{"id":2669,"date":"2023-04-12T19:24:19","date_gmt":"2023-04-12T19:24:19","guid":{"rendered":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2023\/04\/12\/evento-solidario-sevilla-15-de-abril\/"},"modified":"2026-03-03T11:33:37","modified_gmt":"2026-03-03T11:33:37","slug":"evento-solidario-sevilla-15-de-abril","status":"publish","type":"post","link":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2023\/04\/12\/evento-solidario-sevilla-15-de-abril\/","title":{"rendered":"Evento solidario en Sevilla este s\u00e1bado, 15 de abril"},"content":{"rendered":"

\"CartelLa Plaza de Santa Mar\u00eda del Reposo<\/strong> de Sevilla<\/strong> ser\u00e1 el escenario este s\u00e1bado, 15 de abril, de una fiesta por la esperanza. Un evento solidario que ha organizado la familia de Ana, una de las ni\u00f1as peque\u00f1as que tenemos en Sevilla, para recaudar fondos para la investigaci\u00f3n de la ataxia telangiectasia.<\/p>\n

A partir de las 11 de la ma\u00f1ana<\/strong> y durante toda la jornada habr\u00e1 actividades para los ni\u00f1os como concurso de disfraces y pintacaras, ambig\u00fa con \u00abprecios populares\u00bb, paella y hamburguesas para comer, un sorteo de un lote con bebidas seleccionadas, una paletilla y productos ib\u00e9ricos…. Y lo que m\u00e1s se valora en estas ocasiones, la presencia de familiares, amigos y colaboradores que ya han mostrado su apoyo, al igual que otras familias de Sevilla con hijos con ataxia telangiectasia, que tambi\u00e9n asistir\u00e1n.<\/p>\n

Cuenta Jos\u00e9 Carlos, pap\u00e1 de Ana, que la idea de este evento ben\u00e9fico surgi\u00f3 de sus amigos Alexis y Nuria. En cuanto se pusieron todos manos a la obra para organizar la jornada solidaria, aparecieron colaboradores de empresas o entidades como \u00abJes\u00fas de la Humildad\u00bb, Servicios Inmobiliarios Inmobalia, Cervecer\u00eda Adri\u00e1n, Send\u00edn Centro de Belleza, Bebidas Sevilla, Mes\u00f3n La Bolera o Peluquer\u00eda Serychi<\/strong>.<\/p>\n

Todos los beneficios de este evento soldiario ir\u00e1n destinados a la financiaci\u00f3n de los proyectos de investigaci\u00f3n<\/a> en los que Aefat est\u00e1 invirtiendo, con la esperanza de encontrar una cura o tratamiento para esta enfermedad rara, gen\u00e9tica y neurodegenerativa.<\/p>\n

Tambi\u00e9n se vender\u00e1 nuestra CERVEZA ESPERANZA<\/strong><\/a>, que puedes adquirir online en cualquier momento aqu\u00ed<\/a>.<\/p>\n

Adem\u00e1s, en este evento tambi\u00e9n se recoger\u00e1n tapones de pl\u00e1stico para reciclar<\/strong>, como parte de la campa\u00f1a <\/a>de tapones solidarios que est\u00e1 desarrollando esta misma familia. As\u00ed que pod\u00e9is llevar vuestras bolsas con tapones si quer\u00e9is colaborar.<\/p>\n

\u00a1Os esperamos all\u00ed!<\/p>\n

\u00a1MUCHAS GRACIAS A LA FAMILIA DE ANA POR ORGANIZAR ESTE BONITO EVENTO Y A TODOS POR COLABORAR!<\/span><\/p>\n

\"Espacio_evento_Sevilla_15_abril_a_favor_de_Aefat.jpg\"<\/p>\n

Plaza de Santa Mar\u00eda del Reposo, donde se celebrar\u00e1 el evento<\/span><\/h5>\n

\"Ana_de_Sevilla_4_a\u00f1os_AEFAT_ataxia_telangiectasia.jpg\"<\/p>\n

Ana, de Sevilla, con su padre<\/b><\/span><\/span><\/span><\/h5>\n

 <\/p>\n

LA ATAXIA TELANGIECTASIA Y AEFAT<\/strong><\/span><\/h5>\n

La AT es la ataxia telangiectasia<\/strong>, una enfermedad rara, gen\u00e9tica, neurodegenerativa y devastadora que a\u00fan no tiene cura ni tratamiento. Provoca una grave discapacidad f\u00edsica progresiva y una alta incidencia de c\u00e1ncer, entre otras complicaciones. Afecta a cinco ni\u00f1os y j\u00f3venes en Sevilla, y a unos 40 ni\u00f1os y j\u00f3venes en Espa\u00f1a. Todos los afectados tienen entre pocos meses y menos de 40 a\u00f1os.<\/p>\n

Para los que no nos conoc\u00e9is, Aefat<\/strong> es una asociaci\u00f3n sin \u00e1nimo de lucro creada en 2009 y Declarada de Utilidad P\u00fablica desde 2014. Luchamos por la investigaci\u00f3n de la ataxia telangiectasia y por mejorar la calidad de vida de los afectados. Aefat pertenece a FEDER (Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras), FEDAES (Federaci\u00f3n de Ataxias de Espa\u00f1a) y la entidad internacional A-T Global Alliance (www.cureat.org<\/a>).<\/p>\n","protected":false},"excerpt":{"rendered":"

\"CartelLa Plaza de Santa Mar\u00eda del Reposo<\/strong> de Sevilla<\/strong> ser\u00e1 el escenario este s\u00e1bado, 15 de abril, de una fiesta por la esperanza. Un evento solidario que ha organizado la familia de Ana, una de las ni\u00f1as peque\u00f1as que tenemos en Sevilla, para recaudar fondos para la investigaci\u00f3n de la ataxia telangiectasia.<\/p>\n

A partir de las 11 de la ma\u00f1ana<\/strong> y durante toda la jornada habr\u00e1 actividades para los ni\u00f1os como concurso de disfraces y pintacaras, ambig\u00fa con \u00abprecios populares\u00bb, paella y hamburguesas para comer, un sorteo de un lote con bebidas seleccionadas, una paletilla y productos ib\u00e9ricos…. Y lo que m\u00e1s se valora en estas ocasiones, la presencia de familiares, amigos y colaboradores que ya han mostrado su apoyo, al igual que otras familias de Sevilla con hijos con ataxia telangiectasia, que tambi\u00e9n asistir\u00e1n.<\/p>\n","protected":false},"author":1,"featured_media":2666,"comment_status":"closed","ping_status":"open","sticky":true,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[51],"tags":[60,123,252,125,466,64,124,166],"class_list":["post-2669","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-actividades-solidarias","tag-aefat","tag-donostia","tag-el-diario","tag-equipo-zurich-at","tag-evento-solidario","tag-maraton","tag-san-sebastian","tag-zurich-maraton"],"acf":[],"yoast_head":"\nEvento solidario en Sevilla este s\u00e1bado, 15 de abril - Aefat<\/title>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Evento solidario en Sevilla este s\u00e1bado, 15 de abril - Aefat\" \/>\n<meta property=\"og:description\" content=\"La Plaza de Santa Mar\u00eda del Reposo de Sevilla ser\u00e1 el escenario este s\u00e1bado, 15 de abril, de una fiesta por la esperanza. 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