{"id":3009,"date":"2025-04-10T11:08:26","date_gmt":"2025-04-10T11:08:26","guid":{"rendered":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2025\/04\/10\/doble-reto-camino-de-santiago\/"},"modified":"2026-03-02T11:59:51","modified_gmt":"2026-03-02T11:59:51","slug":"doble-reto-camino-de-santiago","status":"publish","type":"post","link":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2025\/04\/10\/doble-reto-camino-de-santiago\/","title":{"rendered":"Dos runners solidarios correr\u00e1n m\u00e1s de 1.200 km del Camino de Santiago por la investigaci\u00f3n de la ataxia telangiectasia"},"content":{"rendered":"<p><img fetchpriority=\"high\" decoding=\"async\" class=\" size-full wp-image-3007\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2025\/04\/UNIDOS_GONZALO_ABEL_portada_baja-scaled.jpg\" alt=\"UNIDOS GONZALO ABEL portada baja\" style=\"display: block; margin: 10px auto;\" width=\"2560\" height=\"1440\" srcset=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2025\/04\/UNIDOS_GONZALO_ABEL_portada_baja-scaled.jpg 2560w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2025\/04\/UNIDOS_GONZALO_ABEL_portada_baja-300x169.jpg 300w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2025\/04\/UNIDOS_GONZALO_ABEL_portada_baja-1024x576.jpg 1024w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2025\/04\/UNIDOS_GONZALO_ABEL_portada_baja-768x432.jpg 768w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2025\/04\/UNIDOS_GONZALO_ABEL_portada_baja-1536x864.jpg 1536w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2025\/04\/UNIDOS_GONZALO_ABEL_portada_baja-2048x1152.jpg 2048w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2025\/04\/UNIDOS_GONZALO_ABEL_portada_baja-18x10.jpg 18w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/p>\n<p style=\"text-align: justify;\">Los corredores de <em>ultra trail<\/em> Gonzalo P\u00e9rez Zunzunegui (nacido en Bilbao y residente en \u00c1lava), y Abel de Frutos Arag\u00fce (de Segovia), se han unido para lanzar un macro reto solidario con el que recorrer\u00e1n en total m\u00e1s de 1.200 km por el Camino de Santiago, corriendo una media de 40-50 km diarios en modo autosuficiente, con una mochila a cuestas que contendr\u00e1 todo lo necesario.<\/p>\n<p style=\"text-align: justify;\">Su objetivo es&nbsp;<strong>recaudar fondos para<\/strong><strong>la<\/strong><strong>investigaci\u00f3n<\/strong> de la <strong><a href=\"https:\/\/www.youtube.com\/watch?v=rtwGsOa0kV4\">ataxia telangiectasia<\/a>, y<\/strong><strong>apoyar a los ni\u00f1os y j\u00f3venes afectados <\/strong>con esta enfermedad gen\u00e9tica, degenerativa, sin cura ni tratamiento, que provoca una grave discapacidad f\u00edsica progresiva, inmunodeficiencia y una elevada probabilidad de c\u00e1ncer.<\/p>\n<p style=\"text-align: justify;\">Ambos se conocieron corriendo con el <strong>Equipo Zurich Aefat<\/strong>, empujando las sillas de los ni\u00f1os y j\u00f3venes con ataxia telangiectasia en algunas de las 32 maratones en las que ya ha participado el grupo. Se trata de una iniciativa de deporte inclusivo creada por <a href=\"https:\/\/www.aefat.es\/\">Aefat<\/a> hace ocho a\u00f1os, \u00fanica en Espa\u00f1a, que cuenta con el apoyo de la compa\u00f1\u00eda aseguradora. La asociaci\u00f3n ya ha recibido dos <a href=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2024\/11\/19\/segundo-premio-en-dos-semanas-x-foro-premios-afectivo-efectivo\/\">premios<\/a> a nivel estatal por este bonito proyecto: Premios Aelmhu y X Foro Afectivo Efectivo.<\/p>\n<p style=\"text-align: justify;\">Hablando en una de las comidas de convivencia tras terminar los 42 km de una marat\u00f3n, Abel y Gonzalo decidieron unir fuerzas y compartir un <strong><a href=\"https:\/\/www.youtube.com\/watch?v=4q4j6B0HL00\">reto<\/a> juntos,<\/strong> relacionado con el Camino de Santiago. De all\u00ed surgi\u00f3 \u00abUniendo caminos a contracorriente por Aefat\u201d. <strong>Del 21 al 31 de mayo, Abel de Frutos<\/strong>&nbsp;<strong>Arag\u00fce <\/strong>correr\u00e1 unos 600 km en 11 etapas desde Segovia hasta Santiago, por el Camino de Madrid y el Camino Franc\u00e9s. El \u00faltimo d\u00eda de mayo, Abel pasar\u00e1 el testigo a su compa\u00f1ero. As\u00ed, <strong>del 1 al 15 de junio<\/strong>,&nbsp;<strong>Gonzalo P\u00e9rez Zunzunegui<\/strong> correr\u00e1 unos 650 km en 15 etapas, desde Santiago hasta Getxo, por el Camino del Norte, pero en sentido inverso.<\/p>\n<p style=\"text-align: justify;\">Para&nbsp;<strong>Abel<\/strong>, que ha corrido casi 50 maratones y ultramaratones por todo el mundo, ser\u00e1 su primer reto en solitario a beneficio de Aefat.&nbsp;<strong>Gonzalo<\/strong>&nbsp;ya lleva cuatro \u201cmisiones tit\u00e1nicas\u201d, una por a\u00f1o: en 2024 corri\u00f3 la Ruta de los Faros, 280 km en 7 d\u00edas; en <strong>2023<\/strong> corri\u00f3 la <strong>vuelta a Euskadi y Navarra por monta\u00f1a<\/strong>, 500 kil\u00f3metros en 10 d\u00edas; en <strong>2022<\/strong> complet\u00f3 el <strong>Camino de Santiago<\/strong>, corriendo 800 km en 16 d\u00edas; y en <strong>2021<\/strong>, Gonzalo corri\u00f3 211 km en tres d\u00edas por la \u201c<strong>Llanada alavesa\u201d<\/strong>. En total, Gonzalo ha recaudado m\u00e1s de 24.600 euros para la <a href=\"index.php\/a-t\/investigacion\/proyectos-que-financiamos\">investigaci\u00f3n<\/a> de la ataxia telangiectasia y para comprar dos sillas especiales para que los ni\u00f1os y j\u00f3venes de Aefat puedan realizar excursiones a la monta\u00f1a. El compromiso de Gonzalo le ha llevado incluso a tatuarse el logotipo de Aefat en su brazo.<\/p>\n<p style=\"text-align: justify;\">Estos dos grandes deportistas solidarios ir\u00e1n <strong>contando su experiencia<\/strong> a trav\u00e9s de sus redes sociales y las de Aefat. Gonzalo adem\u00e1s publica sus recorridos de <em>runner<\/em> en la Revista ON del Grupo Noticias.<\/p>\n<p style=\"text-align: justify;\">Ambos est\u00e1n ya empezando a recaudar fondos a trav\u00e9s de su <a href=\"https:\/\/www.migranodearena.org\/reto\/doble-reto-uniendo-caminos-a-contracorriente-por-aefat\">reto publicado<\/a> en la plataforma de crowdfunding Migranodearena, donde esperan llegar a los 10.000 euros. Adem\u00e1s, han buscado \u201cpadrinos\u201d que apoyen el reto entre empresas locales y del sector.<\/p>\n<p style=\"text-align: justify;\"><strong>Abel<\/strong> ya cuenta con la colaboraci\u00f3n de <a href=\"https:\/\/brualdissg.es\/\">Brualdis<\/a>, <a href=\"https:\/\/fundacioncajaruraldesegovia.es\/\">Fundaci\u00f3n Caja Rural de Segovia<\/a>, <a href=\"https:\/\/eventsthinker.com\/\">Eventsthinker<\/a>, <a href=\"https:\/\/metalesyaluminiossegovia.es\/\">Metales y Aluminios Segovia<\/a>, <a href=\"https:\/\/gastronomiajosemaria.com\/\">Gastronom\u00eda Jos\u00e9 Mar\u00eda<\/a>, <a href=\"https:\/\/restaurantecasares.com\/\">Restaurante Casares<\/a>, <a href=\"https:\/\/www.naturpellet.es\/\">Naturpellet<\/a>, <a href=\"https:\/\/tiendamundolaboral.net\/\">Tienda Mundo Laboral<\/a>, <a href=\"https:\/\/nutriexper.com\/\">Nutriexper<\/a>, <a href=\"https:\/\/www.instagram.com\/enredos_pelusg\/\">Peluquer\u00eda Enredos<\/a>, <a href=\"https:\/\/www.segocar.es\/tienda\/\">Recambios Segocar<\/a>, <a href=\"https:\/\/www.cimalp.es\/\">Cimalp<\/a>, <a href=\"https:\/\/www.alonsosegoviaelectricidad.es\/\">Alonso Segovia Electricidad<\/a>, <a href=\"http:\/\/www.hostaldonjaime.com\/\">Hostal Don Jaime<\/a>, <a href=\"https:\/\/www.instagram.com\/chema.carpinteria\/\">Carpinter\u00eda y Ebanister\u00eda Chema<\/a> y <a href=\"https:\/\/segoviaudaz.es\/\">Segoviaudaz.es<\/a>.<\/p>\n<p style=\"text-align: justify;\">Diferentes empresas y entidades del Pa\u00eds Vasco han confirmado tambi\u00e9n su apoyo a <strong>Gonzalo<\/strong>: <a href=\"https:\/\/lancor.es\/\">Lancor<\/a>, <a href=\"https:\/\/es.wikipedia.org\/wiki\/Grupo_Noticias\">Grupo Noticias<\/a>, <a href=\"https:\/\/www.goxobreak.com\/\">Goxo Break<\/a>, <a href=\"https:\/\/cya.eus\/\">CyA Compresores<\/a>, <a href=\"https:\/\/www.instagram.com\/queseria_moraita\/\">Queser\u00eda Moraita<\/a>, <a href=\"https:\/\/onekatirado.eus\/\">Oneka Tirado Fotograf\u00eda<\/a>,&nbsp;<a href=\"https:\/\/www.instagram.com\/boxfit_cruces\">Boxfti Cruces<\/a>&nbsp;y el <a href=\"https:\/\/www.okondokoudala.eus\/\">Ayuntamiento de Okondo<\/a>.<\/p>\n<p style=\"text-align: justify;\"><strong>Patxi Vill\u00e9n<\/strong>, presidente de Aefat, ha mostrado su agradecimiento en nombre de todas las familias. \u201cMuchas veces te sientes desamparado con el diagn\u00f3stico y la dura evoluci\u00f3n de nuestros hijos, pero cuando te encuentras gente como Gonzalo y Abel, que lo dan todo por ayudarnos, te anima a seguir luchando. Estamos muy agradecidos con ellos, y con todas las empresas, entidades y personas que est\u00e1n colaborando con este inmenso doble reto\u201d.<\/p>\n<h5 style=\"text-align: justify;\"><span style=\"color: #ff00ff;\"><strong><strong>V\u00eddeo de presentaci\u00f3n del reto, con informaci\u00f3n de etapas:<span>&nbsp;<\/span><\/strong><\/strong><\/span><\/h5>\n<h5 style=\"text-align: justify;\"><span style=\"color: #ff00ff;\"><strong><strong><a href=\"https:\/\/www.youtube.com\/watch?v=4q4j6B0HL00\"><\/a><a href=\"https:\/\/www.youtube.com\/watch?v=4q4j6B0HL00\">https:\/\/www.youtube.com\/watch?v=4q4j6B0HL00<\/a><\/strong><\/strong><\/span><\/h5>\n<h5><img decoding=\"async\" class=\" size-full wp-image-3008\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2025\/04\/Abel_izquierda_dorsal_naranja_y_Gonzalo_gorra_blanca_empujando_silla_Foto_Xavier_dArquer_Doblestudio.jpg\" alt=\"Abel_izquierda_dorsal_naranja_y_Gonzalo_gorra_blanca_empujando_silla_Foto_Xavier_dArquer_Doblestudio.jpg\" width=\"1675\" height=\"1117\" style=\"display: block; margin-left: auto; margin-right: auto;\" srcset=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2025\/04\/Abel_izquierda_dorsal_naranja_y_Gonzalo_gorra_blanca_empujando_silla_Foto_Xavier_dArquer_Doblestudio.jpg 1675w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2025\/04\/Abel_izquierda_dorsal_naranja_y_Gonzalo_gorra_blanca_empujando_silla_Foto_Xavier_dArquer_Doblestudio-300x200.jpg 300w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2025\/04\/Abel_izquierda_dorsal_naranja_y_Gonzalo_gorra_blanca_empujando_silla_Foto_Xavier_dArquer_Doblestudio-1024x683.jpg 1024w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2025\/04\/Abel_izquierda_dorsal_naranja_y_Gonzalo_gorra_blanca_empujando_silla_Foto_Xavier_dArquer_Doblestudio-768x512.jpg 768w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2025\/04\/Abel_izquierda_dorsal_naranja_y_Gonzalo_gorra_blanca_empujando_silla_Foto_Xavier_dArquer_Doblestudio-1536x1024.jpg 1536w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2025\/04\/Abel_izquierda_dorsal_naranja_y_Gonzalo_gorra_blanca_empujando_silla_Foto_Xavier_dArquer_Doblestudio-18x12.jpg 18w\" sizes=\"(max-width: 1675px) 100vw, 1675px\" \/><\/h5>\n<h6 style=\"text-align: center;\"><em>Abel (izquierda, dorsal naranja) y Gonzalo (gorra blanca, empujando silla), con el Equipo Zurich Aefat. Foto: Xavier d&#8217;Arquer (Doblestudio)<\/em><\/h6>\n<p>&nbsp;<\/p>\n<h5><span style=\"color: #ff00ff;\"><strong>SOBRE LA ATAXIA TELANGIECTASIA Y AEFAT<\/strong><\/span><\/h5>\n<p style=\"text-align: justify;\">La <a href=\"https:\/\/www.youtube.com\/watch?v=rtwGsOa0kV4\">ataxia telangiectasia<\/a> (AT o A-T) es uno de los 300 tipos de ataxias que existen y provoca una grave discapacidad f\u00edsica progresiva. Se trata de una enfermedad multisist\u00e9mica que se manifiesta habitualmente antes de los dos a\u00f1os de edad, aunque hay afectados que han esperado hasta 10 a\u00f1os para el diagn\u00f3stico porque se confunde con otras patolog\u00edas. Afecta a las funciones de diferentes \u00f3rganos y provoca incapacidad de coordinar movimientos, p\u00e9rdida progresiva de movilidad (hacia los 9 a\u00f1os se necesita silla de ruedas), dificultad en el habla, estancamiento en el crecimiento, inmunodeficiencia, dificultades para comer, problemas en la piel y en la visi\u00f3n, neumon\u00edas y otras complicaciones. Por la misma mutaci\u00f3n, los pacientes son m\u00e1s proclives a los tumores malignos (como los sarcomas, linfomas, leucemias&#8230;).<\/p>\n<p style=\"text-align: justify;\"><strong><a href=\"https:\/\/www.aefat.es\/\">Aefat<\/a><\/strong> es una asociaci\u00f3n sin \u00e1nimo de lucro creada en 2009 y declarada de utilidad p\u00fablica desde 2014. La asociaci\u00f3n pertenece a FEDER (Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras) y es fundadora de la internacional A-T Global Alliance (<a href=\"http:\/\/www.cureat.org\">www.cureat.org<\/a>).<\/p>\n<p style=\"text-align: justify;\"><strong>Para saber en 2 minutos qu\u00e9 es la ATAXIA TELANGIECTASIA (v\u00eddeo explicado por familias y afectados de todo el mundo): <\/strong><a href=\"https:\/\/www.youtube.com\/watch?v=rtwGsOa0kV4\"><\/a><a href=\"https:\/\/www.youtube.com\/watch?v=rtwGsOa0kV4\">https:\/\/www.youtube.com\/watch?v=rtwGsOa0kV4<\/a><\/p>\n<p style=\"text-align: justify;\"><strong>&nbsp;<\/strong><\/p>\n<p style=\"text-align: justify;\"><em>M\u00e1s novedades en redes sociales de Aefat: <strong><a href=\"https:\/\/www.instagram.com\/aefat_at\"><strong>Instagram<\/strong><\/a>,<\/strong><strong>&nbsp;<\/strong><strong><a href=\"https:\/\/www.facebook.com\/AEFAT.es\"><strong>Facebook<\/strong><\/a><\/strong><strong>, <\/strong><strong><a href=\"https:\/\/twitter.com\/AEF_AT\"><strong>Twitter<\/strong><\/a>, <a href=\"https:&lt;a href=\">\/\/www.tiktok.com\/@aefat_at<\/a>\u00ab&gt;<strong>TikTok<\/strong> y <a href=\"https:\/\/www.youtube.com\/channel\/UCL1GHfBJ763cCcJqMSGwx2w\/featured\"><strong>Youtube<\/strong><\/a><\/strong><\/em><strong>.<\/strong><\/p>\n","protected":false},"excerpt":{"rendered":"<p><img fetchpriority=\"high\" decoding=\"async\" class=\" size-full wp-image-3007\" src=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2025\/04\/UNIDOS_GONZALO_ABEL_portada_baja-scaled.jpg\" alt=\"UNIDOS GONZALO ABEL portada baja\" style=\"display: block; margin: 10px auto;\" width=\"2560\" height=\"1440\" srcset=\"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2025\/04\/UNIDOS_GONZALO_ABEL_portada_baja-scaled.jpg 2560w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2025\/04\/UNIDOS_GONZALO_ABEL_portada_baja-300x169.jpg 300w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2025\/04\/UNIDOS_GONZALO_ABEL_portada_baja-1024x576.jpg 1024w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2025\/04\/UNIDOS_GONZALO_ABEL_portada_baja-768x432.jpg 768w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2025\/04\/UNIDOS_GONZALO_ABEL_portada_baja-1536x864.jpg 1536w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2025\/04\/UNIDOS_GONZALO_ABEL_portada_baja-2048x1152.jpg 2048w, https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/wp-content\/uploads\/2025\/04\/UNIDOS_GONZALO_ABEL_portada_baja-18x10.jpg 18w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/p>\n<p style=\"text-align: justify;\">Los corredores de <em>ultra trail<\/em> Gonzalo P\u00e9rez Zunzunegui (nacido en Bilbao y residente en \u00c1lava), y Abel de Frutos Arag\u00fce (de Segovia), se han unido para lanzar un macro reto solidario con el que recorrer\u00e1n en total m\u00e1s de 1.200 km por el Camino de Santiago, corriendo una media de 40-50 km diarios en modo autosuficiente, con una mochila a cuestas que contendr\u00e1 todo lo necesario.<\/p>\n<p style=\"text-align: justify;\">Su objetivo es&nbsp;<strong>recaudar fondos para<\/strong><strong>la<\/strong><strong>investigaci\u00f3n<\/strong> de la <strong><a href=\"https:\/\/www.youtube.com\/watch?v=rtwGsOa0kV4\">ataxia telangiectasia<\/a>, y<\/strong><strong>apoyar a los ni\u00f1os y j\u00f3venes afectados <\/strong>con esta enfermedad gen\u00e9tica, degenerativa, sin cura ni tratamiento, que provoca una grave discapacidad f\u00edsica progresiva, inmunodeficiencia y una elevada probabilidad de c\u00e1ncer.<\/p>\n","protected":false},"author":1,"featured_media":3007,"comment_status":"closed","ping_status":"open","sticky":true,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[813],"tags":[783,60,785,55,224,381,786,248,286,62,421,787,789,469,25,69,782,784,621,788],"class_list":["post-3009","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-campanas-y-financiacion","tag-abel-de-frutos","tag-aefat","tag-asturias","tag-ataxia-telangiectasia","tag-bilbao","tag-camino-de-santiago","tag-cantabria","tag-diadelasenfermedadesraras","tag-el-pais","tag-enfermedades-raras","tag-gonzalo-perez","tag-leon","tag-lugo","tag-pais-vasco","tag-reto-solidario","tag-running","tag-santiago-de-compostela","tag-segovia","tag-trail-running","tag-valladolid"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Dos runners solidarios correr\u00e1n m\u00e1s de 1.200 km del Camino de Santiago por la investigaci\u00f3n de la ataxia telangiectasia - Aefat<\/title>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Dos runners solidarios correr\u00e1n m\u00e1s de 1.200 km del Camino de Santiago por la investigaci\u00f3n de la ataxia telangiectasia - Aefat\" \/>\n<meta property=\"og:description\" content=\"Los corredores de ultra trail Gonzalo P\u00e9rez Zunzunegui (nacido en Bilbao y residente en \u00c1lava), y Abel de Frutos Arag\u00fce (de Segovia), se han unido para lanzar un macro reto solidario con el que recorrer\u00e1n en total m\u00e1s de 1.200 km por el Camino de Santiago, corriendo una media de 40-50 km diarios en modo autosuficiente, con una mochila a cuestas que contendr\u00e1 todo lo necesario. 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