{"id":3134,"date":"2025-05-15T22:00:00","date_gmt":"2025-05-15T22:00:00","guid":{"rendered":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2025\/05\/15\/el-centro-comercial-abierto-cca-ferrol-a-magdalena-acogio-una-mesa-informativa-para-dar-visibilidad-a-la-ataxia-telangiectasia\/"},"modified":"2026-03-03T11:33:24","modified_gmt":"2026-03-03T11:33:24","slug":"el-centro-comercial-abierto-cca-ferrol-a-magdalena-acogio-una-mesa-informativa-para-dar-visibilidad-a-la-ataxia-telangiectasia","status":"publish","type":"post","link":"https:\/\/exciting-elbakyan.137-74-93-36.plesk.page\/index.php\/2025\/05\/15\/el-centro-comercial-abierto-cca-ferrol-a-magdalena-acogio-una-mesa-informativa-para-dar-visibilidad-a-la-ataxia-telangiectasia\/","title":{"rendered":"El Centro Comercial Abierto (CCA) Ferrol A Magdalena acogi\u00f3 una mesa informativa para dar visibilidad a la ataxia telangiectasia"},"content":{"rendered":"

\"GaliciaSquad<\/p>\n

\n
 <\/div>\n
El s\u00e1bado 10 de mayo el Centro Comercial Abierto a Magdalena<\/strong><\/a>, con motivo de la Fiesta de la Primavera, acogi\u00f3 una mesa informativa de nuestra delegaci\u00f3n en Ferrol. <\/span><\/div>\n
 <\/div>\n
La mesa informativa cont\u00f3 con el apoyo de Galicia Squad<\/strong><\/a>, quienes participaron activamente con las caracterizaciones de diferentes personajes de la saga Star War,<\/strong> contando con un fotomat\u00f3n gratuito  gracias a Imprenta Param\u00e9s<\/a>, <\/strong>contribuyendo todo ello a dar visibilidad a la ataxia telangiectasia y recaudaci\u00f3n de fondos para la investigaci\u00f3n de la enfermedad.<\/span><\/div>\n
La actividad cont\u00f3 con Mariv\u00ed V\u00e1zquez<\/strong>, secretaria de AEFAT<\/span><\/strong> y responsable de la delegaci\u00f3n en Ferrol<\/strong>, quien facilit\u00f3 informaci\u00f3n sobre la enfermedad y las actividades que AEFAT<\/span><\/strong> realiza, en especial los proyectos de investigaci\u00f3n en lo que colabora, para un mejor conocimiento de la enfermedad  y una mejor atenci\u00f3n de los afectados.<\/span><\/div>\n
 <\/div>\n
Desde AEFAT<\/strong><\/span> queremos mostrar nuestra gratitud a quienes hicieron posible esta jornada, como los responsable del CCA a Magdalena<\/strong> o a los miembros de Galicia Squad<\/strong> que mostraron como convertir su pasi\u00f3n en solidaridad por una \u00ab<\/span>causa friki\u00bb, como lo es una enfermedad rara y a Imprenta Param\u00e9s<\/strong> por sus continuas muestras de apoyo. <\/span><\/div>\n
 <\/div>\n
Agradecer a todos los que se interesaron y colaboraron con sus aportaciones, pues cualquier peque\u00f1a ayuda redunda en mantener la esperanza de lograr una cura para esta enfermedad con tantas aristas.<\/span><\/div>\n
 <\/div>\n
Queremos dar tambi\u00e9n las gracias a La Voz de Galicia<\/strong><\/a> por hacerse eco de esta actividad.<\/span><\/div>\n
 <\/div>\n
Esperamos que con la delegaci\u00f3n abierta en Ferrol se pueda acercar m\u00e1s la realidad de las familias gallegas afectadas por la ataxia telangiectasia y dar a conocer mejor las actividades que AEFAT<\/strong><\/span> realiza con el fin de apoyarlas.<\/span><\/div>\n
 <\/div>\n
\n\n\n\n
 \"Galicia<\/td>\n \"Galicia<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<\/div>\n
 <\/div>\n
 <\/div>\n
 <\/div>\n<\/div>\n
 <\/div>\n","protected":false},"excerpt":{"rendered":"

\"GaliciaSquad<\/p>\n

\n
 <\/div>\n
El s\u00e1bado 10 de mayo el Centro Comercial Abierto a Magdalena<\/strong><\/a>, con motivo de la Fiesta de la Primavera, acogi\u00f3 una mesa informativa de nuestra delegaci\u00f3n en Ferrol. <\/span><\/div>\n
 <\/div>\n
La mesa informativa cont\u00f3 con el apoyo de Galicia Squad<\/strong><\/a>, quienes participaron activamente con las caracterizaciones de diferentes personajes de la saga Star War,<\/strong> contando con un fotomat\u00f3n gratuito  gracias a Imprenta Param\u00e9s<\/a>, <\/strong>contribuyendo todo ello a dar visibilidad a la ataxia telangiectasia y recaudaci\u00f3n de fondos para la investigaci\u00f3n de la enfermedad.<\/span><\/div>\n","protected":false},"author":1,"featured_media":3131,"comment_status":"closed","ping_status":"open","sticky":true,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[51],"tags":[109],"class_list":["post-3134","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-actividades-solidarias","tag-salva-reina"],"acf":[],"yoast_head":"\nEl Centro Comercial Abierto (CCA) Ferrol A Magdalena acogi\u00f3 una mesa informativa para dar visibilidad a la ataxia telangiectasia - 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