{"id":2453,"date":"2021-11-08T13:39:26","date_gmt":"2021-11-08T13:39:26","guid":{"rendered":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2021\/11\/08\/equipo-zurich-aefat-marato-barcelona-2021\/"},"modified":"2026-03-02T12:01:04","modified_gmt":"2026-03-02T12:01:04","slug":"equipo-zurich-aefat-marato-barcelona-2021","status":"publish","type":"post","link":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2021\/11\/08\/equipo-zurich-aefat-marato-barcelona-2021\/","title":{"rendered":"Reto superado: el Equipo Zurich Aefat complet\u00f3 la Marat\u00f3 Barcelona"},"content":{"rendered":"

\"EQUIPO<\/p>\n

M\u00e1s de 30 corredores solidarios empujaron las sillas de 9 ni\u00f1os y j\u00f3venes con ataxia telangiectasia (AT) durante los 42 kil\u00f3metros de la Zurich Marat\u00f3 Barcelona 2021, celebrada el 7 de noviembre. Este reto solidario supon\u00eda el regreso a las carreras del Equipo Zurich Aefat<\/strong> tras la pandemia, y se vivieron momentos intensos de emoci\u00f3n, nervios, risas, aplausos de \u00e1nimo de otros corredores y del p\u00fablico\u2026 Y tambi\u00e9n con el recuerdo de Javi<\/a>, uno de los chicos afectados que participaba, que falleci\u00f3 el a\u00f1o pasado a los 23 a\u00f1os.<\/p>\n

Los protagonistas de la Marat\u00f3 fueron 9 ni\u00f1os y j\u00f3venes con ataxia telangiectasia<\/strong>, con edades entre 13 y 31 a\u00f1os: Lola (Barcelona), los hermanos \u00c1lvaro, Alejandra y Luis-Ill\u00e1n (Terrassa, Barcelona), Sara (Madrid), \u00c1lex (Oliva, Valencia), Jon (Vitoria-Gasteiz), Sonia (Ferrol, A Coru\u00f1a) y Patricia (Lal\u00edn, Pontevedra). Los colaboradores, empujando sus sillas especiales, fueron m\u00e1s de 30 corredores solidarios<\/strong> procedentes de distintas localidades catalanas, aragonesas y vascas.<\/p>\n

Con sus camisetas azul \u201cZurich\u201d y el lema \u201cCorre, frena la AT<\/strong>\u201d, el equipo recorri\u00f3 las calles de Barcelona durante m\u00e1s de 5 horas de carrera, para dar visibilidad a esta enfermedad rara, gen\u00e9tica y neurodegenerativa que a\u00fan no tiene cura ni tratamiento. Con esta actividad inclusiva, Aefat<\/a>, la asociaci\u00f3n que agrupa a las familias en Espa\u00f1a, trata tambi\u00e9n de motivar<\/strong> a sus ni\u00f1os y j\u00f3venes afectados, y recordar la necesidad de apoyo para los proyectos de investigaci\u00f3n<\/strong> que est\u00e1n financiando. Una cuenta atr\u00e1s desesperada para las familias, ya que la ataxia telangiectasia provoca una grave discapacidad f\u00edsica progresiva, complicaciones respiratorias, dificultad en el habla y una mayor incidencia de c\u00e1ncer.<\/p>\n

El Equipo, apoyado por Zurich Seguros<\/a> desde 2017<\/strong>, ha completado 15 maratones por toda la geograf\u00eda espa\u00f1ola en cuatro a\u00f1os, con 14 afectados participando, m\u00e1s de 16 familias implicadas (tambi\u00e9n con familiares que corren y colaboran), m\u00e1s de 200 publicaciones en medios de comunicaci\u00f3n y m\u00e1s de 23.000 euros recaudados para financiar la investigaci\u00f3n de la ataxia telangiectasia, adem\u00e1s de los 20.000 euros anuales que aporta Zurich Seguros.<\/p>\n

El Equipo Zurich Aefat<\/strong> se present\u00f3 el s\u00e1bado en<\/strong> el stand de Zurich de la feria Expo Sports<\/strong> y por la tarde hicieron una visita a L\u00b4Aqu\u00e0rium de Barcelona. Familias y corredores de fuera se alojaron en el Hotel Ayre Gran V\u00eda, donde se instal\u00f3 adem\u00e1s un stand para vender camisetas solidarias que despu\u00e9s lucieron algunos corredores extranjeros en la carrera.<\/p>\n

El Equipo participar\u00e1 tambi\u00e9n en la Zurich Marat\u00f3n San Sebasti\u00e1n<\/strong> (28 noviembre), Zurich Marat\u00f3n M\u00e1laga<\/strong> (12 diciembre) y Zurich Marat\u00f3n Sevilla<\/strong> (20 febrero 2022).<\/p>\n

\"EQUIPO<\/p>\n

SOBRE AEFAT<\/strong><\/span><\/p>\n

Aefat recauda fondos para financiar diferentes proyectos de investigaci\u00f3n<\/a>, algunos de ellos internacionales. El m\u00e1s reciente es de terapia g\u00e9nica, desarrollado por CIMA-Cl\u00ednica Universidad de Navarra<\/strong> en colaboraci\u00f3n con la Universitat Pompeu Fabra<\/strong> (UPF). Para aquellos que quieran donar, pueden hacerlo a trav\u00e9s de la web de la asociaci\u00f3n en https:\/\/aefat.es\/dona<\/a> o por Bizum al 01274.<\/p>\n

Aefat es una asociaci\u00f3n sin \u00e1nimo de lucro creada en 2009 y declarada de utilidad p\u00fablica desde 2014<\/strong>, que est\u00e1 formada por familiares y personas relacionadas con enfermos de ataxia telangiectasia de diferentes puntos de Espa\u00f1a. Aefat pertenece a FEDER (Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras) y la internacional A-T Global Alliance (www.cureat.org<\/a>).<\/p>\n

GRACIAS A TODOS POR COLABORAR: A nuestros valientes ni\u00f1os y j\u00f3venes afectados, a nuestras familias tan luchadoras, a nuestros increibles corredores solidarios (deportistas fuera de serie con un gran coraz\u00f3n solidario), colaboradores… Y especialmente a Zurich<\/a>, que apoya a una asociaci\u00f3n peque\u00f1a como Aefat y cree en nuestra lucha por la investigaci\u00f3n.<\/strong><\/span><\/p>\n

Tambi\u00e9n a Ayre Hoteles<\/a> por alojarnos con un precio especial y hacernos sentir como en casa, con un trato muy cuidado. Y a MRW<\/a>, que siempre est\u00e1n dispuestos a colaborar, transportando nuestras sillas y cajas de productos solidarios por toda Espa\u00f1a de forma gratuita. Y por \u00faltimo, a L’Aquarium de Barcelona<\/a>, que nos permiti\u00f3 hacer una visita a precio especial.<\/strong><\/span><\/p>\n

Fotos gracias a Xavier d’Arquer, nuestro fot\u00f3grafo voluntario desde 2016.<\/p>\n

\"EQUIPO<\/p>\n

 <\/p>\n

 <\/p>\n

\"EQUIPO<\/p>\n

\"EQUIPO<\/p>\n

\"EQUIPO<\/p>\n

\"EQUIPO<\/p>\n

\"EQUIPO<\/p>\n

\"EQUIPO<\/p>\n

\"EQUIPO<\/p>\n

\"EQUIPO<\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

\"EQUIPO<\/p>\n

M\u00e1s de 30 corredores solidarios empujaron las sillas de 9 ni\u00f1os y j\u00f3venes con ataxia telangiectasia (AT) durante los 42 kil\u00f3metros de la Zurich Marat\u00f3 Barcelona 2021, celebrada el 7 de noviembre. Este reto solidario supon\u00eda el regreso a las carreras del Equipo Zurich Aefat<\/strong> tras la pandemia, y se vivieron momentos intensos de emoci\u00f3n, nervios, risas, aplausos de \u00e1nimo de otros corredores y del p\u00fablico\u2026 Y tambi\u00e9n con el recuerdo de Javi<\/a>, uno de los chicos afectados que participaba, que falleci\u00f3 el a\u00f1o pasado a los 23 a\u00f1os.<\/p>\n","protected":false},"author":1,"featured_media":2442,"comment_status":"closed","ping_status":"open","sticky":true,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[807],"tags":[60,278,224,324,506,352,174,62,319,116,223,501,505,64,308,69,282],"class_list":["post-2453","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-deporte-solidario","tag-aefat","tag-ataxia-telangientasia","tag-bilbao","tag-corre-frena-la-at","tag-dona","tag-donar","tag-el-correo","tag-enfermedades-raras","tag-equipo-zurich-aefat","tag-investigacion","tag-korrotzi","tag-marato","tag-marato-barcelona","tag-maraton","tag-runner-solidario","tag-running","tag-zurich"],"acf":[],"yoast_head":"\nReto superado: el Equipo Zurich Aefat complet\u00f3 la Marat\u00f3 Barcelona - Aefat<\/title>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Reto superado: el Equipo Zurich Aefat complet\u00f3 la Marat\u00f3 Barcelona - Aefat\" \/>\n<meta property=\"og:description\" content=\"M\u00e1s de 30 corredores solidarios empujaron las sillas de 9 ni\u00f1os y j\u00f3venes con ataxia telangiectasia (AT) durante los 42 kil\u00f3metros de la Zurich Marat\u00f3 Barcelona 2021, celebrada el 7 de noviembre. 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