{"id":2701,"date":"2023-06-12T11:03:06","date_gmt":"2023-06-12T11:03:06","guid":{"rendered":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2023\/06\/12\/subasta-ics-madrid\/"},"modified":"2026-03-02T12:00:40","modified_gmt":"2026-03-02T12:00:40","slug":"subasta-ics-madrid","status":"publish","type":"post","link":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2023\/06\/12\/subasta-ics-madrid\/","title":{"rendered":"M\u00e1s de 27.500 euros gracias al centro educativo ICS Madrid"},"content":{"rendered":"

\"aefatUna vez m\u00e1s, la comunidad educativa de este prestigioso centro madrile\u00f1o se ha volcado con la investigaci\u00f3n de la ataxia telangiectasia.  Gracias a la subasta organizada por ICS Madrid, con motivo de la gala de primavera del pasado 21 de abril, Aefat ha recibido 27.575 euros<\/strong> que ser\u00e1n destinados a uno de los proyectos de investigaci\u00f3n que nuestra asociaci\u00f3n cofinancia con la asociaci\u00f3n inglesa Action for A-T en Granada.<\/p>\n

La ICS Spring Gala <\/strong>volvi\u00f3 a demostrar la solidaridad de las familias de este centro educativo madrile\u00f1o que cuenta con alumnos de 70 nacionalidades. Durante la gala se subastaron m\u00e1s de 50 productos<\/strong> y servicios<\/strong> donados por empresas colaboradoras, padres del centro educativo y contactos de nuestras familias de Aefat.<\/p>\n

Queremos agradecer<\/strong> enormemente a todas las familias de ICS Madrid su generosidad, porque su apoyo ha sido decisivo. Y tambi\u00e9n el esfuerzo y entusiasmo demostrado por los organizadores, la asociaci\u00f3n de padres de ICS<\/strong><\/a> Madrid<\/strong>, coordinada excelentemente por Susie Shillingford, y la asociaci\u00f3n inglesa Action for A-T<\/a><\/strong>, con Sean y David, que colabora habitualmente con nosotros dentro de la A-T Global Alliance<\/a>. <\/p>\n

\"subastaLa recaudaci\u00f3n del evento solidario contribuir\u00e1 a la financiaci\u00f3n del proyecto de investigaci\u00f3n <\/a>de terapia g\u00e9nica en ataxia telangiectasia<\/strong> liderado por el profesor Ignacio Molina<\/strong>, catedr\u00e1tico de Inmunolog\u00eda de la Universidad de Granada e investigador del Centro de Investigaci\u00f3n Biom\u00e9dica. Un proyecto que est\u00e1 siendo financiado desde 2015 por la asociaci\u00f3n inglesa Action for A-T. El grupo de Granada utiliza unas herramientas de transferencia g\u00e9nica denominadas \u201ctransposones<\/strong>\u201d que podr\u00edan desarrollar las condiciones para reconstituir las c\u00e9lulas de los pacientes, y as\u00ed mejorar su inmunodeficiencia, y en consecuencia la calidad de vida de los afectados por esta enfermedad neurodegenerativa que a\u00fan no tiene cura ni tratamiento.<\/p>\n

Por parte de Aefat, algunos de nuestros chicos y chicas con ataxia telangiectasia quisieron manifestar su agradecimiento a las familias de ICS Madrid al final de este v\u00eddeo<\/strong> en el que se explica adem\u00e1s qu\u00e9 es la ataxia telangiectasia y qu\u00e9 actividades desarrolla Aefat.<\/p>\n

\"portada<\/a><\/p>\n

 <\/p>\n

All\u00ed mismo en el evento estuvieron presentes Patxi Vill\u00e9n, presidente de Aefat, y su hijo Jon<\/strong>, afectado con ataxia telangiectasia, en nombre de todas las familias.<\/p>\n

\"Patxi<\/p>\n

\"Patxi<\/strong><\/span><\/h4>\n

 <\/h4>\n

EMPRESAS COLABORADORAS<\/strong><\/span><\/h4>\n

Queremos agradecer tambi\u00e9n a las familias que buscaron contactos, y a los deportistas y empresas solidarias que quisieron aportar alg\u00fan premio para subastar en este evento:<\/p>\n\n\n\n\n\n\n\n\n\n\n\n\n\n
\n
\n
\n
\n
\n
    \n
  • El escultor Paco Hern\u00e1ndez Toro, de M\u00e1laga (padre de uno de nuestros chicos afectados), don\u00f3 una bonita escultura realizada con hierro<\/li>\n<\/ul>\n<\/td>\n<\/tr>\n
\n
\n
    \n
  • Una de nuestras familias de Barcelona don\u00f3 dos esculturas de Lladr\u00f3<\/li>\n<\/ul>\n<\/td>\n<\/tr>\n
\n
\n
\n
 <\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n

ALGUNAS IM\u00c1GENES DE LOS REGALOS DONADOS<\/strong><\/span><\/h4>\n

 <\/p>\n

\"Flamenco<\/p>\n

Vestido de flamenca de Rosa Pedroche<\/p>\n

\"esperanza<\/p>\n

Pack Cerveza Esperanza<\/p>\n

\"Cherrycool\"<\/p>\n

Tarjeta que acompa\u00f1aba a las bonitas botas donatas por Cherry Cool<\/p>\n

\"Francesco<\/p>\n

Conjunto de botas, calcetines y pantalones donados por el gran portero Francesco Bardi<\/p>\n

\"6<\/p>\n

Gran vino blanco donado por la Bodega Santa Cruz de Alpera, Albacete<\/p>\n

\"Manuel<\/p>\n

Raqueta y foto firmadas, donadas por uno de los mitos del tenis, Manuel Orantes<\/p>\n

\"Paco<\/p>\n

Escultura en hierro donada por el artista Paco Hern\u00e1ndez<\/p>\n

 <\/p>\n

\u00a1GRACIAS A TODOS!<\/strong><\/span><\/p>\n","protected":false},"excerpt":{"rendered":"

\"aefatUna vez m\u00e1s, la comunidad educativa de este prestigioso centro madrile\u00f1o se ha volcado con la investigaci\u00f3n de la ataxia telangiectasia.  Gracias a la subasta organizada por ICS Madrid, con motivo de la gala de primavera del pasado 21 de abril, Aefat ha recibido 27.575 euros<\/strong> que ser\u00e1n destinados a uno de los proyectos de investigaci\u00f3n que nuestra asociaci\u00f3n cofinancia con la asociaci\u00f3n inglesa Action for A-T en Granada.<\/p>\n

La ICS Spring Gala <\/strong>volvi\u00f3 a demostrar la solidaridad de las familias de este centro educativo madrile\u00f1o que cuenta con alumnos de 70 nacionalidades. Durante la gala se subastaron m\u00e1s de 50 productos<\/strong> y servicios<\/strong> donados por empresas colaboradoras, padres del centro educativo y contactos de nuestras familias de Aefat.<\/p>\n

Queremos agradecer<\/strong> enormemente a todas las familias de ICS Madrid su generosidad, porque su apoyo ha sido decisivo. Y tambi\u00e9n el esfuerzo y entusiasmo demostrado por los organizadores, la asociaci\u00f3n de padres de ICS<\/strong><\/a> Madrid<\/strong>, coordinada excelentemente por Susie Shillingford, y la asociaci\u00f3n inglesa Action for A-T<\/a><\/strong>, con Sean y David, que colabora habitualmente con nosotros dentro de la A-T Global Alliance<\/a>. <\/p>\n","protected":false},"author":1,"featured_media":2690,"comment_status":"closed","ping_status":"open","sticky":true,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[813],"tags":[258,60,192,278,640,125,61,637,639,641,638,188,628,197],"class_list":["post-2701","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-campanas-y-financiacion","tag-action-for-a-t","tag-aefat","tag-alex","tag-ataxia-telangientasia","tag-centro-educativo","tag-equipo-zurich-at","tag-german","tag-ics-madrid","tag-ics-spring-gala","tag-international-college","tag-isc","tag-jon","tag-madrid","tag-sevilla"],"acf":[],"yoast_head":"\nM\u00e1s de 27.500 euros gracias al centro educativo ICS Madrid - Aefat<\/title>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"M\u00e1s de 27.500 euros gracias al centro educativo ICS Madrid - Aefat\" \/>\n<meta property=\"og:description\" content=\"Una vez m\u00e1s, la comunidad educativa de este prestigioso centro madrile\u00f1o se ha volcado con la investigaci\u00f3n de la ataxia telangiectasia.  Gracias a la subasta organizada por ICS Madrid, con motivo de la gala de primavera del pasado 21 de abril, Aefat ha recibido 27.575 euros que ser\u00e1n destinados a uno de los proyectos de investigaci\u00f3n que nuestra asociaci\u00f3n cofinancia con la asociaci\u00f3n inglesa Action for A-T en Granada. 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