{"id":3001,"date":"2025-03-17T12:55:07","date_gmt":"2025-03-17T12:55:07","guid":{"rendered":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2025\/03\/17\/marato-barcelona-2025-post\/"},"modified":"2026-03-02T11:59:51","modified_gmt":"2026-03-02T11:59:51","slug":"marato-barcelona-2025-post","status":"publish","type":"post","link":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2025\/03\/17\/marato-barcelona-2025-post\/","title":{"rendered":"Nuestro Equipo Zurich Aefat particip\u00f3 en la Marat\u00f3 Barcelona 2025\u00a0con su ola azul solidaria"},"content":{"rendered":"

\"Equipo<\/p>\n

Compuesto por seis j\u00f3venes con ataxia telangiectasia y m\u00e1s de veinte corredores que empujaron sus sillas especiales, nuestro Equipo Zurich Aefat cumpli\u00f3 su marat\u00f3n n\u00famero 32 <\/strong>este domingo participando en la Zurich Marat\u00f3 Barcelona<\/a>. Una ola azul solidaria que destac\u00f3 entre m\u00e1s de 27.000 corredores, a su paso por las calles de la ciudad condal, entre aplausos y gritos de \u00e1nimo.<\/p>\n

En este evento barcelon\u00e9s es donde se origin\u00f3 esta bonita iniciativa inclusiva, \u00fanica en Espa\u00f1a<\/strong>, hace nueve a\u00f1os<\/a>. Un proyecto creado por Aefat<\/a>, la asociaci\u00f3n que agrupa a las familias de los poco m\u00e1s de 40 ni\u00f1os y j\u00f3venes con ataxia telangiectasia en Espa\u00f1a, y que cuenta con el apoyo de la compa\u00f1\u00eda aseguradora desde su inicio.<\/p>\n

Este Equipo solidario, que participa cada a\u00f1o en las cinco maratones m\u00e1s importantes, ha recibido dos premios<\/a> a nivel estatal: Premios Aelmhu y X Foro Afectivo Efectivo.<\/strong> Su objetivo es motivar a los ni\u00f1os y j\u00f3venes afectados con ataxia telangiectasia, fomentar el deporte inclusivo, y buscar una cura o tratamiento para esta devastadora enfermedad rara, neurodegenerativa, que causa una grave discapacidad f\u00edsica progresiva y acorta la esperanza de vida.<\/p>\n

Corredores y afectados, procedentes de distintas comunidades aut\u00f3nomas, forman el Equipo Zurich Aefat<\/strong>. Los seis<\/strong> participantes<\/strong> de Aefat fueron Sara (Madrid), Jon (Vitoria-Gasteiz), \u00c1lex (Oliva, Valencia), Lola (Barcelona), y los hermanos Luis-Ill\u00e1n y \u00c1lvaro (Terrassa, Barcelona). En esta marat\u00f3n se dieron cita tambi\u00e9n otros afectados que acudieron a animar y apoyar al equipo.<\/p>\n

Tal como explic\u00f3 Rosa Casbas<\/strong>, responsable de Comunicaci\u00f3n de Aefat y del Equipo, \u201ceste proyecto, que tantos resultados positivos nos ha dado en motivaci\u00f3n, sensibilizaci\u00f3n, difusi\u00f3n y recaudaci\u00f3n, no ser\u00eda posible sin el apoyo incondicional desde el inicio de nuestros corredores voluntarios, de Zurich Seguros, de los organizadores de cada marat\u00f3n, y de MRW<\/a> en el traslado de las sillas especiales y los productos solidarios de ciudad en ciudad. Y adem\u00e1s, aqu\u00ed en Barcelona hemos contado con la colaboraci\u00f3n especial en el alojamiento del 45 Times Barcelona Hotel<\/a>, que pertenece al Palladium Hotel Group<\/a>\u201d.<\/p>\n

Aefat contin\u00faa recaudando fondos para financiar proyectos de investigaci\u00f3n y ha creado un reto en la plataforma Migranodearena<\/strong> para esta marat\u00f3n en este enlace<\/a>. Tambi\u00e9n se puede colaborar donando<\/strong> en www.aefat.es\/dona<\/a>, o a trav\u00e9s del Bizum 01274.<\/p>\n

La ataxia telangiectasia<\/strong><\/a> es uno de los 300 tipos de ataxia que existen. Es una enfermedad ultra rara, gen\u00e9tica y multisist\u00e9mica que a\u00fan no tiene cura ni tratamiento. Provoca una grave discapacidad f\u00edsica progresiva (hacia los 8-10 a\u00f1os necesitan silla de ruedas), inmunodeficiencia, problemas respiratorios, dificultad en el habla y una alta probabilidad de c\u00e1ncer, entre otras complicaciones. Afecta a m\u00e1s de 11 ni\u00f1os y j\u00f3venes en Catalunya.<\/p>\n

Aefat<\/strong> es una asociaci\u00f3n sin \u00e1nimo de lucro creada en 2009 y Declarada de Utilidad P\u00fablica desde 2014. Pertenece a FEDER (Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras) y es fundadora de la entidad internacional A-T Global Alliance (www.cureat.org<\/a>).<\/p>\n

V\u00eddeo de 3 min. de la historia del equipo <\/a>https:\/\/youtu.be\/OqbjevdMpnw<\/a><\/strong><\/p>\n

Fotos de la Zurich Marat\u00f3 Barcelona 2025. Fotos: Xavier d\u2019Arquer-Doblestudio<\/strong><\/p>\n

 \"Equipo<\/p>\n

\"Zurich_Maraton_Barcelona_2025_017.jpg\"\"Equipo_Zurich_Aefat_en_Marat\u00f3_Barcelona_2025_Foto_Xavier_dArquer_2.jpg\"\"Equipo_Zurich_Aefat_en_Marat\u00f3_Barcelona_2025_Foto_Xavier_dArquer_3.jpg\"\"Equipo_Zurich_Aefat_en_Marat\u00f3_Barcelona_2025_Foto_Xavier_dArquer_4.jpg\"\"Equipo_Zurich_Aefat_en_Marat\u00f3_Barcelona_2025_Foto_Xavier_dArquer_6.jpg\"\"Equipo_Zurich_Aefat_en_Marat\u00f3_Barcelona_2025_Foto_Xavier_dArquer_7.jpg\"\"Zurich_Maraton_Barcelona_2025_005.jpg\"\"Zurich_Maraton_Barcelona_2025_008.jpg\"\"Zurich_Maraton_Barcelona_2025_009.jpg\"\"Zurich_Maraton_Barcelona_2025_011.jpg\"\"Zurich_Maraton_Barcelona_2025_012.jpg\"\"Zurich_Maraton_Barcelona_2025_013.jpg\"\"Zurich_Maraton_Barcelona_2025_015.jpg\"<\/p>\n

 <\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

\"Equipo<\/p>\n

Compuesto por seis j\u00f3venes con ataxia telangiectasia y m\u00e1s de veinte corredores que empujaron sus sillas especiales, nuestro Equipo Zurich Aefat cumpli\u00f3 su marat\u00f3n n\u00famero 32 <\/strong>este domingo participando en la Zurich Marat\u00f3 Barcelona<\/a>. Una ola azul solidaria que destac\u00f3 entre m\u00e1s de 27.000 corredores, a su paso por las calles de la ciudad condal, entre aplausos y gritos de \u00e1nimo.<\/p>\n

En este evento barcelon\u00e9s es donde se origin\u00f3 esta bonita iniciativa inclusiva, \u00fanica en Espa\u00f1a<\/strong>, hace nueve a\u00f1os<\/a>. Un proyecto creado por Aefat<\/a>, la asociaci\u00f3n que agrupa a las familias de los poco m\u00e1s de 40 ni\u00f1os y j\u00f3venes con ataxia telangiectasia en Espa\u00f1a, y que cuenta con el apoyo de la compa\u00f1\u00eda aseguradora desde su inicio.<\/p>\n","protected":false},"author":1,"featured_media":2986,"comment_status":"closed","ping_status":"open","sticky":true,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[807],"tags":[60,55,163,501,64,285,336,736,69,63,68],"class_list":["post-3001","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-deporte-solidario","tag-aefat","tag-ataxia-telangiectasia","tag-barcelona","tag-marato","tag-maraton","tag-murcia-com","tag-reto","tag-rosa-casbas","tag-running","tag-solidario","tag-vitoria-gasteiz"],"acf":[],"yoast_head":"\nNuestro Equipo Zurich Aefat particip\u00f3 en la Marat\u00f3 Barcelona 2025\u00a0con su ola azul solidaria - Aefat<\/title>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Nuestro Equipo Zurich Aefat particip\u00f3 en la Marat\u00f3 Barcelona 2025\u00a0con su ola azul solidaria - Aefat\" \/>\n<meta property=\"og:description\" content=\"Compuesto por seis j\u00f3venes con ataxia telangiectasia y m\u00e1s de veinte corredores que empujaron sus sillas especiales, nuestro Equipo Zurich Aefat cumpli\u00f3 su marat\u00f3n n\u00famero 32 este domingo participando en la Zurich Marat\u00f3 Barcelona. 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