{"id":2529,"date":"2022-02-26T09:49:45","date_gmt":"2022-02-26T09:49:45","guid":{"rendered":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2022\/02\/26\/inscribete-webinar-ataxia-telangiectasia\/"},"modified":"2026-03-02T12:01:04","modified_gmt":"2026-03-02T12:01:04","slug":"inscribete-webinar-ataxia-telangiectasia","status":"publish","type":"post","link":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2022\/02\/26\/inscribete-webinar-ataxia-telangiectasia\/","title":{"rendered":"\u00a1Inscr\u00edbete! Webinar sobre la investigaci\u00f3n de la ataxia telangiectasia (7 de marzo)"},"content":{"rendered":"<p style=\"text-align: justify;\"><img fetchpriority=\"high\" decoding=\"async\" class=\" alignleft size-full wp-image-2527\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2022\/02\/Spotlight_Webinar_2022_Spanish_ataxia_telangiectasia.jpg\" alt=\"Spotlight Webinar 2022 Spanish ataxia telangiectasia\" width=\"509\" height=\"361\" style=\"margin: 10px; float: left;\" srcset=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2022\/02\/Spotlight_Webinar_2022_Spanish_ataxia_telangiectasia.jpg 1748w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2022\/02\/Spotlight_Webinar_2022_Spanish_ataxia_telangiectasia-300x213.jpg 300w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2022\/02\/Spotlight_Webinar_2022_Spanish_ataxia_telangiectasia-1024x726.jpg 1024w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2022\/02\/Spotlight_Webinar_2022_Spanish_ataxia_telangiectasia-768x545.jpg 768w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2022\/02\/Spotlight_Webinar_2022_Spanish_ataxia_telangiectasia-1536x1090.jpg 1536w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2022\/02\/Spotlight_Webinar_2022_Spanish_ataxia_telangiectasia-18x12.jpg 18w\" sizes=\"(max-width: 509px) 100vw, 509px\" \/>El pr\u00f3ximo <span style=\"color: #ff00ff;\"><strong>7 de marzo, de 17:00 a 19:00 h<\/strong><\/span>, se celebrar\u00e1 el webinar <span style=\"color: #ff00ff;\"><strong>gratuito<\/strong> <\/span>\u00ab<strong>Spotlight on AT<\/strong>\u00ab, donde algunos de los principales investigadores internacionales explicar\u00e1n sus actuales proyectos de investigaci\u00f3n relacionados con la ataxia telangiectasia. Tras el \u00e9xito del pasado evento en 2021, la asociaci\u00f3n inglesa <strong>Action for AT<\/strong> ha organizado de nuevo esta interesante iniciativa, en colaboraci\u00f3n con los miembros de la <strong>AT Global Alliance<\/strong>, de la que Aefat forma parte.&nbsp;<\/p>\n<p style=\"text-align: justify;\">Los investigadores <strong>Borja S\u00e1ez<\/strong>, de CIMA-Cl\u00ednica Universidad de Navarra, y <strong>Marc G\u00fcell<\/strong>, de la Universitat Pompeu Fabra, ser\u00e1n los primeros en intervenir para explicar el <a href=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2018\/09\/20\/investigacion\/\">proyecto de investigaci\u00f3n<\/a> que Aefat inici\u00f3 en 2018 y que la asociaci\u00f3n americana ATCP ha entrado a cofinanciar recientemente.<\/p>\n<p style=\"text-align: justify;\">El evento est\u00e1 dirigido a familias, que podr\u00e1n realizar preguntas, pero tambi\u00e9n a investigadores, cl\u00ednicos, especialistas y todos aquellos que est\u00e9n interesados en conocer la actualidad de las investigaciones en ataxia telangiectasia.<\/p>\n<p style=\"text-align: justify;\">El evento ser\u00e1 presentado de nuevo por <strong>Naga Munchetty<\/strong>, locutora y periodista brit\u00e1nica de la BBC, adem\u00e1s de colaboradora de Action for A-T,&nbsp;y por el <strong>Dr. Mark Toms<\/strong>,&nbsp;presidente del Comit\u00e9 Asesor de Investigaci\u00f3n de la asociaci\u00f3n inglesa, a los que tambi\u00e9n agradecemos enormemente su colaboraci\u00f3n.<\/p>\n<p style=\"text-align: justify;\"><span style=\"color: #ff00ff;\"><strong>FUNCIONAMIENTO<\/strong><\/span>:<\/p>\n<p style=\"text-align: justify;\">El webinar se desarrollar\u00e1 a trav\u00e9s de una sencilla herramienta online que se llama&nbsp;<strong>Slido<\/strong>, a la que se puede acceder a trav\u00e9s de cualquier navegador web sin necesidad de descarga previa. La plataforma permite al p\u00fablico ver las presentaciones, realizar preguntas dentro de la misma ventana y votar las preguntas que m\u00e1s les interesan. Los participantes pueden permanecer en el anonimato si lo desean.<\/p>\n<p style=\"text-align: justify;\"><span style=\"color: #ff00ff;\"><strong>TRADUCCI\u00d3N GRATUITA AL ESPA\u00d1OL:<\/strong><\/span><\/p>\n<p style=\"text-align: justify;\">El webinar ser\u00e1 en ingl\u00e9s, pero <strong>Aefat proporcionar\u00e1&nbsp;traducci\u00f3n simult\u00e1nea gratuita al espa\u00f1ol&nbsp;<\/strong>a las personas (familiares, profesionales sanitarios, investigadores&#8230;) de cualquier pa\u00eds que lo necesiten y escriban un email <strong>antes del 6 de marzo<\/strong> a <strong>ae<span id=\"cloak9120d84786976b7064c9126b0e497a05\"><strong>fatcomunicacion<\/strong>@gmail.com<\/span><\/strong>&nbsp;con el asunto <strong>Webinar 7 marzo<\/strong> (indicando nombre completo, indicar si es familiar o profesional, y pa\u00eds de procedencia). Los interesados recibir\u00e1n un enlace a la traducci\u00f3n en directo por Zoom (conexi\u00f3n de audio).<\/p>\n<p style=\"text-align: justify;\"><span style=\"color: #ff00ff;\"><strong>INSCRIPCI\u00d3N GRATUITA:<\/strong><\/span><\/p>\n<p style=\"text-align: justify;\">iNSCR\u00cdBETE AHORA EN LA WEB DE ACTION FOR A-T <a href=\"https:\/\/crm.actionforat.org\/civicrm\/event\/register?id=132&amp;reset=1\"><strong>AQU\u00cd<\/strong><\/a>.<\/p>\n<p style=\"text-align: justify;\">Los participantes recibir\u00e1n un email con el enlace al webinar unos d\u00edas antes del evento y tendr\u00e1n acceso a una versi\u00f3n grabada del evento posterior al seminario web.<\/p>\n<p style=\"text-align: justify;\"><strong>\u00a1Os esperamos!<\/strong> Es una oportunidad \u00fanica para conocer de cerca algunos de los proyectos internacionales que se est\u00e1n desarrollando. Agradecemos a Action for A-T que organice y comparta esta iniciativa, y a todos los ponentes y colaboradores por su apoyo.<\/p>\n<p><img decoding=\"async\" class=\" size-full wp-image-2528\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2022\/02\/webinar_ataxia_telangiectasia_Agenda__7_marzo-scaled.jpg\" alt=\"webinar ataxia telangiectasia Agenda 7 marzo\" style=\"display: block; margin-left: auto; margin-right: auto;\" width=\"2560\" height=\"1497\" srcset=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2022\/02\/webinar_ataxia_telangiectasia_Agenda__7_marzo-scaled.jpg 2560w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2022\/02\/webinar_ataxia_telangiectasia_Agenda__7_marzo-300x175.jpg 300w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2022\/02\/webinar_ataxia_telangiectasia_Agenda__7_marzo-1024x599.jpg 1024w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2022\/02\/webinar_ataxia_telangiectasia_Agenda__7_marzo-768x449.jpg 768w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2022\/02\/webinar_ataxia_telangiectasia_Agenda__7_marzo-1536x898.jpg 1536w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2022\/02\/webinar_ataxia_telangiectasia_Agenda__7_marzo-2048x1197.jpg 2048w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2022\/02\/webinar_ataxia_telangiectasia_Agenda__7_marzo-18x12.jpg 18w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/p>\n<p style=\"text-align: justify;\">Publicaci\u00f3n original en la web de&nbsp;<a href=\"https:\/\/actionforat.org\/2022-03-07-spotlighta-t\/\">Action for A-T.<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p style=\"text-align: justify;\"><img fetchpriority=\"high\" decoding=\"async\" class=\" alignleft size-full wp-image-2527\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2022\/02\/Spotlight_Webinar_2022_Spanish_ataxia_telangiectasia.jpg\" alt=\"Spotlight Webinar 2022 Spanish ataxia telangiectasia\" width=\"509\" height=\"361\" style=\"margin: 10px; float: left;\" srcset=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2022\/02\/Spotlight_Webinar_2022_Spanish_ataxia_telangiectasia.jpg 1748w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2022\/02\/Spotlight_Webinar_2022_Spanish_ataxia_telangiectasia-300x213.jpg 300w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2022\/02\/Spotlight_Webinar_2022_Spanish_ataxia_telangiectasia-1024x726.jpg 1024w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2022\/02\/Spotlight_Webinar_2022_Spanish_ataxia_telangiectasia-768x545.jpg 768w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2022\/02\/Spotlight_Webinar_2022_Spanish_ataxia_telangiectasia-1536x1090.jpg 1536w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2022\/02\/Spotlight_Webinar_2022_Spanish_ataxia_telangiectasia-18x12.jpg 18w\" sizes=\"(max-width: 509px) 100vw, 509px\" \/>El pr\u00f3ximo <span style=\"color: #ff00ff;\"><strong>7 de marzo, de 17:00 a 19:00 h<\/strong><\/span>, se celebrar\u00e1 el webinar <span style=\"color: #ff00ff;\"><strong>gratuito<\/strong> <\/span>\u00ab<strong>Spotlight on AT<\/strong>\u00ab, donde algunos de los principales investigadores internacionales explicar\u00e1n sus actuales proyectos de investigaci\u00f3n relacionados con la ataxia telangiectasia. Tras el \u00e9xito del pasado evento en 2021, la asociaci\u00f3n inglesa <strong>Action for AT<\/strong> ha organizado de nuevo esta interesante iniciativa, en colaboraci\u00f3n con los miembros de la <strong>AT Global Alliance<\/strong>, de la que Aefat forma parte.&nbsp;<\/p>\n","protected":false},"author":1,"featured_media":2527,"comment_status":"closed","ping_status":"open","sticky":true,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[811],"tags":[165,193,74],"class_list":["post-2529","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-investigacion","tag-20-minutos","tag-carrera-solidaria-de-malaga","tag-puerto-de-la-torre"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>\u00a1Inscr\u00edbete! 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Tras el \u00e9xito del pasado evento en 2021, la asociaci\u00f3n inglesa Action for AT ha organizado de nuevo esta interesante iniciativa, en colaboraci\u00f3n con los miembros de la AT Global Alliance, de la que Aefat forma parte.&nbsp;\" \/>\n<meta property=\"og:url\" content=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2022\/02\/26\/inscribete-webinar-ataxia-telangiectasia\/\" \/>\n<meta property=\"og:site_name\" content=\"Aefat\" \/>\n<meta property=\"article:published_time\" content=\"2022-02-26T09:49:45+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2026-03-02T12:01:04+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2022\/02\/Spotlight_Webinar_2022_Spanish_ataxia_telangiectasia.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1748\" \/>\n\t<meta property=\"og:image:height\" content=\"1240\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"admin\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Escrito por\" \/>\n\t<meta name=\"twitter:data1\" content=\"admin\" \/>\n\t<meta name=\"twitter:label2\" content=\"Tiempo de lectura\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutos\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2022\/02\/26\/inscribete-webinar-ataxia-telangiectasia\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2022\/02\/26\/inscribete-webinar-ataxia-telangiectasia\/\"},\"author\":{\"name\":\"admin\",\"@id\":\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/#\/schema\/person\/d75277649f873b670821832f92709a5f\"},\"headline\":\"\u00a1Inscr\u00edbete! 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