{"id":2478,"date":"2021-11-29T19:07:40","date_gmt":"2021-11-29T19:07:40","guid":{"rendered":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2021\/11\/29\/aefat-maraton-donostia-2021\/"},"modified":"2026-03-02T12:01:04","modified_gmt":"2026-03-02T12:01:04","slug":"aefat-maraton-donostia-2021","status":"publish","type":"post","link":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2021\/11\/29\/aefat-maraton-donostia-2021\/","title":{"rendered":"Reto superado en el Zurich Marat\u00f3n de San Sebasti\u00e1n, a pesar de la lluvia y el granizo"},"content":{"rendered":"

La lluvia, el viento, el granizo y las bajas temperaturas no detuvieron al Equipo Zurich Aefat<\/strong> este domingo en el Zurich Marat\u00f3n San Sebasti\u00e1n\/Donostiako Maratoia<\/a>, y cumplieron su sue\u00f1o de cruzar la meta una vez m\u00e1s. Aunque a primera hora de la ma\u00f1ana se baraj\u00f3 la opci\u00f3n de no participar por la climatolog\u00eda adversa, solamente dos de los ni\u00f1os con ataxia telangiectasia decidieron no hacerlo, aunque despu\u00e9s se incorporaron a la carrera. Ninguno de los corredores solidarios se ech\u00f3 atr\u00e1s.<\/p>\n

Lola (de Barcelona), los mellizos B\u00e1rbara y Adri\u00e1n (Burgos), \u00c1lex (Oliva, Valencia) y Jon (Vitoria-Gasteiz) cruzaron la meta acompa\u00f1ados de algunos familiares y el grupo de 15 <\/strong>grandes corredores solidarios<\/strong> vascos, riojanos y aragoneses que empujaron sus sillas durante esos 42 kil\u00f3metros y cinco horas. El abanderado del equipo fue de nuevo Abel Fern\u00e1ndez (SpiderAbel<\/strong>), corredor de Amurrio (\u00c1lava) que lleva m\u00e1s de 80 maratones enfundado en su traje de Spiderman.<\/p>\n

Los organizadores de este marat\u00f3n de larga tradici\u00f3n permitieron esta actividad inclusiva<\/strong>, que ayuda a motivar a estos ni\u00f1os y j\u00f3venes con ataxia telangiectasia<\/strong>. Una enfermedad rara, gen\u00e9tica, neurodegenerativa y multisist\u00e9mica que a\u00fan no tiene cura ni tratamiento, y que provoca una grave discapacidad f\u00edsica progresiva, complicaciones respiratorias, dificultad en el habla y una alta probabilidad de c\u00e1ncer.<\/p>\n

El equipo recorri\u00f3 las calles de San Sebasti\u00e1n animado por el p\u00fablico y otros corredores, con sus camisetas con el lema \u201cCorre, frena la AT<\/strong>\u201d, para recordar la necesidad de investigaci\u00f3n de la ataxia telangiectasia. Los j\u00f3venes con AT se fotografiaron con mucha ilusi\u00f3n el d\u00eda anterior con la \u00e9lite del atletismo presente en la competici\u00f3n.<\/p>\n

\"Equipo<\/p>\n

Desde Aefat<\/a>, la asociaci\u00f3n que agrupa a m\u00e1s de 30 afectados y familias en Espa\u00f1a, organizamos la participaci\u00f3n en maratones desde 2017 gracias al apoyo de Zurich Seguros<\/a>, que dona 20.000 euros anuales para financiar sus proyectos de investigaci\u00f3n<\/a> (para colaborar se puede donar en www.aefat.es\/dona<\/a> y Bizum al 01274).<\/p>\n

Tambi\u00e9n colabora habitualmente MRW<\/a><\/strong> en el traslado de las sillas y Olarain<\/a><\/strong> en el alojamiento de familias y corredores solidarios. En esta ocasi\u00f3n, el Equipo pudo disfrutar de una divertida e interesante visita al Museo de la Ciencia\/Eureka! Zientzia Museoa<\/a><\/strong><\/strong>, de Kutxa Fundazioa, que tambi\u00e9n ha colaborado.<\/strong><\/p>\n

Como ya sab\u00e9is, Aefat es una asociaci\u00f3n sin \u00e1nimo de lucro creada en 2009 y declarada de utilidad p\u00fablica desde 2014<\/strong>, que agrupa a ni\u00f1os y j\u00f3venes afectados, y sus familias, de diferentes puntos de Espa\u00f1a. Aefat pertenece a FEDER (Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras), FEDAES (Federaci\u00f3n de Ataxias de Espa\u00f1a) y la internacional A-T Global Alliance (www.cureat.org<\/a>).<\/p>\n

\u00a1GRACIAS A TODOS POR HACERLO POSIBLE!<\/strong><\/span><\/p>\n

\"Equipo<\/p>\n

\"Equipo<\/p>\n

\"Equipo<\/p>\n

 <\/p>\n

\"Equipo<\/p>\n

\"Equipo \"Equipo<\/p>\n

\"Equipo\"Equipo<\/p>\n

\"Equipo<\/p>\n

\"Equipo<\/p>\n

\"Equipo<\/p>\n

\"Equipo<\/p>\n

\"Equipo<\/p>\n","protected":false},"excerpt":{"rendered":"

La lluvia, el viento, el granizo y las bajas temperaturas no detuvieron al Equipo Zurich Aefat<\/strong> este domingo en el Zurich Marat\u00f3n San Sebasti\u00e1n\/Donostiako Maratoia<\/a>, y cumplieron su sue\u00f1o de cruzar la meta una vez m\u00e1s. Aunque a primera hora de la ma\u00f1ana se baraj\u00f3 la opci\u00f3n de no participar por la climatolog\u00eda adversa, solamente dos de los ni\u00f1os con ataxia telangiectasia decidieron no hacerlo, aunque despu\u00e9s se incorporaron a la carrera. Ninguno de los corredores solidarios se ech\u00f3 atr\u00e1s.<\/p>\n","protected":false},"author":1,"featured_media":2464,"comment_status":"closed","ping_status":"open","sticky":true,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[807],"tags":[111,139,68],"class_list":["post-2478","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-deporte-solidario","tag-aitzina","tag-gasteiz-hoy","tag-vitoria-gasteiz"],"acf":[],"yoast_head":"\nReto superado en el Zurich Marat\u00f3n de San Sebasti\u00e1n, a pesar de la lluvia y el granizo - Aefat<\/title>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Reto superado en el Zurich Marat\u00f3n de San Sebasti\u00e1n, a pesar de la lluvia y el granizo - Aefat\" \/>\n<meta property=\"og:description\" content=\"La lluvia, el viento, el granizo y las bajas temperaturas no detuvieron al Equipo Zurich Aefat este domingo en el Zurich Marat\u00f3n San Sebasti\u00e1n\/Donostiako Maratoia, y cumplieron su sue\u00f1o de cruzar la meta una vez m\u00e1s. 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