{"id":2504,"date":"2022-02-10T18:33:10","date_gmt":"2022-02-10T18:33:10","guid":{"rendered":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2022\/02\/10\/reto-camino-de-santiago-corriendo-por-aefat\/"},"modified":"2026-03-02T12:01:04","modified_gmt":"2026-03-02T12:01:04","slug":"reto-camino-de-santiago-corriendo-por-aefat","status":"publish","type":"post","link":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2022\/02\/10\/reto-camino-de-santiago-corriendo-por-aefat\/","title":{"rendered":"Reto: Camino de Santiago corriendo por Aefat"},"content":{"rendered":"<p><img fetchpriority=\"high\" decoding=\"async\" class=\" alignleft size-full wp-image-2502\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2022\/02\/Gonzalo_Perez_1.jpg\" alt=\"Gonzalo P\u00e9rez 1\" width=\"337\" height=\"337\" style=\"margin: 10px; float: left;\" srcset=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2022\/02\/Gonzalo_Perez_1.jpg 768w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2022\/02\/Gonzalo_Perez_1-300x300.jpg 300w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2022\/02\/Gonzalo_Perez_1-150x150.jpg 150w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2022\/02\/Gonzalo_Perez_1-12x12.jpg 12w\" sizes=\"(max-width: 337px) 100vw, 337px\" \/>El corredor bilba\u00edno de ultra trail&nbsp;<strong>Gonzalo P\u00e9rez<\/strong>, de 47 a\u00f1os, quiere completar el Camino de Santiago corriendo 800 km en 16 d\u00edas seguidos, y adem\u00e1s llevando en su mochila todo lo necesario para su reto. Un reto tit\u00e1nico para recaudar fondos para la investigaci\u00f3n de la ataxia telangiectasia, como sab\u00e9is, una enfermedad rara que a\u00fan no tiene cura y que provoca una grave discapacidad f\u00edsica progresiva y una alta incidencia de c\u00e1ncer.&nbsp;<\/p>\n<p>Su intenci\u00f3n es completar el trayecto franc\u00e9s del Camino, desde el <strong>26 de marzo al 10 de abril<\/strong>, empezando en Saint Jean de Pied de Port (Francia) hasta Santiago de Compostela, y pasando por Roncesvalles, Pamplona, Estella, Logro\u00f1o, Santo Domingo de la Calzada, San Juan de Ortega, Hontanas, Carri\u00f3n de los Condes, El Burgo Ranero, Villadangos del P\u00e1ramo, Rabanal del Camino, Villafranca del Bierzo, Triacastela, Portomar\u00edn y Arz\u00faa. En la mayor\u00eda de las etapas tendr\u00e1 que recorrer <strong>50 kil\u00f3metros o m\u00e1s cada d\u00eda<\/strong>.<\/p>\n<p>Tal como explica Gonzalo P\u00e9rez, sus <strong>objetivos<\/strong> son dos. \u201cEl primero, dar visibilidad a los ni\u00f1os y j\u00f3venes con ataxia telangiectasia, una enfermedad que les ha tocado por <em>\u201cloter\u00eda gen\u00e9tica\u201d<\/em> y cuya vida supone una dura lucha diaria y una dura cuenta atr\u00e1s. El segundo, intentar recaudar fondos para procurar dar esperanza a las familias, apoyando la investigaci\u00f3n para encontrar una cura o al menos un tratamiento que les ayude a tener una mejor calidad de vida\u201d.<\/p>\n<p>Para ello, Gonzalo est\u00e1 buscando <strong>empresas solidarias<\/strong> que apadrinen cada etapa de su reto a partir de 100 euros, y adem\u00e1s <strong><a href=\"https:\/\/www.migranodearena.org\/reto\/un-camino-por-aefat\">donaciones<\/a> de particulares<\/strong> a trav\u00e9s del reto publicado en una plataforma de recaudaci\u00f3n de fondos (<a href=\"https:\/\/www.migranodearena.org\/reto\/un-camino-por-aefat\">https:\/\/www.migranodearena.org\/reto\/un-camino-por-aefat<\/a>), donde ya ha recaudado m\u00e1s de 500 euros.<\/p>\n<p>Las donaciones, <strong>a beneficio de<\/strong>&nbsp;nuestra asociaci\u00f3n&nbsp;<strong><a href=\"https:\/\/www.aefat.es\/\">Aefat<\/a><\/strong>, que agrupa a las familias con ni\u00f1os y j\u00f3venes afectados por ataxia telangiectasia, ir\u00e1n destinadas a los proyectos de <a href=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2018\/09\/20\/investigacion\/\">investigaci\u00f3n<\/a> que estamos financiando.<\/p>\n<p>Este corredor solidario <strong>ya ha colaborado anteriormente con Aefat<\/strong>: logr\u00f3 otra haza\u00f1a en 2021, corriendo m\u00e1s de 200 km en tres d\u00edas por la Llanada Alavesa, y tambi\u00e9n particip\u00f3 con el Equipo Zurich Aefat en el <a href=\"https:\/\/www.youtube.com\/watch?v=s5ULvuM59wo&amp;t=23s\">Zurich Marat\u00f3n San Sebasti\u00e1n\/Donostia 2021<\/a>, empujando las sillas de los afectados durante esos 42 km.<\/p>\n<p><strong>Aefat<\/strong> es una asociaci\u00f3n sin \u00e1nimo de lucro creada en 2009 y declarada de utilidad p\u00fablica desde 2014, que est\u00e1 formada por casi 40 ni\u00f1os y j\u00f3venes con ataxia telangiectasia en Espa\u00f1a, sus familias y personas relacionadas. Luchan por la investigaci\u00f3n de la enfermedad y mejorar la calidad de vida de los afectados. Aefat pertenece a FEDER (Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras), FEDAES (Federaci\u00f3n de Ataxias de Espa\u00f1a) y la entidad internacional A-T Global Alliance (<a href=\"http:\/\/www.cureat.org\/\">www.cureat.org<\/a>).<\/p>\n<p><img decoding=\"async\" class=\" size-full wp-image-2503\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2022\/02\/Gonzalo_lleva_silla_de_chico_capucha_blanca_Equipo_Zurich_Aefat_en_Maraton_San_Sebastian_2021_-_llegando.jpg\" alt=\"Gonzalo P\u00e9rez Aefat Zurich Marat\u00f3n Donostia 2021 ataxia telangiectasia corredor\" style=\"display: block; margin-left: auto; margin-right: auto;\" width=\"1772\" height=\"1181\" srcset=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2022\/02\/Gonzalo_lleva_silla_de_chico_capucha_blanca_Equipo_Zurich_Aefat_en_Maraton_San_Sebastian_2021_-_llegando.jpg 1772w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2022\/02\/Gonzalo_lleva_silla_de_chico_capucha_blanca_Equipo_Zurich_Aefat_en_Maraton_San_Sebastian_2021_-_llegando-300x200.jpg 300w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2022\/02\/Gonzalo_lleva_silla_de_chico_capucha_blanca_Equipo_Zurich_Aefat_en_Maraton_San_Sebastian_2021_-_llegando-1024x682.jpg 1024w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2022\/02\/Gonzalo_lleva_silla_de_chico_capucha_blanca_Equipo_Zurich_Aefat_en_Maraton_San_Sebastian_2021_-_llegando-768x512.jpg 768w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2022\/02\/Gonzalo_lleva_silla_de_chico_capucha_blanca_Equipo_Zurich_Aefat_en_Maraton_San_Sebastian_2021_-_llegando-1536x1024.jpg 1536w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2022\/02\/Gonzalo_lleva_silla_de_chico_capucha_blanca_Equipo_Zurich_Aefat_en_Maraton_San_Sebastian_2021_-_llegando-18x12.jpg 18w\" sizes=\"(max-width: 1772px) 100vw, 1772px\" \/><\/p>\n","protected":false},"excerpt":{"rendered":"<p><img fetchpriority=\"high\" decoding=\"async\" class=\" alignleft size-full wp-image-2502\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2022\/02\/Gonzalo_Perez_1.jpg\" alt=\"Gonzalo P\u00e9rez 1\" width=\"337\" height=\"337\" style=\"margin: 10px; float: left;\" srcset=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2022\/02\/Gonzalo_Perez_1.jpg 768w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2022\/02\/Gonzalo_Perez_1-300x300.jpg 300w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2022\/02\/Gonzalo_Perez_1-150x150.jpg 150w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2022\/02\/Gonzalo_Perez_1-12x12.jpg 12w\" sizes=\"(max-width: 337px) 100vw, 337px\" \/>El corredor bilba\u00edno de ultra trail&nbsp;<strong>Gonzalo P\u00e9rez<\/strong>, de 47 a\u00f1os, quiere completar el Camino de Santiago corriendo 800 km en 16 d\u00edas seguidos, y adem\u00e1s llevando en su mochila todo lo necesario para su reto. Un reto tit\u00e1nico para recaudar fondos para la investigaci\u00f3n de la ataxia telangiectasia, como sab\u00e9is, una enfermedad rara que a\u00fan no tiene cura y que provoca una grave discapacidad f\u00edsica progresiva y una alta incidencia de c\u00e1ncer.&nbsp;<\/p>\n<p>Su intenci\u00f3n es completar el trayecto franc\u00e9s del Camino, desde el <strong>26 de marzo al 10 de abril<\/strong>, empezando en Saint Jean de Pied de Port (Francia) hasta Santiago de Compostela, y pasando por Roncesvalles, Pamplona, Estella, Logro\u00f1o, Santo Domingo de la Calzada, San Juan de Ortega, Hontanas, Carri\u00f3n de los Condes, El Burgo Ranero, Villadangos del P\u00e1ramo, Rabanal del Camino, Villafranca del Bierzo, Triacastela, Portomar\u00edn y Arz\u00faa. En la mayor\u00eda de las etapas tendr\u00e1 que recorrer <strong>50 kil\u00f3metros o m\u00e1s cada d\u00eda<\/strong>.<\/p>\n","protected":false},"author":1,"featured_media":2502,"comment_status":"closed","ping_status":"open","sticky":true,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[807],"tags":[185,225],"class_list":["post-2504","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-deporte-solidario","tag-murcia","tag-popular-tv-region-de-murcia"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Reto: Camino de Santiago corriendo por Aefat - Aefat<\/title>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Reto: Camino de Santiago corriendo por Aefat - Aefat\" \/>\n<meta property=\"og:description\" content=\"El corredor bilba\u00edno de ultra trail&nbsp;Gonzalo P\u00e9rez, de 47 a\u00f1os, quiere completar el Camino de Santiago corriendo 800 km en 16 d\u00edas seguidos, y adem\u00e1s llevando en su mochila todo lo necesario para su reto. Un reto tit\u00e1nico para recaudar fondos para la investigaci\u00f3n de la ataxia telangiectasia, como sab\u00e9is, una enfermedad rara que a\u00fan no tiene cura y que provoca una grave discapacidad f\u00edsica progresiva y una alta incidencia de c\u00e1ncer.&nbsp; Su intenci\u00f3n es completar el trayecto franc\u00e9s del Camino, desde el 26 de marzo al 10 de abril, empezando en Saint Jean de Pied de Port (Francia) hasta Santiago de Compostela, y pasando por Roncesvalles, Pamplona, Estella, Logro\u00f1o, Santo Domingo de la Calzada, San Juan de Ortega, Hontanas, Carri\u00f3n de los Condes, El Burgo Ranero, Villadangos del P\u00e1ramo, Rabanal del Camino, Villafranca del Bierzo, Triacastela, Portomar\u00edn y Arz\u00faa. 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Un reto tit\u00e1nico para recaudar fondos para la investigaci\u00f3n de la ataxia telangiectasia, como sab\u00e9is, una enfermedad rara que a\u00fan no tiene cura y que provoca una grave discapacidad f\u00edsica progresiva y una alta incidencia de c\u00e1ncer.&nbsp; Su intenci\u00f3n es completar el trayecto franc\u00e9s del Camino, desde el 26 de marzo al 10 de abril, empezando en Saint Jean de Pied de Port (Francia) hasta Santiago de Compostela, y pasando por Roncesvalles, Pamplona, Estella, Logro\u00f1o, Santo Domingo de la Calzada, San Juan de Ortega, Hontanas, Carri\u00f3n de los Condes, El Burgo Ranero, Villadangos del P\u00e1ramo, Rabanal del Camino, Villafranca del Bierzo, Triacastela, Portomar\u00edn y Arz\u00faa. 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