Ataxias de Espa\u00f1a).<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<h3 dir=\"rtl\"><strong style=\"color: #ff00ff;\">Mira el <a href=\"https:\/\/www.youtube.com\/watch?v=rtwGsOa0kV4&amp;t=6s\" style=\"color: #ff00ff;\"><span style=\"text-decoration: underline;\">v\u00eddeo<\/span> <\/a>de la campa\u00f1a internacional de sensibilizaci\u00f3n sobre la ataxia telangiectasia lanzada por Aefat a finales del 2020, con la colaboraci\u00f3n de diez asociaciones y familias de todo el mundo<\/strong><\/h3>\n<h3>&nbsp;<\/h3>\n<h3>Nuestra campa\u00f1a est\u00e1 registrada entre los eventos organizados en todo el mundo en la plataforma internacional&nbsp;<a href=\"https:\/\/www.rarediseaseday.org\/event\/spain\/1205\">Rare Disease Day<\/a><\/h3>\n<h4 style=\"text-align: left;\">&nbsp;<\/h4>\n<h1 style=\"text-align: left;\"><strong><span style=\"color: #ff00ff;\">GANADORES DEL SORTEO NIVEA<\/span><\/strong><\/h1>\n<p>Sorteo realizado el 8 de marzo por video conferencia grabada, con la colaboraci\u00f3n de 4 afectados de las asociaci\u00f3n (Patri, Jon, Lola y Cloe) y sus familias. La grabaci\u00f3n est\u00e1 publicada en <a href=\"https:\/\/fb.watch\/47lKq6qxA5\/\">este post de Facebook<\/a>.<\/p>\n<p>Por favor, rogamos a los ganadores que se pongan en contacto con nosotros (por redes sociales o a trav\u00e9s de&nbsp;<a href=\"mailto:secretaria@aefat.es\">secretaria@aefat.es<\/a>) para facilitarnos su direcci\u00f3n y tel\u00e9fono para enviarles el lote de productos Nivea&nbsp;<strong>ANTES DEL 16 DE MARZO<\/strong>. Muchas gracias a todos por colaborar y tambi\u00e9n a MRW por ayudarnos en los env\u00edos de los paquetes. Hemos recaudado <strong>1.405 euros<\/strong> para la investigaci\u00f3n.<\/p>\n<p><strong>GANADORES<\/strong><\/p>\n<table style=\"width: 318px;\">\n<tbody>\n<tr>\n<td style=\"width: 41px;\">1<\/td>\n<td style=\"width: 277px;\">Mar\u00eda Isabel Javega Ponce<\/td>\n<\/tr>\n<tr>\n<td>2<\/td>\n<td>Jordi Guijarro<\/td>\n<\/tr>\n<tr>\n<td>3<\/td>\n<td>Lorena Soto Navarro<\/td>\n<\/tr>\n<tr>\n<td>4<\/td>\n<td>Celia Carsi Palomares<\/td>\n<\/tr>\n<tr>\n<td>5<\/td>\n<td>Nayra Mar\u00eda Munoz Romero<\/td>\n<\/tr>\n<tr>\n<td>6<\/td>\n<td>Nayra Mar\u00eda Munoz Romero<\/td>\n<\/tr>\n<tr>\n<td>7<\/td>\n<td>Lorena Higueras&nbsp;<\/td>\n<\/tr>\n<tr>\n<td>8<\/td>\n<td>Monica Torras Humbert<\/td>\n<\/tr>\n<tr>\n<td>9<\/td>\n<td>David Bernal Sanchez<\/td>\n<\/tr>\n<tr>\n<td>10<\/td>\n<td>Juan Jos\u00e9 Gil Bueno<\/td>\n<\/tr>\n<tr>\n<td>11<\/td>\n<td>Francisco Manuel Vill\u00e9n&nbsp;<\/td>\n<\/tr>\n<tr>\n<td>12<\/td>\n<td>Beatriz Molina Garcia<\/td>\n<\/tr>\n<tr>\n<td>13<\/td>\n<td>Sara Algaba Maye<\/td>\n<\/tr>\n<tr>\n<td>14<\/td>\n<td>Mar\u00eda Vanessa Estevan Roch<\/td>\n<\/tr>\n<tr>\n<td>15<\/td>\n<td>Iratxe Arceniega Gorostiza<\/td>\n<\/tr>\n<tr>\n<td>16<\/td>\n<td>Mar\u00eda Rosa Atienza&nbsp;<\/td>\n<\/tr>\n<tr>\n<td>17<\/td>\n<td>Ana Cristina Lugstenmann&nbsp;<\/td>\n<\/tr>\n<tr>\n<td>18<\/td>\n<td>Mario Ignacio Solsona&nbsp;<\/td>\n<\/tr>\n<tr>\n<td>19<\/td>\n<td>Natalia Ventallo Garc\u00eda<\/td>\n<\/tr>\n<tr>\n<td>20<\/td>\n<td>Francisco Palleres Ferrer<\/td>\n<\/tr>\n<tr>\n<td>21<\/td>\n<td>Rafael Garcia Martin<\/td>\n<\/tr>\n<tr>\n<td>22<\/td>\n<td>Montserrat Miralles Prim<\/td>\n<\/tr>\n<tr>\n<td>23<\/td>\n<td>Montserrat Llanos Herrero<\/td>\n<\/tr>\n<tr>\n<td>24<\/td>\n<td>Jos\u00e9 Antonio Gutierrez L.<\/td>\n<\/tr>\n<tr>\n<td>25<\/td>\n<td>Rosa Mar\u00eda Tatche Llonch<\/td>\n<\/tr>\n<tr>\n<td>26<\/td>\n<td>Laureano Iglesias Franco<\/td>\n<\/tr>\n<tr>\n<td>27<\/td>\n<td>Rosa Mar\u00eda P\u00e9rez Gallego<\/td>\n<\/tr>\n<tr>\n<td>28<\/td>\n<td>Mar\u00eda Carmen Romero Ruiz<\/td>\n<\/tr>\n<tr>\n<td>29<\/td>\n<td>Gema Guillerna Monasterio<\/td>\n<\/tr>\n<tr>\n<td>30<\/td>\n<td>Adriana Qasem Moreno<\/td>\n<\/tr>\n<tr>\n<td>31<\/td>\n<td>Carlos Javier Garc\u00eda L\u00f3pez<\/td>\n<\/tr>\n<tr>\n<td>32<\/td>\n<td>Marie Gonz\u00e1lez<\/td>\n<\/tr>\n<tr>\n<td>33<\/td>\n<td>Ana Alvarellos Campos&nbsp;<\/td>\n<\/tr>\n<tr>\n<td>34<\/td>\n<td>Noelia Blanco P\u00e1jaro<\/td>\n<\/tr>\n<tr>\n<td>35<\/td>\n<td>Elias P\u00e9rez Ramo<\/td>\n<\/tr>\n<tr>\n<td>36<\/td>\n<td>Mari Jos\u00e9 Fern\u00e1ndez&nbsp;<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<p>&nbsp;<\/p>\n<h1 style=\"text-align: left;\"><strong><span style=\"color: #ff00ff;\">BASES DEL SORTEO NIVEA<\/span><\/strong><\/h1>\n<h1><img loading=\"lazy\" decoding=\"async\" class=\" alignright size-full wp-image-2356\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/02\/Pack_Mujer_Nivea_para_Sorteo_Aefat_Dia_Mundial_EERR.jpg\" alt=\"Pack Mujer Nivea para Sorteo Aefat D\u00eda Mundial EERR\" width=\"335\" height=\"312\" style=\"margin: 5px; float: right;\" srcset=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/02\/Pack_Mujer_Nivea_para_Sorteo_Aefat_Dia_Mundial_EERR.jpg 851w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/02\/Pack_Mujer_Nivea_para_Sorteo_Aefat_Dia_Mundial_EERR-300x279.jpg 300w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/02\/Pack_Mujer_Nivea_para_Sorteo_Aefat_Dia_Mundial_EERR-768x715.jpg 768w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/02\/Pack_Mujer_Nivea_para_Sorteo_Aefat_Dia_Mundial_EERR-13x12.jpg 13w\" sizes=\"(max-width: 335px) 100vw, 335px\" \/><\/h1>\n<p>Aefat organiza la campa\u00f1a \u00abGUAPOS POR DENTRO Y POR FUERA\u00bb.<\/p>\n<p>Aefat sortear\u00e1&nbsp;<strong>36 lotes muy completos de<\/strong>&nbsp;<strong>productos&nbsp;<a href=\"https:\/\/www.nivea.es\/\">Nivea<\/a><\/strong>&nbsp;(para hombre, mujer, o mixtos, con 10 productos cada uno como m\u00ednimo) que ha&nbsp;donado la empresa&nbsp;<strong><a href=\"https:\/\/www.beiersdorf.es\/\">Beiersdorf<\/a><\/strong>&nbsp;para colaborar con la causa de Aefat, la investigaci\u00f3n de la ataxia telangiectasia. Las fotograf\u00edas de los lotes se muestran en esta publicaci\u00f3n.<\/p>\n<p><strong>PARTICIPANTES&nbsp;<\/strong><\/p>\n<p>Podr\u00e1n participar en el sorteo los mayores de 18 a\u00f1os que residan en Espa\u00f1a (Baleares y Canarias incluidos) y que hayan realizado&nbsp;<strong>una donaci\u00f3n de m\u00ednimo 5 euros entre el 23 de febrero y el 2 de marzo&nbsp;<\/strong>a trav\u00e9s de las redes sociales de Aefat <a href=\"https:\/\/www.facebook.com\/AEFAT.es\">Facebook<\/a>&nbsp;o&nbsp;<a href=\"https:\/\/www.instagram.com\/aefat_at\/\">Instagram<\/a>&nbsp;(a trav\u00e9s del bot\u00f3n de Donar, llega email de confirmaci\u00f3n de pago) o con el m\u00f3vil a trav\u00e9s del Bizum 01274.<\/p>\n<p><strong>FUNCIONAMIENTO<\/strong><\/p>\n<p>A cada participante se le asignar\u00e1 un n\u00famero. Este primer sorteo se realizar\u00e1 el&nbsp;<strong>8 de marzo<\/strong>&nbsp;por la tarde, con la colaboraci\u00f3n de familias y afectados.&nbsp;<\/p>\n<p>La organizaci\u00f3n se pondr\u00e1 en contacto con los participantes a trav\u00e9s de su email o tel\u00e9fono para solicitar los datos de env\u00edo. Si alg\u00fan participante no responde por email o tel\u00e9fono antes del 12 de marzo, se repetir\u00e1 el sorteo de ese lote.&nbsp;<\/p>\n<p>Los ganadores aceptan que su nombre sea publicado en la web y redes sociales de Aefat para mayor transparencia del sorteo.<\/p>\n<p>Los ganadores recibir\u00e1n su lote gracias a la colaboraci\u00f3n solidaria de la empresa&nbsp;<strong><a href=\"https:\/\/www.mrw.es\/\">MRW<\/a>.<\/strong><\/p>\n<p><strong>DATOS PERSONALES<\/strong><\/p>\n<p>De conformidad con lo dispuesto en la Ley Org\u00e1nica 15\/1999, de 13 de diciembre, de Protecci\u00f3n de Datos de Car\u00e1cter Personal, y en su normativa de desarrollo, le informamos que los datos personales que AEFAT reciba voluntariamente de los participantes ser\u00e1n incluidos en un fichero automatizado responsabilidad de <strong>AEFAT<\/strong> (Calle Urbina, 15, 7D 01002 Vitoria-Gasteiz, CIF:&nbsp;G01472687, <span style=\"color: #000000;\"><a href=\"https:\/\/sede.mir.gob.es\/nfrontal\/webasocia2\/asoDenominacionNacDetalle.html?cod_seccion=1&amp;num_nacional=595510&amp;cod_denominacion=9544444&amp;tipoBusqueda=F\" target=\"_blank\" rel=\"noopener noreferrer\" style=\"color: #000000;\" title=\"Registro Nacional de asociaciones del Ministerio del Inerior\">Registro Nacional de asociaciones del Ministerio del Inerior<\/a>:<\/span> 595510). Los datos de los participantes ser\u00e1n utilizados por AEFAT con la finalidad de gestionar su participaci\u00f3n en el presente sorteo (contactar a los participantes ganadores y as\u00ed poder llevar a cabo la entrega de los lotes), cumplimentar tr\u00e1mites fiscales, as\u00ed como remitirle informaci\u00f3n sobre nuestra asociaci\u00f3n que estimemos puedan ser de su inter\u00e9s. Ver <a href=\"index.php\/somos\">Pol\u00edtica de privacidad<\/a>.<\/p>\n<p>La participaci\u00f3n en este sorteo supone la <strong>aceptaci\u00f3n plena e incondicional de estas bases<\/strong>.<\/p>\n<p><strong>LISTADO DE PRODUCTOS DE LOS LOTES:<\/strong><\/p>\n<dl>\n<dt><strong><span style=\"text-decoration: underline;\">12 Unidades de Pack Men&nbsp;<\/span><\/strong><\/dt>\n<dt>Dry Impact Roll-on 50ml.<\/dt>\n<dt>Soluci\u00f3n Hidroalcoh\u00f3lica para manos 250 ml.<\/dt>\n<dt>PACK MEN CREME: NIVEA MEN Creme 150ml; BLACK &amp; WHITE INVISIBLE ORIGINAL SPRAY 200ml; Sport Gel de Ducha 2en1 250ml.<\/dt>\n<dt>PACK_GYM: Sport Gel de Ducha 2en1 250 ml.; Strong Power Champ\u00fa 250 ml.; BLACK &amp; WHITE INVISIBLE ORIGINAL ROLL ON 50 ml.<\/dt>\n<dt>NIVEA MEN Creme 75ml.<\/dt>\n<dt>Sensitive B\u00e1lsamo After Shave 100ml.<\/dt>\n<dt><strong><span style=\"text-decoration: underline;\">12 unidades de Pack Woman&nbsp; &nbsp;<\/span><\/strong><\/dt>\n<dt>Crema de manos reparadora 3 en 1<\/dt>\n<dt>Crema de Manos Hidratante Aceite de Oliva 100ml.<\/dt>\n<dt>Dry Comfort Roll-on 50 ml.<\/dt>\n<dt>Soluci\u00f3n Hidroalcoh\u00f3lica para manos 250 ml.<\/dt>\n<dt>Pack facial Q10: NIVEA Q10 POWER Antiarrugas Cuidado de D\u00eda FP30 50 ml; Q10 Power Serum Perlas Antiarrugas 40ml<\/dt>\n<dt>Body Mousse Smooth 200 ml.<\/dt>\n<dt>Mascarilla hidratante10 ml.<\/dt>\n<dt>Liposan b\u00e1lsamo labial 7gr.<\/dt>\n<dt>Toallitas Desmaquilladoras Refrescantes Mini 7 ud.<\/dt>\n<dt>Urban Skin Mascarilla Detox Peel-Off 10 ml.<\/dt>\n<dt>NIVEA Soft Mini 50 ml.<\/dt>\n<dt>Cuidado de D\u00eda Hidratante 50ml.<\/dt>\n<dt>Crema corporal Aceite de Oliva 300 ml.<\/dt>\n<dt>Nivea Gel de Ducha Aloe Vera 250ml.<\/dt>\n<dt>Gel de Ducha con Arcilla Blue Agave &amp; Lavender 500 ml.<\/dt>\n<dt><strong><span style=\"text-decoration: underline;\">12 unidades de Pack Mixto&nbsp;<\/span><\/strong><\/dt>\n<dt>Soluci\u00f3n Hidroalcoh\u00f3lica para manos 250 ml.<\/dt>\n<dt>Crema de Manos Hidratante Aceite de Oliva 100 ml.<\/dt>\n<dt>Dry Impact Roll-on 50 ml.<\/dt>\n<dt>Dry Comfort Roll-on 50 ml.<\/dt>\n<dt>Pack Men Creme: Nivea Men Creme 150ml; BLACK &amp; WHITE INVISIBLE ORIGINAL SPRAY 200ml; Sport Gel de Ducha 2en1 250ml.<\/dt>\n<dt>Pack facial Q10: NIVEA Q10 POWER Antiarrugas Cuidado de D\u00eda FP30 50 ml; Q10 Power Serum Perlas Antiarrugas 40m.<\/dt>\n<dt>Body Mousse Smooth 200 ml.<\/dt>\n<dt>NIVEA MEN Creme 75ml.<\/dt>\n<dt>SKIN ENERGY GEL HIDRATANTE 50 ml.<\/dt>\n<dt>NIVEA MEN Creme Mini 30 ml.<\/dt>\n<dt>Liposan b\u00e1lsamo labial 7g<\/dt>\n<dt>Sport Gel de Ducha 2en1 250 ml.<\/dt>\n<dt>Gel de ducha Nivea Men Active Clean 250 ml.<\/dt>\n<dt>Nivea Gel de Ducha Aloe Vera 250ml.<\/dt>\n<dt>Toallitas Desmaquilladoras Refrescantes Mini 7 ud.<\/dt>\n<dt>Cuidado de D\u00eda Hidratante 50ml.<\/dt>\n<\/dl>\n<h1 style=\"text-align: left;\">&nbsp;<\/h1>\n","protected":false},"excerpt":{"rendered":"<p><img fetchpriority=\"high\" decoding=\"async\" class=\" alignleft size-full wp-image-2353\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/02\/Campana_Aefat_guapos_por_dentro_y_por_fuera_ataxia_telangiectasia.jpg\" alt=\"Campa\u00f1a Aefat guapos por dentro y por fuera ataxia telangiectasia\" width=\"487\" height=\"487\" style=\"margin: 10px; border: 1px solid #f359b4; float: left;\" srcset=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/02\/Campana_Aefat_guapos_por_dentro_y_por_fuera_ataxia_telangiectasia.jpg 1080w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/02\/Campana_Aefat_guapos_por_dentro_y_por_fuera_ataxia_telangiectasia-300x300.jpg 300w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/02\/Campana_Aefat_guapos_por_dentro_y_por_fuera_ataxia_telangiectasia-1024x1024.jpg 1024w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/02\/Campana_Aefat_guapos_por_dentro_y_por_fuera_ataxia_telangiectasia-150x150.jpg 150w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/02\/Campana_Aefat_guapos_por_dentro_y_por_fuera_ataxia_telangiectasia-768x768.jpg 768w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/02\/Campana_Aefat_guapos_por_dentro_y_por_fuera_ataxia_telangiectasia-12x12.jpg 12w\" sizes=\"(max-width: 487px) 100vw, 487px\" \/>Cuidarse por fuera, pero tambi\u00e9n ser \u201cguapos\u201d por dentro, siendo solidarios. Es el objetivo de la campa\u00f1a que lanzamos desde&nbsp;<strong><a href=\"https:\/\/www.aefat.es\/\">Aefat<\/a><\/strong>, la asociaci\u00f3n que agrupa a las familias con ni\u00f1os y j\u00f3venes afectados por ataxia telangiectasia, con motivo de la celebraci\u00f3n del <strong>D\u00eda Mundial de las Enfermedades Raras<\/strong>, el pr\u00f3ximo 28 de febrero.<\/p>\n","protected":false},"author":1,"featured_media":2353,"comment_status":"closed","ping_status":"open","sticky":true,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[51],"tags":[165,60,55,419,420,415,279,418,62,416,202,116,417,203],"class_list":["post-2357","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-actividades-solidarias","tag-20-minutos","tag-aefat","tag-ataxia-telangiectasia","tag-belleza","tag-cosmetica","tag-dia-mundial-de-la-enfermedades-raras","tag-discapacidad","tag-donaciones","tag-enfermedades-raras","tag-guapos-por-dentro-y-por-fuera","tag-ignacio-molina","tag-investigacion","tag-nivea","tag-universidad-de-granada"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>\u201cGuapos por dentro y por fuera\u201d, la campa\u00f1a para recaudar fondos para investigar la ataxia telangiectasia - Aefat<\/title>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"\u201cGuapos por dentro y por fuera\u201d, la campa\u00f1a para recaudar fondos para investigar la ataxia telangiectasia - Aefat\" \/>\n<meta property=\"og:description\" content=\"Cuidarse por fuera, pero tambi\u00e9n ser \u201cguapos\u201d por dentro, siendo solidarios. Es el objetivo de la campa\u00f1a que lanzamos desde&nbsp;Aefat, la asociaci\u00f3n que agrupa a las familias con ni\u00f1os y j\u00f3venes afectados por ataxia telangiectasia, con motivo de la celebraci\u00f3n del D\u00eda Mundial de las Enfermedades Raras, el pr\u00f3ximo 28 de febrero.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2021\/02\/23\/guapos-por-dentro-y-por-fuera-campana-ataxia-telangiectasia\/\" \/>\n<meta property=\"og:site_name\" content=\"Aefat\" \/>\n<meta property=\"article:published_time\" content=\"2021-02-23T10:29:47+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2026-03-03T11:33:48+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/02\/Campana_Aefat_guapos_por_dentro_y_por_fuera_ataxia_telangiectasia.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1080\" \/>\n\t<meta property=\"og:image:height\" content=\"1080\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"admin\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Escrito por\" \/>\n\t<meta name=\"twitter:data1\" content=\"admin\" \/>\n\t<meta name=\"twitter:label2\" content=\"Tiempo de lectura\" \/>\n\t<meta name=\"twitter:data2\" content=\"8 minutos\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2021\/02\/23\/guapos-por-dentro-y-por-fuera-campana-ataxia-telangiectasia\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2021\/02\/23\/guapos-por-dentro-y-por-fuera-campana-ataxia-telangiectasia\/\"},\"author\":{\"name\":\"admin\",\"@id\":\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/#\/schema\/person\/d75277649f873b670821832f92709a5f\"},\"headline\":\"\u201cGuapos por dentro y por fuera\u201d, la campa\u00f1a para recaudar fondos para investigar la ataxia telangiectasia\",\"datePublished\":\"2021-02-23T10:29:47+00:00\",\"dateModified\":\"2026-03-03T11:33:48+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2021\/02\/23\/guapos-por-dentro-y-por-fuera-campana-ataxia-telangiectasia\/\"},\"wordCount\":1599,\"publisher\":{\"@id\":\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/#organization\"},\"image\":{\"@id\":\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2021\/02\/23\/guapos-por-dentro-y-por-fuera-campana-ataxia-telangiectasia\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/02\/Campana_Aefat_guapos_por_dentro_y_por_fuera_ataxia_telangiectasia.jpg\",\"keywords\":[\"20 Minutos\",\"aefat\",\"ataxia telangiectasia\",\"belleza\",\"cosm\u00e9tica\",\"d\u00eda mundial de la enfermedades raras\",\"discapacidad\",\"donaciones\",\"enfermedades raras\",\"guapos por dentro y por fuera\",\"Ignacio Molina\",\"Investigaci\u00f3n\",\"Nivea\",\"Universidad de Granada\"],\"articleSection\":[\"Actividades y eventos solidarios\"],\"inLanguage\":\"es\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2021\/02\/23\/guapos-por-dentro-y-por-fuera-campana-ataxia-telangiectasia\/\",\"url\":\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2021\/02\/23\/guapos-por-dentro-y-por-fuera-campana-ataxia-telangiectasia\/\",\"name\":\"\u201cGuapos por dentro y por fuera\u201d, la campa\u00f1a para recaudar fondos para investigar la ataxia telangiectasia - 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