{"id":2441,"date":"2021-11-03T10:04:15","date_gmt":"2021-11-03T10:04:15","guid":{"rendered":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2021\/11\/03\/volvemos-a-las-maratones-zurich-marato-barcelona\/"},"modified":"2026-03-02T12:01:04","modified_gmt":"2026-03-02T12:01:04","slug":"volvemos-a-las-maratones-zurich-marato-barcelona","status":"publish","type":"post","link":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2021\/11\/03\/volvemos-a-las-maratones-zurich-marato-barcelona\/","title":{"rendered":"\u00a1Volvemos a las maratones! Zurich Marat\u00f3 Barcelona"},"content":{"rendered":"

\"Aefat<\/p>\n

La Zurich Marat\u00f3 Barcelona de este domingo supondr\u00e1 el regreso a las carreras del Equipo Zurich Aefat<\/strong> tras la pandemia. Un equipo en el que los protagonistas son ni\u00f1os y j\u00f3venes afectados por ataxia telangiectasia<\/strong>, una enfermedad rara, gen\u00e9tica, neurodegenerativa y multisist\u00e9mica que a\u00fan no tiene cura ni tratamiento, y que provoca una grave discapacidad progresiva, complicaciones respiratorias, dificultad en el habla y una mayor incidencia de c\u00e1ncer. En este retorno a las maratones, ir\u00e1n acompa\u00f1ados durante los 42 kil\u00f3metros por un grupo de m\u00e1s de 30 corredores solidarios<\/strong> que empujar\u00e1n sus sillas especiales por las calles de Barcelona.<\/p>\n

Una experiencia motivadora para los afectados que comenz\u00f3 en 2016<\/strong> con tres hermanos afectados por esta enfermedad minoritaria, de los poco m\u00e1s de 30 que se agrupan en la asociaci\u00f3n espa\u00f1ola Aefat<\/a>. El Equipo, apoyado por Zurich Seguros<\/a> desde 2017<\/strong>, lleva un recorrido de importantes cifras para una asociaci\u00f3n tan peque\u00f1a<\/strong>: m\u00e1s de 15 maratones por toda la geograf\u00eda espa\u00f1ola en cuatro a\u00f1os, 14 afectados han participado en alguna marat\u00f3n, m\u00e1s de 16 familias implicadas (tambi\u00e9n con abuelos que corren y padres de la asociaci\u00f3n que colaboran), m\u00e1s de 200 publicaciones en medios de comunicaci\u00f3n y m\u00e1s de 23.000 euros recaudados para financiar la investigaci\u00f3n de la ataxia telangiectasia.<\/p>\n

Este domingo, nueve j\u00f3venes con ataxia telangiectasia (AT), todos con edades entre 13 y 31 a\u00f1os, participar\u00e1n en la Zurich Marat\u00f3n Barcelona<\/a><\/strong>: Lola (Barcelona), los hermanos \u00c1lvaro, Alejandra y Luis-Ill\u00e1n (Terrassa, Barcelona), Sara (Madrid), \u00c1lex (Oliva, Valencia), Jon (Vitoria-Gasteiz), Sonia (Ferrol, A Coru\u00f1a) y Patricia (Lal\u00edn, Pontevedra).<\/p>\n

EQUIPO ZURICH AEFAT<\/strong><\/h4>\n

Un equipo de m\u00e1s de 30 corredores solidarios<\/strong>, procedentes de distintas localidades catalanas, aragonesas, vascas y andaluzas empujar\u00e1n sus sillas especiales durante la marat\u00f3n. SpiderAbel, corredor de Amurrio (\u00c1lava) que lleva m\u00e1s de 70 maratones enfundado en su traje de Spiderman, es fijo con el equipo. Otros han acompa\u00f1ado a los chicos en muchas de las maratones Zurich que lleva el grupo, y siempre hay alguna nueva incorporaci\u00f3n que quiere vivir el marat\u00f3n de una forma solidaria e inclusiva. En sus camisetas azules lucir\u00e1n el lema \u201cCorre, frena la AT<\/strong>\u201d de Aefat.<\/p>\n

El Equipo Zurich Aefat<\/strong> se presentar\u00e1 este s\u00e1bado 6 de noviembre<\/strong>, a las 12,00 h<\/strong> en el stand de Zurich de la feria Expo Sports<\/strong> (Pabell\u00f3n 2 de Fira de Barcelona en Montju\u00efc, entrada por la calle Rius i Taulet). All\u00ed se fotografiar\u00e1n familias y corredores junto a directivos de la compa\u00f1\u00eda aseguradora.<\/p>\n

Aefat colocar\u00e1 un stand para vender camisetas solidarias<\/strong> ese mismo s\u00e1bado en el vest\u00edbulo del Ayre Hotel Gran V\u00eda, donde se alojan las familias. Tal como explica Patxi Vill\u00e9n, presidente de la asociaci\u00f3n y padre de Jon, \u201cparticipar en las maratones es una experiencia \u00fanica para nuestros chicos y una oportunidad inigualable de convivencia con familias y corredores. Y podemos hacerlo gracias al apoyo incondicional de Zurich y la colaboraci\u00f3n de otras empresas como Ayre Hoteles en el alojamiento, MRW para transportar nuestras sillas, la organizaci\u00f3n de la Marat\u00f3 y tambi\u00e9n a L\u00b4Aqu\u00e0rium de Barcelona, donde iremos de visita el s\u00e1bado por la tarde. Apreciamos enormemente el esfuerzo de los corredores solidarios y de las empresas colaboradoras. Sin ellos, esta experiencia \u00fanica ser\u00eda imposible\u201d.<\/p>\n

Desde 2017, Zurich Seguros<\/a> <\/strong>entrega 12 dorsales para los corredores solidarios en cada marat\u00f3n y 20.000 euros anuales para Aefat, para ayudar a pagar los diferentes proyectos de investigaci\u00f3n<\/a> que la asociaci\u00f3n est\u00e1 financiando, algunos de ellos internacionales. El m\u00e1s reciente es de terapia g\u00e9nica, desarrollado por CIMA-Cl\u00ednica Universidad de Navarra<\/strong> en colaboraci\u00f3n con la Universitat Pompeu Fabra<\/strong> (UPF). Para aquellos que quieran donar, pueden hacerlo a trav\u00e9s de la web de la asociaci\u00f3n en https:\/\/aefat.es\/dona<\/a><\/p>\n

Despu\u00e9s de Barcelona, participar\u00e1n tambi\u00e9n en el resto de maratones patrocinados por la compa\u00f1\u00eda aseguradora: Zurich Marat\u00f3n San Sebasti\u00e1n<\/strong> (28 noviembre), Zurich Marat\u00f3n M\u00e1laga<\/strong> (12 diciembre) y Zurich Marat\u00f3n Sevilla<\/strong> (20 febrero 2022).<\/p>\n

Aefat es una asociaci\u00f3n sin \u00e1nimo de lucro creada en 2009 y declarada de utilidad p\u00fablica desde 2014<\/strong>, que est\u00e1 formada por familiares y personas relacionadas con enfermos de ataxia telangiectasia de diferentes puntos de Espa\u00f1a. Aefat pertenece a FEDER (Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras), FEDAES (Federaci\u00f3n de Ataxias de Espa\u00f1a) y la internacional A-T Global Alliance (www.cureat.org<\/a>).<\/p>\n

\"AEFAT<\/p>\n

\"Equipo<\/p>\n

\"Juan<\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

\"Aefat<\/p>\n

La Zurich Marat\u00f3 Barcelona de este domingo supondr\u00e1 el regreso a las carreras del Equipo Zurich Aefat<\/strong> tras la pandemia. Un equipo en el que los protagonistas son ni\u00f1os y j\u00f3venes afectados por ataxia telangiectasia<\/strong>, una enfermedad rara, gen\u00e9tica, neurodegenerativa y multisist\u00e9mica que a\u00fan no tiene cura ni tratamiento, y que provoca una grave discapacidad progresiva, complicaciones respiratorias, dificultad en el habla y una mayor incidencia de c\u00e1ncer. En este retorno a las maratones, ir\u00e1n acompa\u00f1ados durante los 42 kil\u00f3metros por un grupo de m\u00e1s de 30 corredores solidarios<\/strong> que empujar\u00e1n sus sillas especiales por las calles de Barcelona.<\/p>\n","protected":false},"author":1,"featured_media":2438,"comment_status":"closed","ping_status":"open","sticky":true,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[807],"tags":[60,503,500,281,163,324,423,222,62,319,116,502,501,64,280,69,282,499,504],"class_list":["post-2441","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-deporte-solidario","tag-aefat","tag-aquarium","tag-ataxia-telagiectasia","tag-ayre-hoteles","tag-barcelona","tag-corre-frena-la-at","tag-corredor-solidario","tag-el-periodico","tag-enfermedades-raras","tag-equipo-zurich-aefat","tag-investigacion","tag-marathon","tag-marato","tag-maraton","tag-mrw","tag-running","tag-zurich","tag-zurich-marato-barcelona","tag-zurichmaratobcn21"],"acf":[],"yoast_head":"\n\u00a1Volvemos a las maratones! 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