{"id":2913,"date":"2024-11-12T09:52:57","date_gmt":"2024-11-12T09:52:57","guid":{"rendered":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2024\/11\/12\/premio-aelmhu-2024\/"},"modified":"2026-03-02T11:59:51","modified_gmt":"2026-03-02T11:59:51","slug":"premio-aelmhu-2024","status":"publish","type":"post","link":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2024\/11\/12\/premio-aelmhu-2024\/","title":{"rendered":"Recibimos el Premio AELMHU 2024 por nuestro proyecto de participaci\u00f3n en maratones"},"content":{"rendered":"<p><img fetchpriority=\"high\" decoding=\"async\" class=\" size-full wp-image-2899\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-214-scaled.jpg\" alt=\"premios aelmhu 2024 214\" width=\"2560\" height=\"1707\" srcset=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-214-scaled.jpg 2560w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-214-300x200.jpg 300w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-214-1024x683.jpg 1024w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-214-768x512.jpg 768w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-214-1536x1024.jpg 1536w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-214-2048x1365.jpg 2048w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-214-18x12.jpg 18w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/p>\n<p>?El pasado 6 de noviembre recibimos en Madrid el Premio AELMHU 2024 al \u201cMejor proyecto de difusi\u00f3n y sensibilizaci\u00f3n sobre enfermedades raras\u201d, por nuestro proyecto de deporte inclusivo de participaci\u00f3n en maratones, el Equipo Zurich Aefat.<\/p>\n<p>??\u200d???\u200d???\u200d\u2642\ufe0f??\u200d\u2640\ufe0f8 a\u00f1os, 30 maratones, m\u00e1s de 30 familias de Aefat implicadas, m\u00e1s de 200 corredores solidarios excepcionales y m\u00e1s de 500 publicaciones en medios de comunicaci\u00f3n.<\/p>\n<p>?El Premio fue recogido, en nombre de familias y corredores, por la periodista <em>freelance<\/em> oscense Rosa Casbas, nuestra responsable de Comunicaci\u00f3n de Aefat y coordinadora de todas las gestiones del Equipo de maratones desde el inicio, hace 8 a\u00f1os.&nbsp; Subi\u00f3 al escenario en compa\u00f1\u00eda de su sobrino \u00c1lvaro, de Terrassa (Barcelona), uno de los afectados con ataxia telangiectasia.<\/p>\n<p>&nbsp;<\/p>\n<p><img decoding=\"async\" class=\" size-full wp-image-2900\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-340-scaled.jpg\" alt=\"premios aelmhu 2024 340\" width=\"3300\" height=\"2200\" style=\"display: block; margin: 10px auto;\" srcset=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-340-scaled.jpg 2560w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-340-300x200.jpg 300w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-340-1024x683.jpg 1024w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-340-768x512.jpg 768w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-340-1536x1024.jpg 1536w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-340-2048x1365.jpg 2048w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-340-18x12.jpg 18w\" sizes=\"(max-width: 3300px) 100vw, 3300px\" \/><img decoding=\"async\" class=\" size-full wp-image-2901\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-226-scaled.jpg\" alt=\"premios aelmhu 2024 226\" width=\"3300\" height=\"2200\" style=\"display: block; margin: 10px auto;\" srcset=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-226-scaled.jpg 2560w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-226-300x200.jpg 300w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-226-1024x683.jpg 1024w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-226-768x512.jpg 768w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-226-1536x1024.jpg 1536w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-226-2048x1365.jpg 2048w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-226-18x12.jpg 18w\" sizes=\"(max-width: 3300px) 100vw, 3300px\" \/><br \/>??????\u00a1Enhorabuena al resto de los premiados! El gran investigador Llu\u00eds Montoliu, Jos\u00e9 Luis Poveda (gerente del Hospital La Fe de Valencia), la&nbsp;Fundaci\u00f3n Ana Carolina D\u00edez Mahou y bonito homenaje p\u00f3stumo al Dr. Torrent-Farnell.\u2764\ufe0fUn orgullo coincidir con vosotros, admiramos vuestro trabajo.<\/p>\n<p>?? Estos Premios reconocen las contribuciones m\u00e1s destacadas de instituciones, asociaciones de pacientes y profesionales de la salud al \u00e1mbito de las enfermedades raras para mejorar la salud y la calidad de vida de millones de personas.<\/p>\n<p>\u2764\ufe0f Los afectados por la DANA estuvieron presentes en todos los emotivos discursos de los premiados, incluyendo la brillante presentaci\u00f3n realizada por la periodista&nbsp;<a href=\"https:\/\/www.instagram.com\/maria3rey\/\" class=\"x1i10hfl xjbqb8w x1ejq31n xd10rxx x1sy0etr x17r0tee x972fbf xcfux6l x1qhh985 xm0m39n x9f619 x1ypdohk xt0psk2 xe8uvvx xdj266r x11i5rnm xat24cr x1mh8g0r xexx8yu x4uap5 x18d9i69 xkhd6sd x16tdsg8 x1hl2dhg xggy1nq x1a2a7pz notranslate _a6hd\" tabindex=\"0\" role=\"link\">@maria3rey<\/a><\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\" size-full wp-image-2902\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-205-scaled.jpg\" alt=\"premios_aelmhu_2024-205.jpg\" width=\"3300\" height=\"2200\" style=\"display: block; margin-left: auto; margin-right: auto;\" srcset=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-205-scaled.jpg 2560w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-205-300x200.jpg 300w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-205-1024x683.jpg 1024w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-205-768x512.jpg 768w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-205-1536x1024.jpg 1536w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-205-2048x1365.jpg 2048w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-205-18x12.jpg 18w\" sizes=\"(max-width: 3300px) 100vw, 3300px\" \/><\/p>\n<p>? Tambi\u00e9n asistieron al evento, en representaci\u00f3n del Equipo, dos corredores solidarios de Madrid (Miguel y Esther), dos de nuestras chicas, Sara y Alejandra con sus madres, y Xavier d&#8217;Arquer, gran fot\u00f3grafo solidario del Equipo desde el inicio.<\/p>\n<p style=\"text-align: justify;\"><img loading=\"lazy\" decoding=\"async\" class=\" size-full wp-image-2903\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-348-scaled.jpg\" alt=\"premios_aelmhu_2024-348.jpg\" width=\"3300\" height=\"2200\" srcset=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-348-scaled.jpg 2560w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-348-300x200.jpg 300w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-348-1024x683.jpg 1024w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-348-768x512.jpg 768w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-348-1536x1024.jpg 1536w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-348-2048x1365.jpg 2048w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-348-18x12.jpg 18w\" sizes=\"(max-width: 3300px) 100vw, 3300px\" \/><\/p>\n<p style=\"text-align: center;\"><img loading=\"lazy\" decoding=\"async\" class=\" size-full wp-image-2904\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-352-scaled.jpg\" alt=\"premios_aelmhu_2024-352.jpg\" width=\"3300\" height=\"2200\" srcset=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-352-scaled.jpg 2560w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-352-300x200.jpg 300w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-352-1024x683.jpg 1024w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-352-768x512.jpg 768w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-352-1536x1024.jpg 1536w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-352-2048x1365.jpg 2048w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-352-18x12.jpg 18w\" sizes=\"(max-width: 3300px) 100vw, 3300px\" \/><\/p>\n<p style=\"text-align: center;\"><img loading=\"lazy\" decoding=\"async\" class=\" size-full wp-image-2905\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-87-scaled.jpg\" alt=\"premios_aelmhu_2024-87.jpg\" width=\"3296\" height=\"2200\" srcset=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-87-scaled.jpg 2560w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-87-300x200.jpg 300w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-87-1024x683.jpg 1024w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-87-768x513.jpg 768w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-87-1536x1025.jpg 1536w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-87-2048x1367.jpg 2048w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-87-18x12.jpg 18w\" sizes=\"(max-width: 3296px) 100vw, 3296px\" \/><\/p>\n<p style=\"text-align: justify;\">? Gracias tambi\u00e9n a Santiago \u00cdnsula, director de Recursos Humanos de <strong>Zurich Espa\u00f1a<\/strong> y Salva Grau, especialista de marketing y patrocinio deportivo de la empresa, por acompa\u00f1arnos en la entrega de este Premio, que tambi\u00e9n es vuestro por apoyarnos.<\/p>\n<p>En esta exitosa experiencia de deporte inclusivo gestionada por Aefat&nbsp;<strong>han participado m\u00e1s de 30 de las poco m\u00e1s de 40 familias que forman la asociaci\u00f3n<\/strong>, incluyendo algunas cuyos hijos son m\u00e1s peque\u00f1os, y aquellas cuyos hijos han fallecido.<\/p>\n<p>El Equipo Zurich Aefat supone una&nbsp;<strong>actividad inclusiva y motivadora<\/strong>&nbsp;para estos ni\u00f1os y j\u00f3venes, una oportunidad para que sus familias compartan un fin de semana de convivencia, una forma de dar visibilidad a esta enfermedad infradiagnosticada y una buena ocasi\u00f3n para recaudar fondos y seguir financiando&nbsp;<a href=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2018\/09\/20\/investigacion\/\">proyectos de investigaci\u00f3n<\/a>.<\/p>\n<p>El corredor abanderado del Equipo Zurich Aefat, presente en todas las maratones del Equipo Zurich Aefat desde 2018, es Abel Fern\u00e1ndez Mendivil,&nbsp;<strong>SpiderAbel<\/strong>, un corredor de Amurrio (\u00c1lava), que lleva m\u00e1s de 100 maratones enfundado en su traje de Spiderman.&nbsp;Y entre los m\u00e1s de <strong>200 grandes corredores solidarios<\/strong> que han participado en alguna de las maratones, tambi\u00e9n destaca&nbsp;<strong>Gonzalo P\u00e9rez<\/strong>, corredor vasco que ha superado grandes retos por Aefat, recaudando dinero para la investigaci\u00f3n de la ataxia telangiectasia, como la reciente&nbsp;<a href=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2024\/09\/10\/gonzalo-perez-cumple-su-reto-solidario\/\">ruta de los faros<\/a>, los 800 km del&nbsp;<a href=\"https:\/\/www.farodevigo.es\/sociedad\/2022\/04\/10\/800-kilometros-carrera-combatir-ataxia-64893216.html\">Camino de Santiago<\/a>&nbsp;o el&nbsp;<a href=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2023\/04\/11\/gonzalo-perez-historia-reto-500-km-10-dias\/\">reto<\/a>&nbsp;de correr 500 km por monta\u00f1a en 10 d\u00edas seguidos.<\/p>\n<p>El Equipo ha contado tambi\u00e9n en algunas ocasiones con un&nbsp;<strong>corredor solidario \u201chonor\u00edfico\u201d,<\/strong>&nbsp;<strong>Gary Shaughnessy<\/strong>, presidente de la&nbsp;<a href=\"https:\/\/www.zurich.foundation\/\">Z Zurich Foundation<\/a>, gran deportista y ejemplo de superaci\u00f3n, que colabora con Aefat desde hace a\u00f1os y ha corrido con el Equipo Zurich Aefat en varias maratones.<\/p>\n<p>Nos quedamos con las caras de felicidad de los chicos y chicas de Aefat, y todos los bonitos momentos vividos con ellos y todos.<span class=\"white-space-pre\"> <\/span><\/p>\n<p>\u2764\ufe0fGracias Aelmhu (Marian, In\u00e9s, jurado, socios y equipo). Son 3.000 \u20ac m\u00e1s de esperanza para la investigaci\u00f3n de la ataxia telangiectasia.<\/p>\n<p>En la lista de compa\u00f1\u00edas que tambi\u00e9n han puesto su granito de arena ayudando a nuestro Equipo destacan <a href=\"https:\/\/www.mrw.es\/\">MRW<\/a>, que traslada nuestras sillas de marat\u00f3n y los paquetes con productos de merchadising solidario de ciudad en ciudad; y alojamientos que demuestran su compromiso con la responsabilidad social corporativa, como <a href=\"https:\/\/olarain.com\/alojamiento\/\">Olarain <\/a>en San Sebasti\u00e1n,&nbsp;Indigo Hotel Barcelona Gran V\u00eda Plaza Espa\u00f1a en Barcelona, el <a href=\"https:\/\/all.accor.com\/hotel\/1636\/index.es.shtml\">Novotel Madrid Campo de las Naciones<\/a> de Madrid, hotel <a href=\"https:\/\/www.melia.com\/en\/hotels\/spain\/seville\/melia-lebreros\">Meli\u00e1 Lebreros<\/a> en Sevilla, y&nbsp;<a href=\"https:\/\/www.melia.com\/es\/hoteles\/espana\/valencia\/melia-valencia\">Hotel Meli\u00e1 Valencia<\/a>. Muchos otros colaboradores, como&nbsp;<a href=\"https:\/\/asegasviseguros.zurich.es\/\">Asegasvi <\/a>(Jos\u00e9 Ortuzar), y los organizadores de cada una de las maratones en las que participamos (Sevilla, Barcelona, Madrid, San Sebasti\u00e1n y Valencia), que facilitan nuestra especial participaci\u00f3n.<\/p>\n<p><a href=\"https:\/\/www.instagram.com\/maratobarcelona\/\" class=\"x1i10hfl xjbqb8w x1ejq31n xd10rxx x1sy0etr x17r0tee x972fbf xcfux6l x1qhh985 xm0m39n x9f619 x1ypdohk xt0psk2 xe8uvvx xdj266r x11i5rnm xat24cr x1mh8g0r xexx8yu x4uap5 x18d9i69 xkhd6sd x16tdsg8 x1hl2dhg xggy1nq x1a2a7pz notranslate _a6hd\" tabindex=\"0\" role=\"link\">@maratobarcelona<\/a><br \/><a href=\"https:\/\/www.instagram.com\/maratonsansebastian\/\" class=\"x1i10hfl xjbqb8w x1ejq31n xd10rxx x1sy0etr x17r0tee x972fbf xcfux6l x1qhh985 xm0m39n x9f619 x1ypdohk xt0psk2 xe8uvvx xdj266r x11i5rnm xat24cr x1mh8g0r xexx8yu x4uap5 x18d9i69 xkhd6sd x16tdsg8 x1hl2dhg xggy1nq x1a2a7pz notranslate _a6hd\" tabindex=\"0\" role=\"link\">@maratonsansebastian<\/a><br \/><a href=\"https:\/\/www.instagram.com\/maratondesevilla\/\" class=\"x1i10hfl xjbqb8w x1ejq31n xd10rxx x1sy0etr x17r0tee x972fbf xcfux6l x1qhh985 xm0m39n x9f619 x1ypdohk xt0psk2 xe8uvvx xdj266r x11i5rnm xat24cr x1mh8g0r xexx8yu x4uap5 x18d9i69 xkhd6sd x16tdsg8 x1hl2dhg xggy1nq x1a2a7pz notranslate _a6hd\" tabindex=\"0\" role=\"link\">@maratondesevilla<\/a><br \/><a href=\"https:\/\/www.instagram.com\/maratondemadrid\/\" class=\"x1i10hfl xjbqb8w x1ejq31n xd10rxx x1sy0etr x17r0tee x972fbf xcfux6l x1qhh985 xm0m39n x9f619 x1ypdohk xt0psk2 xe8uvvx xdj266r x11i5rnm xat24cr x1mh8g0r xexx8yu x4uap5 x18d9i69 xkhd6sd x16tdsg8 x1hl2dhg xggy1nq x1a2a7pz notranslate _a6hd\" tabindex=\"0\" role=\"link\">@maratondemadrid<\/a><br \/><a href=\"https:\/\/www.instagram.com\/maratonvalencia\/\" class=\"x1i10hfl xjbqb8w x1ejq31n xd10rxx x1sy0etr x17r0tee x972fbf xcfux6l x1qhh985 xm0m39n x9f619 x1ypdohk xt0psk2 xe8uvvx xdj266r x11i5rnm xat24cr x1mh8g0r xexx8yu x4uap5 x18d9i69 xkhd6sd x16tdsg8 x1hl2dhg xggy1nq x1a2a7pz notranslate _a6hd\" tabindex=\"0\" role=\"link\">@maratonvalencia<\/a><br \/><a href=\"https:\/\/www.instagram.com\/olaraincm\/\" class=\"x1i10hfl xjbqb8w x1ejq31n xd10rxx x1sy0etr x17r0tee x972fbf xcfux6l x1qhh985 xm0m39n x9f619 x1ypdohk xt0psk2 xe8uvvx xdj266r x11i5rnm xat24cr x1mh8g0r xexx8yu x4uap5 x18d9i69 xkhd6sd x16tdsg8 x1hl2dhg xggy1nq x1a2a7pz notranslate _a6hd\" tabindex=\"0\" role=\"link\">@olaraincm<\/a><br \/><a href=\"https:\/\/www.instagram.com\/mrw_es\/\" class=\"x1i10hfl xjbqb8w x1ejq31n xd10rxx x1sy0etr x17r0tee x972fbf xcfux6l x1qhh985 xm0m39n x9f619 x1ypdohk xt0psk2 xe8uvvx xdj266r x11i5rnm xat24cr x1mh8g0r xexx8yu x4uap5 x18d9i69 xkhd6sd x16tdsg8 x1hl2dhg xggy1nq x1a2a7pz notranslate _a6hd\" tabindex=\"0\" role=\"link\">@mrw_es<\/a><br \/><a href=\"https:\/\/www.instagram.com\/ayrehoteles\/\" class=\"x1i10hfl xjbqb8w x1ejq31n xd10rxx x1sy0etr x17r0tee x972fbf xcfux6l x1qhh985 xm0m39n x9f619 x1ypdohk xt0psk2 xe8uvvx xdj266r x11i5rnm xat24cr x1mh8g0r xexx8yu x4uap5 x18d9i69 xkhd6sd x16tdsg8 x1hl2dhg xggy1nq x1a2a7pz notranslate _a6hd\" tabindex=\"0\" role=\"link\">@ayrehoteles<\/a><br \/><a href=\"https:\/\/www.instagram.com\/meliavalencia\/\" class=\"x1i10hfl xjbqb8w x1ejq31n xd10rxx x1sy0etr x17r0tee x972fbf xcfux6l x1qhh985 xm0m39n x9f619 x1ypdohk xt0psk2 xe8uvvx xdj266r x11i5rnm xat24cr x1mh8g0r xexx8yu x4uap5 x18d9i69 xkhd6sd x16tdsg8 x1hl2dhg xggy1nq x1a2a7pz notranslate _a6hd\" tabindex=\"0\" role=\"link\">@meliavalencia<\/a><br \/><a href=\"https:\/\/www.instagram.com\/melia.hotels.international\/\" class=\"x1i10hfl xjbqb8w x1ejq31n xd10rxx x1sy0etr x17r0tee x972fbf xcfux6l x1qhh985 xm0m39n x9f619 x1ypdohk xt0psk2 xe8uvvx xdj266r x11i5rnm xat24cr x1mh8g0r xexx8yu x4uap5 x18d9i69 xkhd6sd x16tdsg8 x1hl2dhg xggy1nq x1a2a7pz notranslate _a6hd\" tabindex=\"0\" role=\"link\">@melia.hotels.international<\/a><br \/><a href=\"https:\/\/www.instagram.com\/hotelindigobcnplazaespana\/\" class=\"x1i10hfl xjbqb8w x1ejq31n xd10rxx x1sy0etr x17r0tee x972fbf xcfux6l x1qhh985 xm0m39n x9f619 x1ypdohk xt0psk2 xe8uvvx xdj266r x11i5rnm xat24cr x1mh8g0r xexx8yu x4uap5 x18d9i69 xkhd6sd x16tdsg8 x1hl2dhg xggy1nq x1a2a7pz notranslate _a6hd\" tabindex=\"0\" role=\"link\">@hotelindigobcnplazaespana<\/a><br \/><a href=\"https:\/\/www.instagram.com\/novotelmadridcn\/\" class=\"x1i10hfl xjbqb8w x1ejq31n xd10rxx x1sy0etr x17r0tee x972fbf xcfux6l x1qhh985 xm0m39n x9f619 x1ypdohk xt0psk2 xe8uvvx xdj266r x11i5rnm xat24cr x1mh8g0r xexx8yu x4uap5 x18d9i69 xkhd6sd x16tdsg8 x1hl2dhg xggy1nq x1a2a7pz notranslate _a6hd\" tabindex=\"0\" role=\"link\">@novotelmadridcn<\/a><\/p>\n<p>? Justo Navas<\/p>\n<p style=\"text-align: center;\">&nbsp;<img loading=\"lazy\" decoding=\"async\" class=\" size-full wp-image-2906\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-169-scaled.jpg\" alt=\"premios_aelmhu_2024-169.jpg\" width=\"3296\" height=\"2200\" srcset=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-169-scaled.jpg 2560w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-169-300x200.jpg 300w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-169-1024x683.jpg 1024w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-169-768x513.jpg 768w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-169-1536x1025.jpg 1536w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-169-2048x1367.jpg 2048w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-169-18x12.jpg 18w\" sizes=\"(max-width: 3296px) 100vw, 3296px\" \/><\/p>\n<p style=\"text-align: center;\"><img loading=\"lazy\" decoding=\"async\" class=\" size-full wp-image-2907\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-59-scaled.jpg\" alt=\"premios_aelmhu_2024-59.jpg\" width=\"2933\" height=\"2200\" srcset=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-59-scaled.jpg 2560w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-59-300x225.jpg 300w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-59-1024x768.jpg 1024w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-59-768x576.jpg 768w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-59-1536x1152.jpg 1536w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-59-2048x1536.jpg 2048w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-59-16x12.jpg 16w\" sizes=\"(max-width: 2933px) 100vw, 2933px\" \/><\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\" size-full wp-image-2908\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-51-scaled.jpg\" alt=\"premios_aelmhu_2024-51.jpg\" width=\"3300\" height=\"2200\" srcset=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-51-scaled.jpg 2560w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-51-300x200.jpg 300w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-51-1024x683.jpg 1024w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-51-768x512.jpg 768w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-51-1536x1024.jpg 1536w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-51-2048x1365.jpg 2048w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-51-18x12.jpg 18w\" sizes=\"(max-width: 3300px) 100vw, 3300px\" \/><\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\" size-full wp-image-2909\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-97-scaled.jpg\" alt=\"premios_aelmhu_2024-97.jpg\" width=\"3300\" height=\"2200\" srcset=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-97-scaled.jpg 2560w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-97-300x200.jpg 300w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-97-1024x683.jpg 1024w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-97-768x512.jpg 768w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-97-1536x1024.jpg 1536w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-97-2048x1365.jpg 2048w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-97-18x12.jpg 18w\" sizes=\"(max-width: 3300px) 100vw, 3300px\" \/><\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\" size-full wp-image-2910\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-211-scaled.jpg\" alt=\"premios_aelmhu_2024-211.jpg\" width=\"3296\" height=\"2200\" style=\"display: block; margin-left: auto; margin-right: auto;\" srcset=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-211-scaled.jpg 2560w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-211-300x200.jpg 300w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-211-1024x683.jpg 1024w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-211-768x513.jpg 768w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-211-1536x1025.jpg 1536w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-211-2048x1367.jpg 2048w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-211-18x12.jpg 18w\" sizes=\"(max-width: 3296px) 100vw, 3296px\" \/><\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\" size-full wp-image-2911\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-222-scaled.jpg\" alt=\"premios_aelmhu_2024-222.jpg\" width=\"3300\" height=\"2200\" srcset=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-222-scaled.jpg 2560w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-222-300x200.jpg 300w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-222-1024x683.jpg 1024w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-222-768x512.jpg 768w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-222-1536x1024.jpg 1536w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-222-2048x1365.jpg 2048w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-222-18x12.jpg 18w\" sizes=\"(max-width: 3300px) 100vw, 3300px\" \/><\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\" size-full wp-image-2912\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-228-scaled.jpg\" alt=\"premios_aelmhu_2024-228.jpg\" width=\"3296\" height=\"2200\" srcset=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-228-scaled.jpg 2560w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-228-300x200.jpg 300w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-228-1024x683.jpg 1024w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-228-768x513.jpg 768w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-228-1536x1025.jpg 1536w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-228-2048x1367.jpg 2048w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-228-18x12.jpg 18w\" sizes=\"(max-width: 3296px) 100vw, 3296px\" \/><\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p><img fetchpriority=\"high\" decoding=\"async\" class=\" size-full wp-image-2899\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-214-scaled.jpg\" alt=\"premios aelmhu 2024 214\" width=\"2560\" height=\"1707\" srcset=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-214-scaled.jpg 2560w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-214-300x200.jpg 300w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-214-1024x683.jpg 1024w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-214-768x512.jpg 768w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-214-1536x1024.jpg 1536w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-214-2048x1365.jpg 2048w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2024\/11\/premios_aelmhu_2024-214-18x12.jpg 18w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/p>\n<p>?El pasado 6 de noviembre recibimos en Madrid el Premio AELMHU 2024 al \u201cMejor proyecto de difusi\u00f3n y sensibilizaci\u00f3n sobre enfermedades raras\u201d, por nuestro proyecto de deporte inclusivo de participaci\u00f3n en maratones, el Equipo Zurich Aefat.<\/p>\n<p>??\u200d???\u200d???\u200d\u2642\ufe0f??\u200d\u2640\ufe0f8 a\u00f1os, 30 maratones, m\u00e1s de 30 familias de Aefat implicadas, m\u00e1s de 200 corredores solidarios excepcionales y m\u00e1s de 500 publicaciones en medios de comunicaci\u00f3n.<\/p>\n<p>?El Premio fue recogido, en nombre de familias y corredores, por la periodista <em>freelance<\/em> oscense Rosa Casbas, nuestra responsable de Comunicaci\u00f3n de Aefat y coordinadora de todas las gestiones del Equipo de maratones desde el inicio, hace 8 a\u00f1os.&nbsp; Subi\u00f3 al escenario en compa\u00f1\u00eda de su sobrino \u00c1lvaro, de Terrassa (Barcelona), uno de los afectados con ataxia telangiectasia.<\/p>\n","protected":false},"author":1,"featured_media":2899,"comment_status":"closed","ping_status":"open","sticky":true,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[807],"tags":[60,731,55,738,332,732,279,737,409,414,331,125,458,740,71,64,735,267,739,736,308,69,741],"class_list":["post-2913","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-deporte-solidario","tag-aefat","tag-aelmhu","tag-ataxia-telangiectasia","tag-comunicacion","tag-deporte-inclusivo","tag-difusion","tag-discapacidad","tag-doblestudio","tag-enfermedad-neurodegenerativa","tag-enfermedades-minoritarias","tag-enfermedes-raras","tag-equipo-zurich-at","tag-inclusion","tag-inclusivo","tag-malaga","tag-maraton","tag-medicamentos-huerfanos","tag-palco23","tag-proyecto","tag-rosa-casbas","tag-runner-solidario","tag-running","tag-silla-de-ruedas"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO 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