{"id":3114,"date":"2025-06-25T00:24:28","date_gmt":"2025-06-25T00:24:28","guid":{"rendered":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2025\/06\/25\/aefat-lanza-la-primera-guia-clinica-en-espanol-sobre-la-ataxia-telangiectasia\/"},"modified":"2026-03-02T11:59:34","modified_gmt":"2026-03-02T11:59:34","slug":"aefat-lanza-la-primera-guia-clinica-en-espanol-sobre-la-ataxia-telangiectasia","status":"publish","type":"post","link":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2025\/06\/25\/aefat-lanza-la-primera-guia-clinica-en-espanol-sobre-la-ataxia-telangiectasia\/","title":{"rendered":"AEFAT lanza la primera gu\u00eda cl\u00ednica en espa\u00f1ol sobre la Ataxia Telangiectasia"},"content":{"rendered":"

\"PortadaGuiaClinica\"<\/p>\n

AEFAT<\/strong><\/span> lanza la primera gu\u00eda cl\u00ednica en espa\u00f1ol dedicada a la ataxia telangiectasia<\/strong> (AT), con recomendaciones para su diagn\u00f3stico, atenci\u00f3n cl\u00ednica y seguimiento.<\/span><\/p>\n

La gu\u00eda ha contado con la direcci\u00f3n del Dr. Samuel Ignacio Pascual<\/strong>, jefe del Servicio de Neuropediatr\u00eda del Hospital de la Paz hasta su reciente jubilaci\u00f3n, y las aportaciones de un equipo multidisciplinar,<\/strong> integrado por m\u00e1s de medio centenar<\/strong> de especialistas m\u00e9dicos y otros profesionales sanitarios de Espa\u00f1a y Argentina con experiencia<\/strong> en la atenci\u00f3n de pacientes con AT.<\/span><\/p>\n

Esta gu\u00eda, que parte de diferentes gu\u00edas internacionales ya existentes, quiere contribuir a la mejor atenci\u00f3n de los pacientes<\/strong> con las particularidades de nuestro sistema sanitario.<\/span><\/p>\n

La gu\u00eda se dirige a m\u00e9dicos,  pacientes y su familia<\/strong>, con el fin de proporcionar la mejor informaci\u00f3n disponible. Apuesta por la coordinaci\u00f3n en la atenci\u00f3n de los afectados entre los especialistas de los centros con mayor experiencia<\/strong> y los profesionales sanitarios responsables del paciente<\/strong>, que atendiendo a sus  circunstancias  concretas y del centro sanitario<\/strong> han de evaluar las mejores opciones<\/strong> disponibles junto a los afectados o sus cuidadores. <\/span><\/p>\n

\"\"Esta gu\u00eda se publica coincidiendo con la AT Clinical Research Conference 2025<\/strong><\/a> que se inicia hoy en Loughborough, Reino Unido.  Organizada por la AT Society<\/a>, <\/strong>y a la que AEFAT<\/strong><\/span> contribuye dentro de la AT Global Alliance<\/strong><\/a> como patrocinador de este relevante encuentro, que contar\u00e1 con los principales especialistas del mundo<\/strong> en la investigaci\u00f3n y asistencia de la ataxia telengiectasia.<\/span><\/p>\n

AEFAT<\/strong><\/span> tambi\u00e9n participa en este encuentro con una comunicaci\u00f3n<\/strong> sobre esta gu\u00eda cl\u00ednica, la primera publicada en espa\u00f1ol.<\/span><\/p>\n

S\u00f3lo nos resta agradecer a todos<\/strong> los que, desde su \u00e1mbito de especializaci\u00f3n y trabajo, con del Dr. Samuel Ignacio Pascual<\/strong> a la cabeza, han hecho realidad<\/strong> esta gu\u00eda cl\u00ednica, tras tanto tiempo<\/strong> persigui\u00e9ndola desde  AEFAT<\/span><\/strong>. Esperamos que pronto redunde en un mayor conocimiento de la enfermedad<\/strong> y una mejor atenci\u00f3n<\/strong> de los pacientes.<\/span><\/p>\n

 {phocadownload view=file|id=144|target=b}<\/p>\n

 \"Natasha<\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

\"PortadaGuiaClinica\"<\/p>\n

AEFAT<\/strong><\/span> lanza la primera gu\u00eda cl\u00ednica en espa\u00f1ol dedicada a la ataxia telangiectasia<\/strong> (AT), con recomendaciones para su diagn\u00f3stico, atenci\u00f3n cl\u00ednica y seguimiento.<\/span><\/p>\n

La gu\u00eda ha contado con la direcci\u00f3n del Dr. Samuel Ignacio Pascual<\/strong>, jefe del Servicio de Neuropediatr\u00eda del Hospital de la Paz hasta su reciente jubilaci\u00f3n, y las aportaciones de un equipo multidisciplinar,<\/strong> integrado por m\u00e1s de medio centenar<\/strong> de especialistas m\u00e9dicos y otros profesionales sanitarios de Espa\u00f1a y Argentina con experiencia<\/strong> en la atenci\u00f3n de pacientes con AT.<\/span><\/p>\n","protected":false},"author":1,"featured_media":3111,"comment_status":"closed","ping_status":"open","sticky":true,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[811,824],"tags":[71],"class_list":["post-3114","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-investigacion","category-noticias-destacadas","tag-malaga"],"acf":[],"yoast_head":"\nAEFAT lanza la primera gu\u00eda cl\u00ednica en espa\u00f1ol sobre la Ataxia Telangiectasia - Aefat<\/title>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"AEFAT lanza la primera gu\u00eda cl\u00ednica en espa\u00f1ol sobre la Ataxia Telangiectasia - Aefat\" \/>\n<meta property=\"og:description\" content=\"AEFAT lanza la primera gu\u00eda cl\u00ednica en espa\u00f1ol dedicada a la ataxia telangiectasia (AT), con recomendaciones para su diagn\u00f3stico, atenci\u00f3n cl\u00ednica y seguimiento. 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