{"id":2361,"date":"2021-03-04T10:19:53","date_gmt":"2021-03-04T10:19:53","guid":{"rendered":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2021\/03\/04\/200-km-ataxia-telangiectasia\/"},"modified":"2026-03-02T12:01:29","modified_gmt":"2026-03-02T12:01:29","slug":"200-km-ataxia-telangiectasia","status":"publish","type":"post","link":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2021\/03\/04\/200-km-ataxia-telangiectasia\/","title":{"rendered":"Un bilba\u00edno correr\u00e1 m\u00e1s de 200 km en tres d\u00edas por la ataxia telangiectasia"},"content":{"rendered":"

\"CartelQuiere correr tres ultra trails en tres d\u00edas seguidos, m\u00e1s de 200 km, como reto para recaudar fondos para la ataxia telangiectasia, una enfermedad rara que a\u00fan no tiene cura, y que afecta a dos chicos en Euskadi y m\u00e1s de 30 en todo el Estado. El corredor bilba\u00edno de ultra trail Gonzalo P\u00e9rez<\/strong>, de 46 a\u00f1os, llevar\u00e1 a cabo su haza\u00f1a los d\u00edas 2,3 y 4 de abril<\/strong> por el recorrido de la \u201cllanada alavesa<\/strong>\u201d y los montes que rodean Vitoria-Gasteiz.<\/p>\n

Tal como explica en su reto<\/a><\/strong>, publicado en la plataforma de recaudaci\u00f3n de fondos Migranodearena.org, \u201cla intenci\u00f3n es conseguir vender esos 211 kil\u00f3metros de la ruta a raz\u00f3n de 5\u20ac cada uno de ellos para llegar a los 1055 euros de recaudaci\u00f3n\u201d. Ya lleva m\u00e1s de 800 euros recaudados. Adem\u00e1s, Gonzalo vender\u00e1 camisetas solidarias<\/strong> del reto que se pueden solicitar a trav\u00e9s de la cuenta que ha creado en Facebook<\/a> o su cuenta de Instagram<\/a>.<\/p>\n

Tal como explica Gonzalo, \u201cdespu\u00e9s de tanto correr desde carreras peque\u00f1as hasta ultras, ya tocaba devolver todo el cari\u00f1o que me ha dado el monte y la gente que me he encontrado por el camino, en forma de acci\u00f3n solidaria\u201d. El viernes 2 de abril afrontar\u00e1 el tramo entre Legutiano y Nanclares, 70 km y 3211 m positivos de desnivel. El s\u00e1bado 3 correr\u00e1 desde Nanclares hasta Ziordia con 78 km y 4062+. Y para terminar, el domingo 4 de abril terminar\u00e1 la ruta recorriendo la distancia entre Ziordia y Legutiano, unos 62 km y 4041+.<\/p>\n

 <\/p>\n

\"Camiseta<\/p>\n

Una iniciativa solidaria<\/a> realizada a beneficio de<\/strong> Aefat<\/a><\/strong>, la asociaci\u00f3n que agrupa a las familias con ni\u00f1os y j\u00f3venes afectados por ataxia telangiectasia, una enfermedad gen\u00e9tica y neurodegenerativa que provoca una discapacidad progresiva, inmunodeficiencia, problemas respiratorios y c\u00e1ncer, entre otras complicaciones. La mayor\u00eda de los afectados son menores de 20 a\u00f1os. \u201cEstamos muy agradecidos con este gran reto de Gonzalo, que se ha implicado con nosotros sin conocernos\u201d, ha explicado Patxi Vill\u00e9n<\/strong>, presidente de la asociaci\u00f3n y padre de Jon, de 18 a\u00f1os, uno de los j\u00f3venes alaveses afectados.<\/p>\n

El dinero recaudado se destinar\u00e1 al proyecto de investigaci\u00f3n que Aefat<\/a> <\/strong>est\u00e1 financiando en la Cl\u00ednica Universidad de Navarra<\/a>, que alcanza un importe de 50.000 euros anuales. Aefat<\/strong> es una asociaci\u00f3n sin \u00e1nimo de lucro creada en 2009 y declarada de utilidad p\u00fablica desde 2014.<\/p>\n

GRACIAS, GONZALO, Y A TODOS LOS QUE EST\u00c1IS COLABORANDO<\/strong><\/span><\/p>\n

\"Gonzalo<\/p>\n","protected":false},"excerpt":{"rendered":"

\"CartelQuiere correr tres ultra trails en tres d\u00edas seguidos, m\u00e1s de 200 km, como reto para recaudar fondos para la ataxia telangiectasia, una enfermedad rara que a\u00fan no tiene cura, y que afecta a dos chicos en Euskadi y m\u00e1s de 30 en todo el Estado. El corredor bilba\u00edno de ultra trail Gonzalo P\u00e9rez<\/strong>, de 46 a\u00f1os, llevar\u00e1 a cabo su haza\u00f1a los d\u00edas 2,3 y 4 de abril<\/strong> por el recorrido de la \u201cllanada alavesa<\/strong>\u201d y los montes que rodean Vitoria-Gasteiz.<\/p>\n

Tal como explica en su reto<\/a><\/strong>, publicado en la plataforma de recaudaci\u00f3n de fondos Migranodearena.org, \u201cla intenci\u00f3n es conseguir vender esos 211 kil\u00f3metros de la ruta a raz\u00f3n de 5\u20ac cada uno de ellos para llegar a los 1055 euros de recaudaci\u00f3n\u201d. Ya lleva m\u00e1s de 800 euros recaudados. Adem\u00e1s, Gonzalo vender\u00e1 camisetas solidarias<\/strong> del reto que se pueden solicitar a trav\u00e9s de la cuenta que ha creado en Facebook<\/a> o su cuenta de Instagram<\/a>.<\/p>\n","protected":false},"author":1,"featured_media":2358,"comment_status":"closed","ping_status":"open","sticky":true,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[807],"tags":[60,354,55,423,418,352,62,421,155,116,422,347,25,308,69,355,126,364],"class_list":["post-2361","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-deporte-solidario","tag-aefat","tag-alava","tag-ataxia-telangiectasia","tag-corredor-solidario","tag-donaciones","tag-donar","tag-enfermedades-raras","tag-gonzalo-perez","tag-ideal","tag-investigacion","tag-llanada-alavesa","tag-recaudacion-de-fondos","tag-reto-solidario","tag-runner-solidario","tag-running","tag-running-solidario","tag-tapones-solidarios","tag-trail"],"acf":[],"yoast_head":"\nUn bilba\u00edno correr\u00e1 m\u00e1s de 200 km en tres d\u00edas por la ataxia telangiectasia - Aefat<\/title>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Un bilba\u00edno correr\u00e1 m\u00e1s de 200 km en tres d\u00edas por la ataxia telangiectasia - Aefat\" \/>\n<meta property=\"og:description\" content=\"Quiere correr tres ultra trails en tres d\u00edas seguidos, m\u00e1s de 200 km, como reto para recaudar fondos para la ataxia telangiectasia, una enfermedad rara que a\u00fan no tiene cura, y que afecta a dos chicos en Euskadi y m\u00e1s de 30 en todo el Estado. 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