{"id":2673,"date":"2023-04-13T17:01:26","date_gmt":"2023-04-13T17:01:26","guid":{"rendered":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2023\/04\/13\/irabien-padre-hijo-nuevo-reto-por-aefat\/"},"modified":"2026-03-02T12:00:40","modified_gmt":"2026-03-02T12:00:40","slug":"irabien-padre-hijo-nuevo-reto-por-aefat","status":"publish","type":"post","link":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2023\/04\/13\/irabien-padre-hijo-nuevo-reto-por-aefat\/","title":{"rendered":"Los Irabien, padre e hijo, organizan un nuevo reto por Aefat"},"content":{"rendered":"

\"JaviLos deportistas solidarios ordu\u00f1enses Javi y Xabi Irabien<\/strong>, padre e hijo, vuelven a plantear un reto solidario en Ordu\u00f1a\/Urdu\u00f1a (Bizkaia) por nuestra asociaci\u00f3n, para apoyar la investigaci\u00f3n de la ataxia telangiectasia, el pr\u00f3ximo 23 de abril.<\/p>\n

Lo han llamado \u00abPaso a paso\u00bb e intentar\u00e1n caminar durante 12 horas seguidas, dando vueltas a un circuito circular de 10 km. <\/strong>En cada vuelta se podr\u00e1n sumar los participantes que deseen colaborar<\/strong>, ya que la ruta es apta para toda la familia. <\/strong>Una sola vuelta o las que cada uno quiera. Y Javi y Xabi ir\u00e1n a la cabeza del grupo.<\/p>\n

Los participantes realizar\u00e1n una donaci\u00f3n solidaria de 10 euros<\/strong> y se llevar\u00e1n un regalo sorpresa. Adem\u00e1s, habr\u00e1 animaci\u00f3n constante en la Foru Plaza de Ordu\u00f1a, lugar de salida y meta del circuito.<\/p>\n

La ruta<\/strong> pasar\u00e1 por Arbieto, por las pistas de la parcelaria, hasta llegar a Artoma\u00f1a y pasar\u00e1 por la casa de Hodei, uno de los chicos afectados por ataxia telangiectasia en Euskadi. El regreso ser\u00e1 por la parcelaria y el convento de Santa Clara para terminar en la Foru plaza, por donde Javi y Xabi Irabien pasar\u00e1n cada 2h y media aproximadamente, y donde se podr\u00e1n sumar nuevos participantes.<\/p>\n

\"CartelObjetivos<\/strong> del reto:<\/p>\n

– Llenar las 12 horas<\/strong> con participantes realizando el circuito de 10 km<\/p>\n

– Dar visibilidad a la ataxia telangiectasia<\/strong>, una enfermedad gen\u00e9tica, rara y neurodegenerativa que a\u00fan no tiene cura ni tratamiento, y que provoca una grave discapacidad f\u00edsica progresiva, inmunodeficiencia y m\u00e1s probabilidad de c\u00e1ncer. Afecta a dos chicos en Euskadi y a unos 40 ni\u00f1os y j\u00f3venes en todo el Estado<\/p>\n

– Recaudar fondos<\/strong> (con los participantes de forma presencial o en este enlace<\/strong><\/a> en la plataforma Migranodearena de forma online) para apoyar la financiaci\u00f3n de proyectos de investigaci\u00f3n<\/a> que est\u00e1 realizando Aefat<\/p>\n

Animaci\u00f3n en la Foru Plaza de Urdu\u00f1a<\/strong>: durante las 12 horas habr\u00e1 barra de bar atendida por la Sociedad de Txokos Olaran, animaci\u00f3n infantil, exhibici\u00f3n de txalaparta, del grupo de danzas de Ordu\u00f1a, y del grupo de txistularis, juegos de madera de Kalaka\u2026<\/p>\n

No es el primer reto<\/strong> de Javi y Xabi por Aefat, asociaci\u00f3n con la que colaboran asiduamente, aunque los anteriores fueron de ciclismo. En 2020 realizaron el \u00abCamino de Santiago en t\u00e1ndem<\/a>\u00bb y en 2021 el reto \u00ab120 km por Aefat<\/a>\u00bb junto a SpiderAbel.<\/p>\n

Muchas gracias<\/strong> desde AEFAT a los Irabien por apoyarnos de nuevo, a I\u00f1aki por ayudar en la organizaci\u00f3n, a Gartzen por el cartel, a todos los colaboradores y a todos los que vais a ayudar o participar. <\/span><\/p>\n

– – – – – – – – – – – – – – – – – – – – – – – – – – – – – – — – – – – – – — – – – – – – – — – – – – – – – – – – – – — – – – – – – — – – – – — – – – – – – – – — – – <\/p>\n

El reto ya ha sido publicado en algunos medios como DEIA<\/a>.<\/p>\n

\"2023<\/p>\n","protected":false},"excerpt":{"rendered":"

\"JaviLos deportistas solidarios ordu\u00f1enses Javi y Xabi Irabien<\/strong>, padre e hijo, vuelven a plantear un reto solidario en Ordu\u00f1a\/Urdu\u00f1a (Bizkaia) por nuestra asociaci\u00f3n, para apoyar la investigaci\u00f3n de la ataxia telangiectasia, el pr\u00f3ximo 23 de abril.<\/p>\n

Lo han llamado \u00abPaso a paso\u00bb e intentar\u00e1n caminar durante 12 horas seguidas, dando vueltas a un circuito circular de 10 km. <\/strong>En cada vuelta se podr\u00e1n sumar los participantes que deseen colaborar<\/strong>, ya que la ruta es apta para toda la familia. <\/strong>Una sola vuelta o las que cada uno quiera. Y Javi y Xabi ir\u00e1n a la cabeza del grupo.<\/p>\n

Los participantes realizar\u00e1n una donaci\u00f3n solidaria de 10 euros<\/strong> y se llevar\u00e1n un regalo sorpresa. Adem\u00e1s, habr\u00e1 animaci\u00f3n constante en la Foru Plaza de Ordu\u00f1a, lugar de salida y meta del circuito.<\/p>\n","protected":false},"author":1,"featured_media":2670,"comment_status":"closed","ping_status":"open","sticky":true,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[806],"tags":[627,60,278,252,579,62,271,489,188,626,336,25,517,490],"class_list":["post-2673","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-afectados-y-familias","tag-12-horas","tag-aefat","tag-ataxia-telangientasia","tag-el-diario","tag-enfermedad-genetica","tag-enfermedades-raras","tag-hodei","tag-javi-irabien","tag-jon","tag-paso-a-paso","tag-reto","tag-reto-solidario","tag-urduna","tag-xabier-irabien"],"acf":[],"yoast_head":"\nLos Irabien, padre e hijo, organizan un nuevo reto por Aefat - Aefat<\/title>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Los Irabien, padre e hijo, organizan un nuevo reto por Aefat - Aefat\" \/>\n<meta property=\"og:description\" content=\"Los deportistas solidarios ordu\u00f1enses Javi y Xabi Irabien, padre e hijo, vuelven a plantear un reto solidario en Ordu\u00f1a\/Urdu\u00f1a (Bizkaia) por nuestra asociaci\u00f3n, para apoyar la investigaci\u00f3n de la ataxia telangiectasia, el pr\u00f3ximo 23 de abril. 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