{"id":2422,"date":"2021-08-02T16:42:40","date_gmt":"2021-08-02T16:42:40","guid":{"rendered":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2021\/08\/02\/el-programa-impulso-nos-permite-avanzar-en-apoyo-psicologico\/"},"modified":"2026-03-02T12:01:20","modified_gmt":"2026-03-02T12:01:20","slug":"el-programa-impulso-nos-permite-avanzar-en-apoyo-psicologico","status":"publish","type":"post","link":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2021\/08\/02\/el-programa-impulso-nos-permite-avanzar-en-apoyo-psicologico\/","title":{"rendered":"El Programa Impulso nos permite avanzar en apoyo psicol\u00f3gico"},"content":{"rendered":"<p style=\"text-align: justify;\"><img fetchpriority=\"high\" decoding=\"async\" class=\" alignright size-full wp-image-2390\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/06\/Logo_III_Edicion.png\" alt=\"Logo III Edici\u00f3n\" width=\"400\" height=\"167\" style=\"margin: 10px; float: right;\" srcset=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/06\/Logo_III_Edicion.png 917w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/06\/Logo_III_Edicion-300x125.png 300w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/06\/Logo_III_Edicion-768x321.png 768w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/06\/Logo_III_Edicion-18x8.png 18w\" sizes=\"(max-width: 400px) 100vw, 400px\" \/>En Aefat tambi\u00e9n somos <a href=\"https:\/\/enfermedades-raras.org\/\">FEDER<\/a>, porque pertenecemos a la&nbsp;<strong>Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras<\/strong>. Y desde nuestra asociaci\u00f3n tenemos que agradecerles su apoyo, y en este caso tambi\u00e9n a <strong>Fundaci\u00f3n Mutua<\/strong> por su labor con el <strong>Programa Impulso<\/strong>. Gracias al programa de este a\u00f1o, podemos facilitar sesiones de&nbsp;terapia psicol\u00f3gica invidual online&nbsp;con nuestros afectados con ataxia telangiectasia.<\/p>\n<p style=\"text-align: justify;\">Como muchos ya sab\u00e9is, la ataxia telangiectasia es una enfermedad neurodegenerativa que provoca una grave discapacidad progresiva que provoca que los ni\u00f1os tengan que usar silla de ruedas hacia los 8 a\u00f1os y depender de una persona para cualquier actividad de su d\u00eda a d\u00eda. Adem\u00e1s, los afectados son grupo de riesgo ante el Covid19, por su inmunodeficiencia, por ser m\u00e1s proclives a problemas respiratorios y en algunos casos por sus patolog\u00edas coronarias.&nbsp;Para los ni\u00f1os y j\u00f3venes afectados con ataxia telangiectasia, la pandemia ha supuesto miedo al virus, miedo a las vacunas, incertidumbre, aislamiento, soledad, a\u00fan menos vida social\u2026. En muchos casos ha obligado a desarrollar educaci\u00f3n online en casa sin poder asistir a los centros educativos, reduciendo posibilidades de avanzar en su educaci\u00f3n adaptada y en su inclusi\u00f3n.<\/p>\n<p style=\"text-align: justify;\">Y la transformaci\u00f3n de la sociedad con la pandemia, con nuevas normativas y medidas de seguridad, ha obligado a nuestros chicos y chicas a renunciar a muchas de sus terapias, tan necesarias para su calidad de vida como fisioterapia, logopedia, rehabilitaci\u00f3n, hidroterapia&#8230; Y el tan <strong>necesario apoyo psicol\u00f3gico<\/strong>.<\/p>\n<p style=\"text-align: justify;\">En nuestra asociaci\u00f3n contamos en la actualidad con <strong>m\u00e1s de 30 afectados por ataxia telangiectasia de distintas comunidades<\/strong>, entre un a\u00f1o de edad y algo m\u00e1s de 30 a\u00f1os. En los \u00faltimos a\u00f1os han fallecido 4 j\u00f3venes con esta enfermedad degenerativa.&nbsp;Al ser pocos afectados en Espa\u00f1a, podemos comunicarnos con un chat de familias en el que se comparten noticias, novedades, retos solidarios, acciones\u2026 Pero tambi\u00e9n inquietudes, dudas, miedos, problemas personales y consultas.<\/p>\n<p style=\"text-align: justify;\">En Aefat no nos hab\u00edamos planteado contar con un <strong>servicio de atenci\u00f3n psicol\u00f3gica<\/strong> hasta ahora, y la mayor\u00eda de las familias que lo necesitaban lo buscaban de forma privada en su entorno cercano. Pero con la pandemia, hemos visto que las necesidades de apoyo psicol\u00f3gico se han incrementado.&nbsp;<\/p>\n<p style=\"text-align: justify;\">En su tercera edici\u00f3n, el <a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/15495-fundaci%C3%B3n-mutua-y-feder-proporcionan-terapias-a-m%C3%A1s-de-2-300-personas-de-cualquier-edad-con-er\">Programa IMPULSO<\/a> permitir\u00e1 que 96 organizaciones de pacientes federadas como la nuestra puedan desarrollar distintos tipos de terapias. MUCHAS GRACIAS FEDER Y FUNDACI\u00d3N MUTUA.<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p style=\"text-align: justify;\"><img fetchpriority=\"high\" decoding=\"async\" class=\" alignright size-full wp-image-2390\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/06\/Logo_III_Edicion.png\" alt=\"Logo III Edici\u00f3n\" width=\"400\" height=\"167\" style=\"margin: 10px; float: right;\" srcset=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/06\/Logo_III_Edicion.png 917w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/06\/Logo_III_Edicion-300x125.png 300w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/06\/Logo_III_Edicion-768x321.png 768w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2021\/06\/Logo_III_Edicion-18x8.png 18w\" sizes=\"(max-width: 400px) 100vw, 400px\" \/>En Aefat tambi\u00e9n somos <a href=\"https:\/\/enfermedades-raras.org\/\">FEDER<\/a>, porque pertenecemos a la&nbsp;<strong>Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras<\/strong>. Y desde nuestra asociaci\u00f3n tenemos que agradecerles su apoyo, y en este caso tambi\u00e9n a <strong>Fundaci\u00f3n Mutua<\/strong> por su labor con el <strong>Programa Impulso<\/strong>. Gracias al programa de este a\u00f1o, podemos facilitar sesiones de&nbsp;terapia psicol\u00f3gica invidual online&nbsp;con nuestros afectados con ataxia telangiectasia.<\/p>\n","protected":false},"author":1,"featured_media":2390,"comment_status":"closed","ping_status":"open","sticky":true,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[812],"tags":[60,439,55,229,450],"class_list":["post-2422","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-alianzas-e-instituciones","tag-aefat","tag-apoyo-psicologico","tag-ataxia-telangiectasia","tag-feder","tag-fundacion-mutua"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>El Programa Impulso nos permite avanzar en apoyo psicol\u00f3gico - Aefat<\/title>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"El Programa Impulso nos permite avanzar en apoyo psicol\u00f3gico - Aefat\" \/>\n<meta property=\"og:description\" content=\"En Aefat tambi\u00e9n somos FEDER, porque pertenecemos a la&nbsp;Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras. Y desde nuestra asociaci\u00f3n tenemos que agradecerles su apoyo, y en este caso tambi\u00e9n a Fundaci\u00f3n Mutua por su labor con el Programa Impulso. 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