{"id":2463,"date":"2021-11-25T15:43:13","date_gmt":"2021-11-25T15:43:13","guid":{"rendered":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2021\/11\/25\/nos-vamos-a-la-zurich-maraton-de-san-sebastian\/"},"modified":"2026-03-02T12:01:04","modified_gmt":"2026-03-02T12:01:04","slug":"nos-vamos-a-la-zurich-maraton-de-san-sebastian","status":"publish","type":"post","link":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2021\/11\/25\/nos-vamos-a-la-zurich-maraton-de-san-sebastian\/","title":{"rendered":"\u00a1Nos vamos a la Zurich Marat\u00f3n de San Sebasti\u00e1n!"},"content":{"rendered":"

\"AEFAT<\/p>\n

\u00a1Si la lluvia nos deja, este domingo nos vamos de marat\u00f3n! Nuestro Equipo Zurich Aefat<\/strong>, compuesto por j\u00f3venes con ataxia telangiectasia y corredores solidarios que empujan sus sillas especiales, ser\u00e1 el \u00fanico con personas con discapacidad que participar\u00e1 este domingo en el Zurich Marat\u00f3n San Sebasti\u00e1n\/Donostiako Maratoia<\/a>.<\/p>\n

Este marat\u00f3n hist\u00f3rico ofrecer\u00e1 su lado m\u00e1s inclusivo con la participaci\u00f3n de esta \u201cmarea azul\u201d que lucir\u00e1 en sus camisetas el lema \u201cCorre, frena la AT\u201d, para dar visibilidad a la necesidad de la investigaci\u00f3n de la ataxia telangiectasia<\/strong>. Para los que no lo sab\u00e9is, se trata de una enfermedad rara, gen\u00e9tica, neurodegenerativa y multisist\u00e9mica que a\u00fan no tiene cura ni tratamiento, y que provoca una grave discapacidad progresiva, complicaciones respiratorias, dificultad en el habla y una alta probabilidad de c\u00e1ncer.<\/p>\n

Con esta actividad solidaria, Aefat<\/a>, la asociaci\u00f3n que agrupa a unos 30 afectados y familias en Espa\u00f1a, ofrece una experiencia motivadora a sus ni\u00f1os y j\u00f3venes, respaldados desde 2017 por Zurich Seguros<\/a>. El Equipo Zurich Aefat<\/strong> lleva una trayectoria de m\u00e1s de 16 maratones en cinco a\u00f1os por toda la geograf\u00eda espa\u00f1ola en cuatro a\u00f1os y m\u00e1s de 23.000 euros recaudados para financiar sus proyectos de investigaci\u00f3n<\/a> de la ataxia telangiectasia (se puede donar en www.aefat.es\/dona<\/a> y Bizum al 01274).<\/p>\n

Este domingo, cinco j\u00f3venes con ataxia telangiectasia (AT), <\/strong>todos con edades entre 13 y 18 a\u00f1os, participar\u00e1n en el Zurich Marat\u00f3n San Sebasti\u00e1n<\/a>: Lola (Barcelona), los mellizos B\u00e1rbara y Adri\u00e1n (Burgos), \u00c1lex (Oliva, Valencia) y Jon (Vitoria-Gasteiz). El abanderado del equipo de estos 15 corredores solidarios<\/strong> vascos, riojanos y aragoneses ser\u00e1 SpiderAbel, corredor de Amurrio (\u00c1lava) que lleva m\u00e1s de 80 maratones enfundado en su traje de Spiderman.<\/p>\n

AGRADECIMIENTOS<\/strong><\/span><\/p>\n

Patxi Vill\u00e9n<\/strong>, presidente de la asociaci\u00f3n y padre de Jon, ha destacado que \u201cparticipar en una marat\u00f3n como esta es una experiencia inclusiva y motivadora para nuestros chicos, y adem\u00e1s supone un fin de semana de convivencia con familias y corredores que nos ayuda a normalizar nuestra situaci\u00f3n y a superar los obst\u00e1culos del d\u00eda a d\u00eda. Y podemos hacerlo gracias al impulso de Zurich<\/strong>, que ha cre\u00eddo en una causa peque\u00f1a como la nuestra, pero no menos justa que una grande. Tambi\u00e9n gracias a que MRW<\/a><\/strong> nos ayuda traslad\u00e1ndonos las sillas y que Olarain<\/a><\/strong> nos acoge en su hotel como si fu\u00e9ramos de su familia desde hace a\u00f1os. Tambi\u00e9n vamos a hacer una visita el s\u00e1bado al Museo de la Ciencia\/Eureka! Zientzia Museoa<\/a><\/strong><\/strong>, de Kutxa Fundazioa, que colabora con nosotros.<\/strong> No podemos estar m\u00e1s agradecidos, a ellos y a esos corredores solidarios que no entrenan y corren por una marca, sino por unos j\u00f3venes que no pueden hacerlo\u201d.<\/p>\n

Despu\u00e9s de Donostia, el Equipo participar\u00e1 en el resto de maratones patrocinados por la compa\u00f1\u00eda aseguradora: Zurich Marat\u00f3n M\u00e1laga<\/strong> (12 diciembre), Zurich Marat\u00f3n Sevilla<\/strong> (20 febrero 2022) y Zurich Marat\u00f3 Barcelona<\/strong> (3 de abril de 2022).<\/p>\n

Si a\u00fan no nos conoces, Aefat es una asociaci\u00f3n sin \u00e1nimo de lucro creada en 2009 y declarada de utilidad p\u00fablica desde 2014<\/strong>, que est\u00e1 formada por familiares y personas relacionadas con enfermos de ataxia telangiectasia de diferentes puntos de Espa\u00f1a. Aefat pertenece a FEDER (Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras), FEDAES (Federaci\u00f3n de Ataxias de Espa\u00f1a) y la internacional A-T Global Alliance (www.cureat.org<\/a>).<\/p>\n

Fotos: Xavier d\u2019Arquer (Doblestudio) del Zurich Marat\u00f3n Donostia 2018 y 2019.<\/strong><\/span><\/p>\n

 <\/p>\n

 <\/p>\n

\"Aefat<\/p>\n

\"Aefat<\/p>\n

\"AEFAT<\/p>\n

\"Aefat<\/p>\n

\"AEFAT<\/p>\n","protected":false},"excerpt":{"rendered":"

\"AEFAT<\/p>\n

\u00a1Si la lluvia nos deja, este domingo nos vamos de marat\u00f3n! Nuestro Equipo Zurich Aefat<\/strong>, compuesto por j\u00f3venes con ataxia telangiectasia y corredores solidarios que empujan sus sillas especiales, ser\u00e1 el \u00fanico con personas con discapacidad que participar\u00e1 este domingo en el Zurich Marat\u00f3n San Sebasti\u00e1n\/Donostiako Maratoia<\/a>.<\/p>\n","protected":false},"author":1,"featured_media":2439,"comment_status":"closed","ping_status":"open","sticky":true,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[807],"tags":[60,111,278,352,508,123,62,139,116,64,69,348,282],"class_list":["post-2463","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-deporte-solidario","tag-aefat","tag-aitzina","tag-ataxia-telangientasia","tag-donar","tag-donosti","tag-donostia","tag-enfermedades-raras","tag-gasteiz-hoy","tag-investigacion","tag-maraton","tag-running","tag-solidaridad","tag-zurich"],"acf":[],"yoast_head":"\n\u00a1Nos vamos a la Zurich Marat\u00f3n de San Sebasti\u00e1n! - Aefat<\/title>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"\u00a1Nos vamos a la Zurich Marat\u00f3n de San Sebasti\u00e1n! - Aefat\" \/>\n<meta property=\"og:description\" content=\"\u00a1Si la lluvia nos deja, este domingo nos vamos de marat\u00f3n! 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